Starting treatment

The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Starting treatment

This topic has 6 replies, 6 voices, and was last updated 13 years, 8 months ago by Jan in OC.

Post

- August 4, 2010 at 11:20 pm
- Quote
JenC
Participant
Today we got the results that my husband is positive for the BRAV600E mutation and is so far eligible for the Roche trial. Tomorrow he goes in for scans and blood work then if he passes, he'll get randomized next week. This is such a relief since he has numerous subcutaneous mets in his throat, face and neck which is causing him to be in pretty severe pain. I am so happy that he can start getting some treatment – even if it is dacarbazine, since he has been feeling these tumors since April and we've been told they are inoperable in the beginning of July. Wait

Today we got the results that my husband is positive for the BRAV600E mutation and is so far eligible for the Roche trial. Tomorrow he goes in for scans and blood work then if he passes, he'll get randomized next week. This is such a relief since he has numerous subcutaneous mets in his throat, face and neck which is causing him to be in pretty severe pain. I am so happy that he can start getting some treatment – even if it is dacarbazine, since he has been feeling these tumors since April and we've been told they are inoperable in the beginning of July. Waiting is so hard! Please pray that his scans are good and that he can move forward! Thanks!

JenC

Viewing 4 reply threads

Replies

- - August 4, 2010 at 11:40 pm
  - Quote
  King
  Participant
  Jen,
  
  I will keep you both in my prayers for good scans and for the treatment arm that will be effective for him. Please keep us posted. Waiting is so difficult.
  
  Stay Strong
  King
  
  Stage IV 7/05 Liver mets
- - August 4, 2010 at 11:42 pm
  - Quote
  Sharon in Reno
  Participant
  Hey Jen,
  
  This is great, sending prayers his way for a successful outcome. love, Sharon in Reno, Stage IV
- - August 5, 2010 at 12:23 am
  - Quote
  JenM
  Participant
  Hi Jen,
  
  Will be praying for you and your husband. I can't even imagine waiting this long. Hang in there!
  
  All the best,
  
  JenM
- - August 5, 2010 at 12:26 am
  - Quote
  dian in spokane
  Participant
  Jen, I'm so glad that your husband is finally starting some treatment. The waiting really is some of the worst of it all, just getting something going helps the spirits!
  
  good luck,
  
  dian in spokane
  - August 5, 2010 at 8:23 am
    
    Quote
    Janet2
    Participant
    
    Hi Jen
    
    I am pleased to hear your husband is eligible for the Roche trial and hope his scans are good so he can start treatment.
    
    Janet
- - August 5, 2010 at 3:20 pm
  - Quote
  Jan in OC
  Participant
  I know the wait is crazy, but you are more than halfway there. Good luck to you.
  
  Jan

Viewing 4 reply threads

Tagged: cutaneous melanoma

You must be logged in to reply to this topic.

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.