The waiting begins……
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The waiting begins……

› Forums › General Melanoma Community › The waiting begins……

  • Post
    • July 31, 2013 at 9:08 pm
    Everymoment
    Participant

    Keeping my fingers crossed. The guy doing the scan said I did a nice job of holding still. I then replied, "did I light up???!" He said that question was above his pay grade. It's crazy that right now someone knows what's going on with my body and I don't! 

    Thanks for all of your nice thoughts!

    Isabell

    Keeping my fingers crossed. The guy doing the scan said I did a nice job of holding still. I then replied, "did I light up???!" He said that question was above his pay grade. It's crazy that right now someone knows what's going on with my body and I don't! 

    Thanks for all of your nice thoughts!

    Isabell

Viewing 14 reply threads
  • Replies
      • August 1, 2013 at 2:25 am
      Lori Stoen
      Participant

      hoping and wishing you get good news !

      • August 1, 2013 at 2:25 am
      Lori Stoen
      Participant

      hoping and wishing you get good news !

      • August 1, 2013 at 2:25 am
      Lori Stoen
      Participant

      hoping and wishing you get good news !

      • August 1, 2013 at 2:37 am
      JerryfromFauq
      Participant

      I walk out of radiology with a copy of my scans on disk.  Love UVA.

      • August 1, 2013 at 2:37 am
      JerryfromFauq
      Participant

      I walk out of radiology with a copy of my scans on disk.  Love UVA.

      • August 1, 2013 at 2:37 am
      JerryfromFauq
      Participant

      I walk out of radiology with a copy of my scans on disk.  Love UVA.

      • August 1, 2013 at 11:59 am
      gostan
      Participant
      Wow. Before your radiologist gives you the doc’s take?
      • August 1, 2013 at 12:16 pm
      Nonna Sharpe
      Participant
      Good morning!
      I’m just starting to follow.
      When you talk UVA is that the hospital?
      My son is stage 4, and has been battling since August 2012.
      I hope you will be part of the cure statistic as will my son. 🙂
      • August 1, 2013 at 12:47 pm
      hbecker
      Participant

      We also get copies of the disk when we leave the Hopkins lab where the tests are done – but not a report. And no, the technician won't tell us what s/he sees. It is indeed above their pay grade …

      I think one reason is that when the studies are read, they are compared with previous ones to see what's changed – as that is the most important thing. We all have "spots" throughout our body, but whether they are anything to worry about is the question. It takes time and careful study for them to come with a "no evidence of disease" report – or one that says lesions have grown or shrunk, or weren't seen before. 

      But patience is very hard … and I am already anxious, on August 1, about scans that will be done on August 20. It will be an unsettled month for us.

      Good luck, Isabell – hope you get the report you want!

      ~Hazel

      • August 1, 2013 at 6:26 pm
      casagrayson
      Participant

      I don't have melanoma, but I have Cushing's disease (tumors on the pituitary gland).  I always leave with digital copies of my scans (CT, MRI, etc).  If you tell the technician ahead of the test and sign a release of medical records waiver, they should have no problem giving them to you on the spot.  I much prefer that as I can review the scans and am more prepared to ask the doctor questions.

      • August 1, 2013 at 9:28 pm
      Everymoment
      Participant

      The doctor called and my scans are CLEAR:-)  This is wonderful. However, I still had a stroke at 35 and I still don't feel any better. I'm a little on the frustrated side that the docs can't figure out why I've had a stroke and we have done lots of tests.

      Thanks for all of your positive thoughts.

      Isabell

      • August 1, 2013 at 11:10 pm
      casagrayson
      Participant

      Happy Dance!  That is wonderful news.  I know you are frustrated in not knowing why, but hopefully you can be content with the fact that, as of right this minute, all is well!

      • August 2, 2013 at 12:15 am
      hbecker
      Participant

      Isabell, so glad your scans are clear!!! That means you can concentrate on something else for a while – living life, and maybe figuring out the stroke thing …

      Just so happy for you.

      ~Hazel

      • August 2, 2013 at 2:39 am
      JerryfromFauq
      Participant

      Before even the Radiologist has seen the scan!  Univ of Va schedules the scan for approximately two hours before your Onc apt so that the Pathologist can get a chance for an initial review immediately and put it on line, he provides a final review by the next day.  My Oncologist looks at the pathology initial report and at least one previous scan and the current scan himself before he sees me.  Sometimes I look at the scan before seeing the Onc, most times not, since my wife usually wants us to eat between the scan and office visit.  (Depends if I have a strong Suspicion of anything.)  They mail me the final pathalogical report a couple of days later.  Sure keeps the waiting anxiety down!

      • August 2, 2013 at 11:02 pm
      Everymoment
      Participant

      Thanks for all of the love! I just don't know where to go from here. I really don't want to have another stroke. It's crazy I'm saying that at 35.

      Thanks for the support.

      Hugs,

      Isabell

      • August 1, 2013 at 11:59 am
      gostan
      Participant
      Wow. Before your radiologist gives you the doc’s take?
      • August 1, 2013 at 11:59 am
      gostan
      Participant
      Wow. Before your radiologist gives you the doc’s take?
      • August 1, 2013 at 12:16 pm
      Nonna Sharpe
      Participant
      Good morning!
      I’m just starting to follow.
      When you talk UVA is that the hospital?
      My son is stage 4, and has been battling since August 2012.
      I hope you will be part of the cure statistic as will my son. 🙂
      • August 1, 2013 at 12:16 pm
      Nonna Sharpe
      Participant
      Good morning!
      I’m just starting to follow.
      When you talk UVA is that the hospital?
      My son is stage 4, and has been battling since August 2012.
      I hope you will be part of the cure statistic as will my son. 🙂
      • August 1, 2013 at 12:47 pm
      hbecker
      Participant

      We also get copies of the disk when we leave the Hopkins lab where the tests are done – but not a report. And no, the technician won't tell us what s/he sees. It is indeed above their pay grade …

      I think one reason is that when the studies are read, they are compared with previous ones to see what's changed – as that is the most important thing. We all have "spots" throughout our body, but whether they are anything to worry about is the question. It takes time and careful study for them to come with a "no evidence of disease" report – or one that says lesions have grown or shrunk, or weren't seen before. 

      But patience is very hard … and I am already anxious, on August 1, about scans that will be done on August 20. It will be an unsettled month for us.

      Good luck, Isabell – hope you get the report you want!

      ~Hazel

      • August 1, 2013 at 12:47 pm
      hbecker
      Participant

      We also get copies of the disk when we leave the Hopkins lab where the tests are done – but not a report. And no, the technician won't tell us what s/he sees. It is indeed above their pay grade …

      I think one reason is that when the studies are read, they are compared with previous ones to see what's changed – as that is the most important thing. We all have "spots" throughout our body, but whether they are anything to worry about is the question. It takes time and careful study for them to come with a "no evidence of disease" report – or one that says lesions have grown or shrunk, or weren't seen before. 

      But patience is very hard … and I am already anxious, on August 1, about scans that will be done on August 20. It will be an unsettled month for us.

      Good luck, Isabell – hope you get the report you want!

      ~Hazel

      • August 1, 2013 at 6:26 pm
      casagrayson
      Participant

      I don't have melanoma, but I have Cushing's disease (tumors on the pituitary gland).  I always leave with digital copies of my scans (CT, MRI, etc).  If you tell the technician ahead of the test and sign a release of medical records waiver, they should have no problem giving them to you on the spot.  I much prefer that as I can review the scans and am more prepared to ask the doctor questions.

      • August 1, 2013 at 6:26 pm
      casagrayson
      Participant

      I don't have melanoma, but I have Cushing's disease (tumors on the pituitary gland).  I always leave with digital copies of my scans (CT, MRI, etc).  If you tell the technician ahead of the test and sign a release of medical records waiver, they should have no problem giving them to you on the spot.  I much prefer that as I can review the scans and am more prepared to ask the doctor questions.

      • August 1, 2013 at 9:28 pm
      Everymoment
      Participant

      The doctor called and my scans are CLEAR:-)  This is wonderful. However, I still had a stroke at 35 and I still don't feel any better. I'm a little on the frustrated side that the docs can't figure out why I've had a stroke and we have done lots of tests.

      Thanks for all of your positive thoughts.

      Isabell

      • August 1, 2013 at 9:28 pm
      Everymoment
      Participant

      The doctor called and my scans are CLEAR:-)  This is wonderful. However, I still had a stroke at 35 and I still don't feel any better. I'm a little on the frustrated side that the docs can't figure out why I've had a stroke and we have done lots of tests.

      Thanks for all of your positive thoughts.

      Isabell

      • August 1, 2013 at 11:10 pm
      casagrayson
      Participant

      Happy Dance!  That is wonderful news.  I know you are frustrated in not knowing why, but hopefully you can be content with the fact that, as of right this minute, all is well!

      • August 1, 2013 at 11:10 pm
      casagrayson
      Participant

      Happy Dance!  That is wonderful news.  I know you are frustrated in not knowing why, but hopefully you can be content with the fact that, as of right this minute, all is well!

      • August 2, 2013 at 12:15 am
      hbecker
      Participant

      Isabell, so glad your scans are clear!!! That means you can concentrate on something else for a while – living life, and maybe figuring out the stroke thing …

      Just so happy for you.

      ~Hazel

      • August 2, 2013 at 12:15 am
      hbecker
      Participant

      Isabell, so glad your scans are clear!!! That means you can concentrate on something else for a while – living life, and maybe figuring out the stroke thing …

      Just so happy for you.

      ~Hazel

      • August 2, 2013 at 2:39 am
      JerryfromFauq
      Participant

      Before even the Radiologist has seen the scan!  Univ of Va schedules the scan for approximately two hours before your Onc apt so that the Pathologist can get a chance for an initial review immediately and put it on line, he provides a final review by the next day.  My Oncologist looks at the pathology initial report and at least one previous scan and the current scan himself before he sees me.  Sometimes I look at the scan before seeing the Onc, most times not, since my wife usually wants us to eat between the scan and office visit.  (Depends if I have a strong Suspicion of anything.)  They mail me the final pathalogical report a couple of days later.  Sure keeps the waiting anxiety down!

      • August 2, 2013 at 2:39 am
      JerryfromFauq
      Participant

      Before even the Radiologist has seen the scan!  Univ of Va schedules the scan for approximately two hours before your Onc apt so that the Pathologist can get a chance for an initial review immediately and put it on line, he provides a final review by the next day.  My Oncologist looks at the pathology initial report and at least one previous scan and the current scan himself before he sees me.  Sometimes I look at the scan before seeing the Onc, most times not, since my wife usually wants us to eat between the scan and office visit.  (Depends if I have a strong Suspicion of anything.)  They mail me the final pathalogical report a couple of days later.  Sure keeps the waiting anxiety down!

      • August 2, 2013 at 11:02 pm
      Everymoment
      Participant

      Thanks for all of the love! I just don't know where to go from here. I really don't want to have another stroke. It's crazy I'm saying that at 35.

      Thanks for the support.

      Hugs,

      Isabell

      • August 2, 2013 at 11:02 pm
      Everymoment
      Participant

      Thanks for all of the love! I just don't know where to go from here. I really don't want to have another stroke. It's crazy I'm saying that at 35.

      Thanks for the support.

      Hugs,

      Isabell

Viewing 14 reply threads
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