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Started new trial – MEK and PI3K Inhibitor

Forums General Melanoma Community Started new trial – MEK and PI3K Inhibitor

  • Post
    Angela C
    Participant

      Hey everyone.

      Hey everyone.

      Just wanted to put an update out here that I started on a new trial this week. It's a MEK and PI3K inhibitor trial. The drugs are MEK162 and BMK120. I'm in the trial at Massachusetts General. Yesterday was my first day of the trial. I'm already experiencing some vision side effects, which is a little concerning, but the doctor said that my body will adjust to the medicine as I continue to take it and the vision should get better. I feel like I have some light sensitivity, but they said it's most likely fluid buildup behind my retina. Eye side effects are a well known issue with these drugs and I'm seeing an eye doctor ever one or two weeks.

      Does anyone out there have experience with a MEK and PI3K trial? I'm not sure that there have been a whole lot of people on these trials yet for Melanoma.

      ~Angela

    Viewing 14 reply threads
    • Replies
        Swanee
        Participant

          Hi Angela,

          Just popping up to say good luck with this trial.  It is so good to see a post from you and to let you know I think of you often and look for your posts for updates.  It's that crazy time of year and hard to keep up with it all.  Please continue to post with  your progress!  Much love and appreciation for every melanoma patient here.

          Merry Christmas!

          Swanee

          Swanee
          Participant

            Hi Angela,

            Just popping up to say good luck with this trial.  It is so good to see a post from you and to let you know I think of you often and look for your posts for updates.  It's that crazy time of year and hard to keep up with it all.  Please continue to post with  your progress!  Much love and appreciation for every melanoma patient here.

            Merry Christmas!

            Swanee

            Swanee
            Participant

              Hi Angela,

              Just popping up to say good luck with this trial.  It is so good to see a post from you and to let you know I think of you often and look for your posts for updates.  It's that crazy time of year and hard to keep up with it all.  Please continue to post with  your progress!  Much love and appreciation for every melanoma patient here.

              Merry Christmas!

              Swanee

              POW
              Participant

                You're the first person I know of on this trial. However, the preclinical studies were quite promising, so I'll be excited to hear how you fare. You luck to you and keep us posted!

                POW
                Participant

                  You're the first person I know of on this trial. However, the preclinical studies were quite promising, so I'll be excited to hear how you fare. You luck to you and keep us posted!

                  POW
                  Participant

                    You're the first person I know of on this trial. However, the preclinical studies were quite promising, so I'll be excited to hear how you fare. You luck to you and keep us posted!

                    aldakota22
                    Participant

                      Angela, May this trial be an answer for you.Prayers sent your way that all goes well Keep us posted as we all care for one another on this site. Beat the Beast.   Al

                      aldakota22
                      Participant

                        Angela, May this trial be an answer for you.Prayers sent your way that all goes well Keep us posted as we all care for one another on this site. Beat the Beast.   Al

                        aldakota22
                        Participant

                          Angela, May this trial be an answer for you.Prayers sent your way that all goes well Keep us posted as we all care for one another on this site. Beat the Beast.   Al

                          TSchulz
                          Participant

                            Angela, 

                            It is so good to hear from you.  I think of you everyday and am so happy you are in this trial.  I wish you a fast response!  

                            Good luck – Troy

                            TSchulz
                            Participant

                              Angela, 

                              It is so good to hear from you.  I think of you everyday and am so happy you are in this trial.  I wish you a fast response!  

                              Good luck – Troy

                              TSchulz
                              Participant

                                Angela, 

                                It is so good to hear from you.  I think of you everyday and am so happy you are in this trial.  I wish you a fast response!  

                                Good luck – Troy

                                TSchulz
                                Participant

                                  Not sure if you saw the recent post from NYKaren about once testing negative for BRAF and now getting retested and being positive.  I hadn't heard of this, maybe more doors can open? 

                                  Best, Troy

                                  TSchulz
                                  Participant

                                    Not sure if you saw the recent post from NYKaren about once testing negative for BRAF and now getting retested and being positive.  I hadn't heard of this, maybe more doors can open? 

                                    Best, Troy

                                    TSchulz
                                    Participant

                                      Not sure if you saw the recent post from NYKaren about once testing negative for BRAF and now getting retested and being positive.  I hadn't heard of this, maybe more doors can open? 

                                      Best, Troy

                                  Viewing 14 reply threads
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