Hello-My brother has been battling for over 11 years. Recently he had two brain mets- in the left and right ventricas. After spending a month in Mayo Jax, he is at home. He is on Zel and we are seeing reduction from neck down (4 mets gone). The two in brain not progressing. He had 12 rounds of WBR as targeted radiation was not an option – the tumors were bleeding . I also would recommend if anyone has ever had a brain met to get scanned every 30 days- those two popped up in 45 days.
Hello-My brother has been battling for over 11 years. Recently he had two brain mets- in the left and right ventricas. After spending a month in Mayo Jax, he is at home. He is on Zel and we are seeing reduction from neck down (4 mets gone). The two in brain not progressing. He had 12 rounds of WBR as targeted radiation was not an option – the tumors were bleeding . I also would recommend if anyone has ever had a brain met to get scanned every 30 days- those two popped up in 45 days.
Now after his first check up – the Zel or it could be a delayed reaction of Yervoy – or combo of both – no more brain bleed, the brain mets slightly smaller, and as mentioned, body mets reducing.
We are going to see Moffitt center late April, but his wife would like to know if he is a candidate for targeted brain radiation after the WBR? I feel like let the Zel work – and also hold out for the Dabfranib (does anyone know approval date?)
This battle almost took him out, but he is a fighter. There is reduced mental capacity – but hoping that will improve-they say about 6 months. I know I have a lot of questions!
You guys have helped us out for a long time- and we appreciate it from the bottoms of our stressed out hearts!!
All the best and thank you again,
MrsMarilyn
(sister of gary Stage Iv)
