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Throat/voice issues following NIVO/Opdivo , LONG TERM?
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Throat/voice issues following NIVO/Opdivo , LONG TERM?

› Forums › General Melanoma Community › Throat/voice issues following NIVO/Opdivo , LONG TERM?

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    • July 18, 2018 at 12:02 am
    tedtell1
    Participant

      I could use some help, if anyone has had experience with significant throat/voice issues from NIVO/OPdivo,

      My onco is pretty much stumped, I have been having minor issues (sore throat, spots, hoarse) Then over the last month it has gotten worse, and since I have been on Prednisone for a while (a whole nother issue that I wont go into right now), they expected the steroid to calm it down. The throat/voice issue has actually progressed further in the last couple of weeks to the point that my throat is constantly sore, and my voice is quite weak and comes and goes frequently. They did a C-scan on my throat and everything looks okay, but ENT peeps are going to look at my vocal chords on Friday. 

      I am a special education teacher of students who have substantial impairment, some cannot read thus I really need my voice when I go back to school the end of August. My present condition would not work. My voice quickly departs after a short conversation, never mind speaking at any decent volume for sustained time.

      Any experiences/potential treatments would be appreciated. 

      Blessings to all you warriors, I have to keep reminding myself I am still NED!

      Ted

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        • July 19, 2018 at 6:24 pm
        marta010
        Participant

          Hi Ted – I don't have any relevent info on the throat issues you descibed.  My husband had damage in his mouth/throat from radiation but that's a different story.  His ENT is Dr. Bevan Yueh at  Fairview/University of Minnesota Physicians – would highly, highly, highly recommend if you need a second opinion. Hope you find a treatment that provides relief.

          Ann

            • July 20, 2018 at 9:40 pm
            tedtell1
            Participant

              Thanks Ann,

              I may end up doing that soon. My appt. with the ENT didn't really go that great today. He offered up the idea that it could be acid reflux (possible) but couldn't see anything obvious issues, but didn't use a scope either and offered me a referral to a speech language pathologist. I was a little underwhelmed.

              Thanks for the help,

              Ted

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