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The situation looks bad
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The situation looks bad

› Forums › General Melanoma Community › The situation looks bad

  • Post
    • July 7, 2015 at 8:32 pm
    dfeng
    Participant

      In march I was in severe pain in abdomen, during the surgery a 2cm tumor was found and removed. It turns out to be metastatic melanoma, stage IV. After three months, last week a CAT scan shows 6 more around liver size from 2cm to 3cm. It seems that I am really in bad situation.

       

      I am going to do brain scan and chest scan again this Thursday. Since three month ago everything shows clear but now, anything could happen.

       

      Talked to my doctor in MSKCC, I am going to start a clinic trial from next Thursday. I will never give up and definitely fight to the end of world.

      I will try to keep this post updated.

    Viewing 8 reply threads
    • Replies
        • July 7, 2015 at 10:56 pm
        Mat
        Participant

          Sorry to hear.  If you search this site, you'll find a number of Stage IV patients doing well.  You're at one of the best melanoma centers in the world.  I'm assuming that you're starting the ipi-nivo trial (Sloan's protocol for treatment naive patients)?  That combo is getting great results as you'll see in other posts on this forum.  Good luck.

          • July 7, 2015 at 10:56 pm
          Mat
          Participant

            Sorry to hear.  If you search this site, you'll find a number of Stage IV patients doing well.  You're at one of the best melanoma centers in the world.  I'm assuming that you're starting the ipi-nivo trial (Sloan's protocol for treatment naive patients)?  That combo is getting great results as you'll see in other posts on this forum.  Good luck.

            • July 7, 2015 at 10:56 pm
            Mat
            Participant

              Sorry to hear.  If you search this site, you'll find a number of Stage IV patients doing well.  You're at one of the best melanoma centers in the world.  I'm assuming that you're starting the ipi-nivo trial (Sloan's protocol for treatment naive patients)?  That combo is getting great results as you'll see in other posts on this forum.  Good luck.

              • July 7, 2015 at 11:16 pm
              jamieth29
              Participant
                Dfeng,
                I also just wanted to say good luck and i hope things work out for you. I looked at your profile and saw you have 3 young kids. I know the thoughts that have ran through your head. I was diagnosed in april and have 3 young kids myself. When i read about the kids i said to my wife…this disease is bullshit! I’m so mentally tired of reading and hearing people going through this. Anyway stay strong put your head down and plow forward.
                • July 7, 2015 at 11:16 pm
                jamieth29
                Participant
                  Dfeng,
                  I also just wanted to say good luck and i hope things work out for you. I looked at your profile and saw you have 3 young kids. I know the thoughts that have ran through your head. I was diagnosed in april and have 3 young kids myself. When i read about the kids i said to my wife…this disease is bullshit! I’m so mentally tired of reading and hearing people going through this. Anyway stay strong put your head down and plow forward.
                  • July 7, 2015 at 11:16 pm
                  jamieth29
                  Participant
                    Dfeng,
                    I also just wanted to say good luck and i hope things work out for you. I looked at your profile and saw you have 3 young kids. I know the thoughts that have ran through your head. I was diagnosed in april and have 3 young kids myself. When i read about the kids i said to my wife…this disease is bullshit! I’m so mentally tired of reading and hearing people going through this. Anyway stay strong put your head down and plow forward.
                    • July 8, 2015 at 1:49 am
                    Bubbles
                    Participant

                      Feng,

                      I am sorry for what you are going through.  However, you are attaining care in a good facility.  There is a great deal of information and hope on this forum.  I have been dealing with melanoma since 2003.  Stage IV with lung and brain mets in 2010.  I am still alive and kicking and NED today.  Hang in there. You can do this! Wishing you my best.  Celeste

                        • July 11, 2015 at 2:03 am
                        tschmith
                        Participant

                          Brain. lung, stomach, chest wall, hip, spine, and even more mets for me.  Stinking melanoma!  However, after a clinical trial at NIH and then Keytruda, I'm still here and found out last month that I'm NED.  You are being treated at a wonderful hospital.  I live near Washington, DC but am from New York and have had friends and relatives who have been treated at Sloan for various cancers, one was melanoma,  and they have nothing but great things to say about it.  They're still alive and kicking too!

                          Best wishes and keep the faith!

                          Terrie

                           

                          • July 11, 2015 at 2:03 am
                          tschmith
                          Participant

                            Brain. lung, stomach, chest wall, hip, spine, and even more mets for me.  Stinking melanoma!  However, after a clinical trial at NIH and then Keytruda, I'm still here and found out last month that I'm NED.  You are being treated at a wonderful hospital.  I live near Washington, DC but am from New York and have had friends and relatives who have been treated at Sloan for various cancers, one was melanoma,  and they have nothing but great things to say about it.  They're still alive and kicking too!

                            Best wishes and keep the faith!

                            Terrie

                             

                            • July 11, 2015 at 2:03 am
                            tschmith
                            Participant

                              Brain. lung, stomach, chest wall, hip, spine, and even more mets for me.  Stinking melanoma!  However, after a clinical trial at NIH and then Keytruda, I'm still here and found out last month that I'm NED.  You are being treated at a wonderful hospital.  I live near Washington, DC but am from New York and have had friends and relatives who have been treated at Sloan for various cancers, one was melanoma,  and they have nothing but great things to say about it.  They're still alive and kicking too!

                              Best wishes and keep the faith!

                              Terrie

                               

                            • July 8, 2015 at 1:49 am
                            Bubbles
                            Participant

                              Feng,

                              I am sorry for what you are going through.  However, you are attaining care in a good facility.  There is a great deal of information and hope on this forum.  I have been dealing with melanoma since 2003.  Stage IV with lung and brain mets in 2010.  I am still alive and kicking and NED today.  Hang in there. You can do this! Wishing you my best.  Celeste

                              • July 8, 2015 at 1:49 am
                              Bubbles
                              Participant

                                Feng,

                                I am sorry for what you are going through.  However, you are attaining care in a good facility.  There is a great deal of information and hope on this forum.  I have been dealing with melanoma since 2003.  Stage IV with lung and brain mets in 2010.  I am still alive and kicking and NED today.  Hang in there. You can do this! Wishing you my best.  Celeste

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