Temodar Patients

The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Temodar Patients

This topic has 6 replies, 2 voices, and was last updated 11 years, 5 months ago by killmel.

Post

- November 15, 2012 at 11:10 pm
- Quote
Becky C.
Participant
Hi, everyone. I am a stage IV melanoma patient being treated for five small brain mets. I am currently doing radiation for those. Just had a pet scan done which showed three positive lymph nodes, no other mets besides brain. My oncologist is recommending three mponths of temodar.. From reading posts on here, I have seen where some patients have had good response with it, and some not so good. I would appreciate hearing success stories from fellow patients that have been treated with Temodar. Thanks a lot.

Hi, everyone. I am a stage IV melanoma patient being treated for five small brain mets. I am currently doing radiation for those. Just had a pet scan done which showed three positive lymph nodes, no other mets besides brain. My oncologist is recommending three mponths of temodar.. From reading posts on here, I have seen where some patients have had good response with it, and some not so good. I would appreciate hearing success stories from fellow patients that have been treated with Temodar. Thanks a lot.

Viewing 5 reply threads

Replies

- - November 16, 2012 at 9:42 pm
  - Quote
  paul
  Participant
  Hi Becky,
  
  I took Temodar for a year — had several mets on my face that disappeared, a definite response. One that remained was smaller when surgically removed. Few side-effects.
  
  Paul
- - November 16, 2012 at 9:42 pm
  - Quote
  paul
  Participant
  Hi Becky,
  
  I took Temodar for a year — had several mets on my face that disappeared, a definite response. One that remained was smaller when surgically removed. Few side-effects.
  
  Paul
- - November 16, 2012 at 9:42 pm
  - Quote
  paul
  Participant
  Hi Becky,
  
  I took Temodar for a year — had several mets on my face that disappeared, a definite response. One that remained was smaller when surgically removed. Few side-effects.
  
  Paul
- - November 16, 2012 at 10:14 pm
  - Quote
  killmel
  Participant
  Hi Becky,
  
  I took temador for 6 months & progressed, then did IPI and I have been stable for 6 months
  
  Betsy
- - November 16, 2012 at 10:14 pm
  - Quote
  killmel
  Participant
  Hi Becky,
  
  I took temador for 6 months & progressed, then did IPI and I have been stable for 6 months
  
  Betsy
- - November 16, 2012 at 10:14 pm
  - Quote
  killmel
  Participant
  Hi Becky,
  
  I took temador for 6 months & progressed, then did IPI and I have been stable for 6 months
  
  Betsy

Viewing 5 reply threads

You must be logged in to reply to this topic.

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.