The lastest
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

The lastest

› Forums › General Melanoma Community › The lastest

  • Post
    • February 23, 2017 at 2:16 pm
    Aaron
    Participant

    Ok.  So before I go a little further I will give you a shortened version of the whole story, like I always do, for those who are unfamiliar or have forgotten.  

    NIVO/IPI combo

    1st scan everything reduced by 1/2  Roller coaster high

    Pituitary enlargement and vitiligo develops and  put on Prednisone complete only 3 of 4 Ipi and continue on Nivo  Roller Coaster high because I'm thinking I am responding but also low because I want the 4th dose and questioning what my life will look like now on all these new meds to replace pituitary function.

    2nd scan no growth no shrinkage; stable  Roller coaster low; questioning if my good responses were over.

    Tuesday I had my third scan.  I originally had 20+ tumors and now only have two measurable tumors left and they are shrinking!  Thank God for modern medicine and for being with me and my family through this.  I know it isn't over and that NED is not "cure" but I can't help but feel I am going to beat this.  ROLLER COASTER HIGH!

     

    Wishing the best and for all as always.

    Aaron

Viewing 10 reply threads
  • Replies
      • February 23, 2017 at 2:21 pm
      momof4boys
      Participant

      Wow Aaron, thats fantastic news! Thanks for sharing as I'm sure we can all use a little hope and good news around here right now.

      • February 23, 2017 at 2:47 pm
      jenny22
      Participant

      Hi Aaron- THAT IS GREAT NEWS….so happy for you…may it continue for many years to come….

       

      jenny

      • February 23, 2017 at 2:47 pm
      Nicklindner
      Participant

      awesome news man.  Thanks for sharing

      • February 23, 2017 at 5:55 pm
      Mat
      Participant

      Great news–thanks for sharing!

      • February 23, 2017 at 7:32 pm
      Patrisa
      Participant

      Aaron THAIT IS SUCH GREAT NEWS!!!

      Enjoy your 'freedom', may it last forever!

      • February 23, 2017 at 9:32 pm
      youngann
      Participant

      That's wonderful news, Aaron. Thank you so much for sharing it with us and giving us all hope.

      Ann

      • February 24, 2017 at 2:14 am
      mdoh
      Participant

      What wonderful news! How awesome. Thanks for sharing. 

      • February 24, 2017 at 3:14 am
      Maria C
      Participant

      Fabulous Aaron – from 20+ to 2, how much better can you do?!  Thanks so much for sharing your extradordinary news!!

      • February 24, 2017 at 4:04 am
      Bubbles
      Participant

      That's WONDERFUL, Aaron!!!!! Enjoy!  celeste

      • February 24, 2017 at 12:56 pm
      UBContributor
      Participant

      just fantastic!!!!! so promising and hopeful!! as about pituitary, i read here many times people are totally ok just taking a small pill daily to replace its functions. 

      • February 25, 2017 at 3:48 am
      maperny
      Participant

      Fantastic!

Viewing 10 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics