Stage IV, Still NED – 3 years, 8 mos.
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Stage IV, Still NED – 3 years, 8 mos.

› Forums › General Melanoma Community › Stage IV, Still NED – 3 years, 8 mos.

  • Post
    • March 20, 2014 at 8:37 pm
    Kim K
    Participant

    Just had PET/CT, brain MRI.  Still all clear.  I am still haning onto the long term follow up study of IL-2 responders paper.  No recurrance after 30 months, no one in the study recurred.  I am now well past that mark.

    The next conversation is finding the sweet spot of close monitoring yet reducing my exposure to radiation from all these scans.  I have had at least 9 PET/CT and too many CT scans to count.  I don't want to start another cancer trying to stay free from this one.

    My docs will discuss that next seeing as so few of us make it this far.  In a way, it is a nice problem to have :).

    Wishing all well.

    VATS wedge resection & 23 bags if IL-2 in 2010.  I only had a small lung met and a smaller muscle met in my chest wall.

    Aloha,

    Kim

Viewing 20 reply threads
  • Replies
      • March 20, 2014 at 11:30 pm
      Fen
      Participant

      Wonderful news, Kim!  Thanks for posting.  

      • March 20, 2014 at 11:30 pm
      Fen
      Participant

      Wonderful news, Kim!  Thanks for posting.  

      • March 20, 2014 at 11:30 pm
      Fen
      Participant

      Wonderful news, Kim!  Thanks for posting.  

      • March 21, 2014 at 2:18 am
      jag
      Participant

      Great news Kim!

      John

      • March 21, 2014 at 2:18 am
      jag
      Participant

      Great news Kim!

      John

      • March 21, 2014 at 2:18 am
      jag
      Participant

      Great news Kim!

      John

        • March 21, 2014 at 11:54 am
        Carole K
        Participant

        You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

        Love and Light

        Carole

        • March 21, 2014 at 11:54 am
        Carole K
        Participant

        You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

        Love and Light

        Carole

        • March 21, 2014 at 11:54 am
        Carole K
        Participant

        You go Girl!!!! I can't wait to see you .  I am so excited.  I will call you later today.  I will try to stay up late.. lol   Big Hugs.

        Love and Light

        Carole

      • March 21, 2014 at 6:47 pm
      buffcody
      Participant

      Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

      • March 21, 2014 at 6:47 pm
      buffcody
      Participant

      Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

      • March 21, 2014 at 6:47 pm
      buffcody
      Participant

      Congratulations, Kim, and thanks for posting.  We all are encouraged by this good news!

      • March 22, 2014 at 12:05 am
      Kelly Smith
      Participant

      AMAZING!!! So happy for you.

      • March 22, 2014 at 12:05 am
      Kelly Smith
      Participant

      AMAZING!!! So happy for you.

      • March 22, 2014 at 12:05 am
      Kelly Smith
      Participant

      AMAZING!!! So happy for you.

      • March 22, 2014 at 12:20 am
      kab07011
      Participant

      AWESOME news!

      • March 22, 2014 at 12:20 am
      kab07011
      Participant

      AWESOME news!

      • March 22, 2014 at 12:20 am
      kab07011
      Participant

      AWESOME news!

      • March 22, 2014 at 12:51 am
      Jahendry12
      Participant

      So happy for you!  Excellent news. 

       

      • March 22, 2014 at 12:51 am
      Jahendry12
      Participant

      So happy for you!  Excellent news. 

       

      • March 22, 2014 at 12:51 am
      Jahendry12
      Participant

      So happy for you!  Excellent news. 

       

      • March 22, 2014 at 6:18 pm
      Bubbles
      Participant

      That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

      • March 22, 2014 at 6:18 pm
      Bubbles
      Participant

      That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

      • March 22, 2014 at 6:18 pm
      Bubbles
      Participant

      That's fabulous, Kim!!  Way to go.  Thanks for sharing! Yours, c

Viewing 20 reply threads
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