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Stage IV – still NED – very thankful!
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Stage IV – still NED – very thankful!

› Forums › General Melanoma Community › Stage IV – still NED – very thankful!

  • Post
    • July 19, 2014 at 10:58 am
    Rocco
    Participant

      Wanted to share some hope for others.

      Scans last week revealed I'm still NED!  Now scanned every six months. Continue to be very thankful for all the support and hope I've received off this bulletin board over the years. 

      Hang in there!

      -Roco

      Diagnosed Stage IV  in 2005. NED thanks to MDX-010 (Ipi 10MG/KG) Compassionate Use trial in 2009, all the talented and compassionate doctors and staff at DFCI in Boston., and many, many hours of prayer.

       

    Viewing 17 reply threads
    • Replies
        • July 19, 2014 at 12:13 pm
        Happy_girl
        Participant

          Very happy for you! God is good and there is definitely power in prayer! 

          • July 19, 2014 at 12:13 pm
          Happy_girl
          Participant

            Very happy for you! God is good and there is definitely power in prayer! 

            • July 19, 2014 at 12:13 pm
            Happy_girl
            Participant

              Very happy for you! God is good and there is definitely power in prayer! 

                • July 19, 2014 at 3:05 pm
                King
                Participant

                  Rocco,

                  Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

                  (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

                  This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

                  Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

                  Stay Strong

                  King

                  Stage IV 7/05 Liver mets

                  • July 19, 2014 at 3:05 pm
                  King
                  Participant

                    Rocco,

                    Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

                    (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

                    This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

                    Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

                    Stay Strong

                    King

                    Stage IV 7/05 Liver mets

                    • July 19, 2014 at 3:05 pm
                    King
                    Participant

                      Rocco,

                      Congratulations!!!  I am so happy to read your post.  Wishing you a life time of NED.

                      (I have been NED at Stage IV for almost 6 years now.  Finally on the 6 month scan schedule)

                      This is proof that there are Stage IV's out there….living their life.  I am grateful for this board and all the wonderful people I have met and that have supported me on my journey.

                      Enjoy the New England summer….Hey, what is going on with those Sox? 🙁

                      Stay Strong

                      King

                      Stage IV 7/05 Liver mets

                    • July 19, 2014 at 9:40 pm
                    BetterAndBetter
                    Participant

                      Yay Roco!

                      • July 19, 2014 at 9:40 pm
                      BetterAndBetter
                      Participant

                        Yay Roco!

                        • July 19, 2014 at 9:40 pm
                        BetterAndBetter
                        Participant

                          Yay Roco!

                          • July 20, 2014 at 3:43 am
                          JerryfromFauq
                          Participant

                            Great to hear from you again.  ESPECIALLY with this news!

                             

                            • July 20, 2014 at 3:43 am
                            JerryfromFauq
                            Participant

                              Great to hear from you again.  ESPECIALLY with this news!

                               

                              • July 20, 2014 at 3:43 am
                              JerryfromFauq
                              Participant

                                Great to hear from you again.  ESPECIALLY with this news!

                                 

                                • July 20, 2014 at 6:34 pm
                                Bubbles
                                Participant

                                  Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

                                  • July 20, 2014 at 6:34 pm
                                  Bubbles
                                  Participant

                                    Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

                                    • July 20, 2014 at 6:34 pm
                                    Bubbles
                                    Participant

                                      Wonderful news, Roco!  Wonderful testament to ipi as well.  Thanks for sharing!  Celeste

                                      • July 21, 2014 at 3:15 am
                                      Swanee
                                      Participant

                                        Rocco,

                                        Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

                                        Besh wishes for continued good health, living life large and NED status…..keep posting!

                                        Swanee 

                                        • July 21, 2014 at 3:15 am
                                        Swanee
                                        Participant

                                          Rocco,

                                          Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

                                          Besh wishes for continued good health, living life large and NED status…..keep posting!

                                          Swanee 

                                          • July 21, 2014 at 3:15 am
                                          Swanee
                                          Participant

                                            Rocco,

                                            Wonderful good news,  thanks for sharing with all of us!  While we're all in the same battle, each journey can be so different than the next, each one so unique, with completely different responses to the many treatments we're offered/tried and so important that we keep posting the details of our journey.  

                                            Besh wishes for continued good health, living life large and NED status…..keep posting!

                                            Swanee 

                                            • July 28, 2014 at 9:49 pm
                                            Rebecca and Bob
                                            Participant

                                              Great to see, gives everyone hope. Congrats!!!!!

                                              Rebecca

                                              • July 28, 2014 at 9:49 pm
                                              Rebecca and Bob
                                              Participant

                                                Great to see, gives everyone hope. Congrats!!!!!

                                                Rebecca

                                                • July 28, 2014 at 9:49 pm
                                                Rebecca and Bob
                                                Participant

                                                  Great to see, gives everyone hope. Congrats!!!!!

                                                  Rebecca

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