Subungual Melanoma
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Subungual Melanoma

› Forums › General Melanoma Community › Subungual Melanoma

  • Post
    • August 15, 2014 at 2:11 am
    mike potthoff
    Participant

    I was diagnosed today with subungual melanoma.  Started in my finger nail and now recommending that they remove 1/4  of my thumb.  Does anyone know of a cancer center in the US that specializes in this type of melanoma?  Scary for me…four young sons and have always been healthy

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  • Replies
      • August 15, 2014 at 4:04 am
      Marianne quinn
      Participant

      My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

        • August 16, 2014 at 12:18 pm
        mike potthoff
        Participant

        Thank you much.  Will let you know if I find a specialist.

        • August 16, 2014 at 12:18 pm
        mike potthoff
        Participant

        Thank you much.  Will let you know if I find a specialist.

        • August 16, 2014 at 12:18 pm
        mike potthoff
        Participant

        Thank you much.  Will let you know if I find a specialist.

        • August 17, 2014 at 2:42 am
        Marianne quinn
        Participant

        My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

        I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

        You will get through this. Marianne 

        • August 18, 2014 at 12:17 pm
        mike potthoff
        Participant

        Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

        • August 19, 2014 at 4:14 am
        Marianne quinn
        Participant

        Are they doing a sentinel node biopsy too?

        • August 19, 2014 at 4:14 am
        Marianne quinn
        Participant

        Are they doing a sentinel node biopsy too?

        • August 25, 2014 at 12:16 pm
        mike potthoff
        Participant

        yes

        • August 25, 2014 at 12:16 pm
        mike potthoff
        Participant

        yes

        • August 25, 2014 at 12:16 pm
        mike potthoff
        Participant

        yes

        • August 26, 2014 at 11:57 am
        mike potthoff
        Participant

        Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

        • November 19, 2014 at 12:33 pm
        mike potthoff
        Participant

        Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

        thank you,

        Mike p

        • November 19, 2014 at 12:33 pm
        mike potthoff
        Participant

        Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

        thank you,

        Mike p

        • November 19, 2014 at 12:33 pm
        mike potthoff
        Participant

        Melanoma moved to the bone and now have spot where spleen and rib located along with lung.  If anyone has any experience with this would appreciate any insight on treatment, medications, medical institutions.

        thank you,

        Mike p

        • November 19, 2014 at 10:00 pm
        casagrayson
        Participant

        I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

        • November 19, 2014 at 10:00 pm
        casagrayson
        Participant

        I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

        • November 19, 2014 at 10:00 pm
        casagrayson
        Participant

        I'm so sorry you received this news, Mike.  I have no experiences or advice to share — just wanted to give you a virtual hug.

        • November 19, 2014 at 11:21 pm
        mike potthoff
        Participant

        thank you much

        • November 19, 2014 at 11:21 pm
        mike potthoff
        Participant

        thank you much

        • November 19, 2014 at 11:21 pm
        mike potthoff
        Participant

        thank you much

        • August 26, 2014 at 11:57 am
        mike potthoff
        Participant

        Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

        • August 26, 2014 at 11:57 am
        mike potthoff
        Participant

        Thank you for responses. Encouraging to hear.  Surgery on for me on thursday…thumb removal and biopsy.  Initial PET scan did not show any spread.  However, still removing and biopsying lymphnodes.

        • August 19, 2014 at 4:14 am
        Marianne quinn
        Participant

        Are they doing a sentinel node biopsy too?

        • August 18, 2014 at 12:17 pm
        mike potthoff
        Participant

        Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

        • August 18, 2014 at 12:17 pm
        mike potthoff
        Participant

        Yes there was initial trauma to the thumb.  I jammed the thumb on the side of the pool while swimming and buckled the nail so part of the nail seperated from the nailbed.  Thank you for the response.  Getting amputated next week.

        • August 17, 2014 at 2:42 am
        Marianne quinn
        Participant

        My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

        I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

        You will get through this. Marianne 

        • August 17, 2014 at 2:42 am
        Marianne quinn
        Participant

        My husband said to make sure you massage and use lotion on the amputated area, please keep me posted  regarding your treatment . The only definitive study about subungal melanoma was done in Australia  in 1991. Less than 1 percent of melanoma patients have subungul  melanoma. Some think subungal melanoma is a different disease than most melanoma.!my husband wanted to know if you have had trauma  on your thumb. Some docs think there is no relation, but the Australian study found an association. 

        I feel for you and your family.. My husband has his next scan on September 5. He feels great and we are going backpacking next week up to 12000 feet.. 

        You will get through this. Marianne 

      • August 15, 2014 at 4:04 am
      Marianne quinn
      Participant

      My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

      • August 15, 2014 at 4:04 am
      Marianne quinn
      Participant

      My husband had a partial amputation . Subungal melanoma is rare and really hard to get info on. Read my posts for the whole story. Almost a year since diagnosis now.?he is able to golf, ski, do woodworking . He had 1/2 his thumb removed and really has adapted well. He can tie his shoes. Safety pins are a problem. Keep in touch especially if you find a specialist. I do not know of any. Good luck

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