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Staging and treatment options discussed today

Forums General Melanoma Community Staging and treatment options discussed today

  • Post
    Melanoma Mom
    Participant

    Today we travel to Dana-Farber to find out our 14 year old son's staging and treatment suggestions. It has been a long road since September 1 getting to this day. Praying for good news! Be sending good vibes at 1:45pm!

    Today we travel to Dana-Farber to find out our 14 year old son's staging and treatment suggestions. It has been a long road since September 1 getting to this day. Praying for good news! Be sending good vibes at 1:45pm!

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      Laurie from maine
      Participant

      hi

      strong prayers coming your way!!  Who are you seeing at Dana Farber.  I come down from maine and have seen both Dr Hodi – dana farber and Dr Lawrence MAss General both good  melanoma specialists.  Let us know what you find out.

      laurie from maine

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      Laurie from maine
      Participant

      hi

      strong prayers coming your way!!  Who are you seeing at Dana Farber.  I come down from maine and have seen both Dr Hodi – dana farber and Dr Lawrence MAss General both good  melanoma specialists.  Let us know what you find out.

      laurie from maine

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      simone
      Participant

      Good luck.  I hope you got a good report.  The waiting is the hardest part, as we all know.   Good luck. 

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      simone
      Participant

      Good luck.  I hope you got a good report.  The waiting is the hardest part, as we all know.   Good luck. 

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      bestday
      Participant

      Your story really hit me — of course we all worry deeply when a young person is hit with melanoma and I only hope your son's good strong physical health sends him sailing through this experience. I was diagnosed with melanoma about 16 months ago — what a shock that was. However, what hit me about your story is that my youngest daughter who is now 22, had a large odd shaped brownish wart at the bottom of her spine near her butt — she always hated it and at some point in her teens (long before my diagnosis), it was removed and I don't believe it was tested at a lab … she is petite and seems to have a weak immune system — for the first time, I'm now thinking back and wondering about that mole being melanoma! We can't go back and honesly, I had no idea about melanoma … until I was diagnosed. I'm so frustrated with the lack of education and awareness about melanoma. Young athletes are definitely at risk and maybe your son will be able to make a difference in educating mothers & kids and getting sunscreen and shade tents to soccer fields, playgrounds, etc. I hold you and your family in my heart and am hoping for the best possible results. Hang in there and keep us posted.

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      bestday
      Participant

      Your story really hit me — of course we all worry deeply when a young person is hit with melanoma and I only hope your son's good strong physical health sends him sailing through this experience. I was diagnosed with melanoma about 16 months ago — what a shock that was. However, what hit me about your story is that my youngest daughter who is now 22, had a large odd shaped brownish wart at the bottom of her spine near her butt — she always hated it and at some point in her teens (long before my diagnosis), it was removed and I don't believe it was tested at a lab … she is petite and seems to have a weak immune system — for the first time, I'm now thinking back and wondering about that mole being melanoma! We can't go back and honesly, I had no idea about melanoma … until I was diagnosed. I'm so frustrated with the lack of education and awareness about melanoma. Young athletes are definitely at risk and maybe your son will be able to make a difference in educating mothers & kids and getting sunscreen and shade tents to soccer fields, playgrounds, etc. I hold you and your family in my heart and am hoping for the best possible results. Hang in there and keep us posted.

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        Melanoma Mom
        Participant

        Nodes were clear! Happy dance! They are recommending Interferon for the year. I guess that is better than nothing, but wishing there was something with more of a "guarantee". But life doesn't offer those, does it?! 

        We met with Dr. Rodriguez-Galindo as our primary Pediatric Oncologist – he is amazing! and we will also soon meet with Dr. Hodi who has already reviewed this case. They had a large review of my son's case b/c it is so unusual and some of the big-wigs of Melanoma were reportedly there! Not exactly the way he should become famous. lol

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        Melanoma Mom
        Participant

        Nodes were clear! Happy dance! They are recommending Interferon for the year. I guess that is better than nothing, but wishing there was something with more of a "guarantee". But life doesn't offer those, does it?! 

        We met with Dr. Rodriguez-Galindo as our primary Pediatric Oncologist – he is amazing! and we will also soon meet with Dr. Hodi who has already reviewed this case. They had a large review of my son's case b/c it is so unusual and some of the big-wigs of Melanoma were reportedly there! Not exactly the way he should become famous. lol

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        Gwen in Maine
        Participant

        Excellent news! Good luck on the decision about interferon. I did it and it wasn't easy. Personally I'd hate the thought of my boys having to go through that but on the other hand, I'd want them to do anything they could to keep it from coming back. He could always try it and stop if the side effects were too bad for him.

        Gwen in Maine

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        Gwen in Maine
        Participant

        Excellent news! Good luck on the decision about interferon. I did it and it wasn't easy. Personally I'd hate the thought of my boys having to go through that but on the other hand, I'd want them to do anything they could to keep it from coming back. He could always try it and stop if the side effects were too bad for him.

        Gwen in Maine

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        jag
        Participant

        very happy that everything is clear.  It wouldn't hurt to go to clinicaltrials.gov He is young so I'm sure the interferon won't be too hard on him, and I don't know if there are that many trial open to teenagers (less than 18) .  If he has strong side effects of it, don't force him to stay on it.  Plenty of people have quit early and done ok.

        God Bless

        John

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        jag
        Participant

        very happy that everything is clear.  It wouldn't hurt to go to clinicaltrials.gov He is young so I'm sure the interferon won't be too hard on him, and I don't know if there are that many trial open to teenagers (less than 18) .  If he has strong side effects of it, don't force him to stay on it.  Plenty of people have quit early and done ok.

        God Bless

        John

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