Temodar – Severity of Side Effects

My husand was on Temodar.  I don't remember the exact schedule, but it was not for the full month.  The side effects were minimal, just fatigue.  However, he did take an anti nauseau (?) pill a half hour before he took the Temodar.

Jackie W

My husand was on Temodar.  I don't remember the exact schedule, but it was not for the full month.  The side effects were minimal, just fatigue.  However, he did take an anti nauseau (?) pill a half hour before he took the Temodar.

Jackie W

My husand was on Temodar.  I don't remember the exact schedule, but it was not for the full month.  The side effects were minimal, just fatigue.  However, he did take an anti nauseau (?) pill a half hour before he took the Temodar.

Jackie W

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband actually started a 5 day dose of Temodar this past Thursday – He takes 300 mg in the evening (an anti-nausea 1/2 hour before) for 5 days – off 28 days and then begins the 5 days again.  He has some fatigue (however, has had that anyway, not sure if it is worse), and a little nausea.  Tonite was the last of his first five days – he seems pretty good.  Good luck to you and your family.

My husband finished his first 5 day dose of 300 mg/day this evening.  He had a few incidences of nausea, and fatigue – but for the most part tolerated very well.  He will be off for 28 days and begin the 5 day 300/mg/day again.  It hasn't prevented him from any daily activities.  Good luck to you and your family and God Bless.

My husband finished his first 5 day dose of 300 mg/day this evening.  He had a few incidences of nausea, and fatigue – but for the most part tolerated very well.  He will be off for 28 days and begin the 5 day 300/mg/day again.  It hasn't prevented him from any daily activities.  Good luck to you and your family and God Bless.

My husband finished his first 5 day dose of 300 mg/day this evening.  He had a few incidences of nausea, and fatigue – but for the most part tolerated very well.  He will be off for 28 days and begin the 5 day 300/mg/day again.  It hasn't prevented him from any daily activities.  Good luck to you and your family and God Bless.

My husband is currently taking Temodar pills, 42 days on and 14 off (160 mg).  He has been doing this since November, and the really big side effect has been fatigue.  He also takes anti-nausea pills 1/2 hour before his dose, then goes right to bed.  The first couple of days the nausea was persistent, but his body adjusted.  His appetite isn't what it was, but he has not lost any weight.

He is still working and enjoying life, and although it hasn't reduced to tumors, he does not have any new ones and he is stable.

Best wishes for the both of you,

Maria

My husband is currently taking Temodar pills, 42 days on and 14 off (160 mg).  He has been doing this since November, and the really big side effect has been fatigue.  He also takes anti-nausea pills 1/2 hour before his dose, then goes right to bed.  The first couple of days the nausea was persistent, but his body adjusted.  His appetite isn't what it was, but he has not lost any weight.

He is still working and enjoying life, and although it hasn't reduced to tumors, he does not have any new ones and he is stable.

Best wishes for the both of you,

Maria

My husband is currently taking Temodar pills, 42 days on and 14 off (160 mg).  He has been doing this since November, and the really big side effect has been fatigue.  He also takes anti-nausea pills 1/2 hour before his dose, then goes right to bed.  The first couple of days the nausea was persistent, but his body adjusted.  His appetite isn't what it was, but he has not lost any weight.

He is still working and enjoying life, and although it hasn't reduced to tumors, he does not have any new ones and he is stable.

Best wishes for the both of you,

Maria

I was on 300mg a day for 5 days in every 28 back in 2009. I had 2 anti-puke meds as well. If I didn't begin taking it the day before beginning Temodar I would puke my guts out…food seemed to liquify fast otherwise…and whatever went down…came up/ I was exhausted all the time. When I started "feeling normal" it was time to start Temodar again. I was on Temodar from July to March and then it stopped working. The docs at Mayo Clinic says it usually stops working in 6-7 months because melanoma outsmarts it. I think if he is NED it would probably work better had keeping it away.

I am in a anti pd-1 vaccine trial and not in the booster phase getting scans and MDX 1106 iv every 3 months as a preventative …..

I was on 300mg a day for 5 days in every 28 back in 2009. I had 2 anti-puke meds as well. If I didn't begin taking it the day before beginning Temodar I would puke my guts out…food seemed to liquify fast otherwise…and whatever went down…came up/ I was exhausted all the time. When I started "feeling normal" it was time to start Temodar again. I was on Temodar from July to March and then it stopped working. The docs at Mayo Clinic says it usually stops working in 6-7 months because melanoma outsmarts it. I think if he is NED it would probably work better had keeping it away.

I am in a anti pd-1 vaccine trial and not in the booster phase getting scans and MDX 1106 iv every 3 months as a preventative …..

I was on 300mg a day for 5 days in every 28 back in 2009. I had 2 anti-puke meds as well. If I didn't begin taking it the day before beginning Temodar I would puke my guts out…food seemed to liquify fast otherwise…and whatever went down…came up/ I was exhausted all the time. When I started "feeling normal" it was time to start Temodar again. I was on Temodar from July to March and then it stopped working. The docs at Mayo Clinic says it usually stops working in 6-7 months because melanoma outsmarts it. I think if he is NED it would probably work better had keeping it away.

I am in a anti pd-1 vaccine trial and not in the booster phase getting scans and MDX 1106 iv every 3 months as a preventative …..

I, too, was diagnosed Stage IV (known primary) with 2 brain lesions (+5 others in other locations). Chose gamma knife for first treatment then went on Temodar…started at 180 and quickly stepped up to maximum of 360 mg and stayed on it for 16 months. I responded quickly to the chemo and found it very easy to take with Zophran (anti-nausea med) 30 min before I took chemo. I also took it at night to sleep through the worst of the effects. Most noted reactions were fatigue, constipation, and mild nausea.

Surprisingly, the other lesions in my body (largest one in right lung) shrank until they could be surgically removed or disappeared completely. I have had one hitch since that time, but am currently maintaining N.E.D. status- that has been almost 7 yrs, 2005 since I was diagnosed. I'm glad that I chose and my doctor supported the decision to keep on attacking any remaining cancer cells with the almost year and a half of Temodar I took to do the job. (I liked to think of it as a poison for any stray cancer "rats" left in my body.

I hope and pray that your dad has the same results.

Karen

I, too, was diagnosed Stage IV (known primary) with 2 brain lesions (+5 others in other locations). Chose gamma knife for first treatment then went on Temodar…started at 180 and quickly stepped up to maximum of 360 mg and stayed on it for 16 months. I responded quickly to the chemo and found it very easy to take with Zophran (anti-nausea med) 30 min before I took chemo. I also took it at night to sleep through the worst of the effects. Most noted reactions were fatigue, constipation, and mild nausea.

Surprisingly, the other lesions in my body (largest one in right lung) shrank until they could be surgically removed or disappeared completely. I have had one hitch since that time, but am currently maintaining N.E.D. status- that has been almost 7 yrs, 2005 since I was diagnosed. I'm glad that I chose and my doctor supported the decision to keep on attacking any remaining cancer cells with the almost year and a half of Temodar I took to do the job. (I liked to think of it as a poison for any stray cancer "rats" left in my body.

I hope and pray that your dad has the same results.

Karen

I, too, was diagnosed Stage IV (known primary) with 2 brain lesions (+5 others in other locations). Chose gamma knife for first treatment then went on Temodar…started at 180 and quickly stepped up to maximum of 360 mg and stayed on it for 16 months. I responded quickly to the chemo and found it very easy to take with Zophran (anti-nausea med) 30 min before I took chemo. I also took it at night to sleep through the worst of the effects. Most noted reactions were fatigue, constipation, and mild nausea.

Surprisingly, the other lesions in my body (largest one in right lung) shrank until they could be surgically removed or disappeared completely. I have had one hitch since that time, but am currently maintaining N.E.D. status- that has been almost 7 yrs, 2005 since I was diagnosed. I'm glad that I chose and my doctor supported the decision to keep on attacking any remaining cancer cells with the almost year and a half of Temodar I took to do the job. (I liked to think of it as a poison for any stray cancer "rats" left in my body.

I hope and pray that your dad has the same results.

Karen