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Subungual Melanoma
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Subungual Melanoma

› Forums › General Melanoma Community › Subungual Melanoma

  • Post
    • August 15, 2014 at 2:11 am
    mike potthoff
    Participant

      I was diagnosed today with subungual melanoma.  Started in my finger nail and now recommending that they remove 1/4  of my thumb.  Does anyone know of a cancer center in the US that specializes in this type of melanoma?  Scary for me…four young sons and have always been healthy

    Viewing 2 reply threads
    • Replies
        • August 15, 2014 at 4:04 am
        Marianne quinn
        Participant

          My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

            • August 16, 2014 at 12:18 pm
            mike potthoff
            Participant

              Thank you much.  Will let you know if I find a specialist.

              • August 17, 2014 at 2:42 am
              Marianne quinn
              Participant

                My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

                I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

                You will get through this. Marianne 

                • August 17, 2014 at 2:42 am
                Marianne quinn
                Participant

                  My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

                  I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

                  You will get through this. Marianne 

                  • August 18, 2014 at 12:17 pm
                  mike potthoff
                  Participant

                    Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

                    • August 18, 2014 at 12:17 pm
                    mike potthoff
                    Participant

                      Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

                      • August 19, 2014 at 4:14 am
                      Marianne quinn
                      Participant

                        Are they doing a sentinel node biopsy too?

                        • August 25, 2014 at 12:16 pm
                        mike potthoff
                        Participant

                          yes

                          • August 25, 2014 at 12:16 pm
                          mike potthoff
                          Participant

                            yes

                            • August 25, 2014 at 12:16 pm
                            mike potthoff
                            Participant

                              yes

                              • August 26, 2014 at 11:57 am
                              mike potthoff
                              Participant

                                Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

                                • November 19, 2014 at 12:33 pm
                                mike potthoff
                                Participant

                                  Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

                                  thank you,

                                  Mike p

                                  • November 19, 2014 at 10:00 pm
                                  casagrayson
                                  Participant

                                    I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

                                    • November 19, 2014 at 11:21 pm
                                    mike potthoff
                                    Participant

                                      thank you much

                                      • November 19, 2014 at 11:21 pm
                                      mike potthoff
                                      Participant

                                        thank you much

                                        • November 19, 2014 at 11:21 pm
                                        mike potthoff
                                        Participant

                                          thank you much

                                          • November 19, 2014 at 10:00 pm
                                          casagrayson
                                          Participant

                                            I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

                                            • November 19, 2014 at 10:00 pm
                                            casagrayson
                                            Participant

                                              I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

                                              • November 19, 2014 at 12:33 pm
                                              mike potthoff
                                              Participant

                                                Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

                                                thank you,

                                                Mike p

                                                • November 19, 2014 at 12:33 pm
                                                mike potthoff
                                                Participant

                                                  Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

                                                  thank you,

                                                  Mike p

                                                  • August 26, 2014 at 11:57 am
                                                  mike potthoff
                                                  Participant

                                                    Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

                                                    • August 26, 2014 at 11:57 am
                                                    mike potthoff
                                                    Participant

                                                      Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

                                                      • August 19, 2014 at 4:14 am
                                                      Marianne quinn
                                                      Participant

                                                        Are they doing a sentinel node biopsy too?

                                                        • August 19, 2014 at 4:14 am
                                                        Marianne quinn
                                                        Participant

                                                          Are they doing a sentinel node biopsy too?

                                                          • August 18, 2014 at 12:17 pm
                                                          mike potthoff
                                                          Participant

                                                            Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

                                                            • August 17, 2014 at 2:42 am
                                                            Marianne quinn
                                                            Participant

                                                              My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

                                                              I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

                                                              You will get through this. Marianne 

                                                              • August 16, 2014 at 12:18 pm
                                                              mike potthoff
                                                              Participant

                                                                Thank you much.  Will let you know if I find a specialist.

                                                                • August 16, 2014 at 12:18 pm
                                                                mike potthoff
                                                                Participant

                                                                  Thank you much.  Will let you know if I find a specialist.

                                                                • August 15, 2014 at 4:04 am
                                                                Marianne quinn
                                                                Participant

                                                                  My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

                                                                  • August 15, 2014 at 4:04 am
                                                                  Marianne quinn
                                                                  Participant

                                                                    My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

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