Stage IV – Scan Results & Treatment Plan
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Stage IV – Scan Results & Treatment Plan

› Forums › General Melanoma Community › Stage IV – Scan Results & Treatment Plan

  • This topic has 7 replies, 4 voices, and was last updated 6 years ago by kst.
  • Post
    • November 22, 2019 at 1:12 pm
    jennifer83
    Participant
    I’m at MD Anderson in Houston and found out yesterday that my melanoma has spread to my liver and lungs, but my brain in clear – so that’s good news. They’re still waiting on lab work to determine my BRAF status.

    I was given a handful of treatment options and ultimately decided to sign up for Phase III clinical trial of Opdivo and Bempeg (aka NKTR-214). I had posted yesterday about the doctor signing me up for an abdominal wall biopsy and now know that’s because they were hoping I’d say yes to the trial – the drug company needs a fresh tissue sample. Now it’s a bit of hurry up and wait for approval to start the trial – they’re targeting December 11 or 12 to start treatment if all goes well.

    Bubbles – you’ve posted a lot on NKTR-214 and I appreciate all the time you put into that. I’ve read a lot.

    I’m hoping I can continue working and living pretty normally during all of this. Thank you all for your support during this journey.

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  • Replies
      • November 22, 2019 at 9:38 pm
      kst
      Participant
      You will be in good hands with Dr. Diab and his NP Natalie. I have been under their care for 2.5 years now. Hopefully you will help make another treatment option available for all of us. Thanks..
      Susanne
        • November 25, 2019 at 9:05 pm
        jennifer83
        Participant
        Thanks for replying, Susanne! I feel that Dr. Diab has a very very kind soul. I’m feel very confident with him as my doctor. What treatments have you been undergoing? Are you local to Houston? We just moved here a few months ago.
        • November 25, 2019 at 11:54 pm
        kst
        Participant
        I am about 3.5 hours away near Tyler. The travel is a minor inconvenience for me.
        After resection surgeries and radiation I received Nivo from 10/17 to 03/18 until I had severe IRAE’s from the treatment. Treatment was stopped at that point. Everything clean since.
        Susanne
      • November 23, 2019 at 12:32 am
      Bubbles
      Participant
      Sorry for the scan results demonstrating mets to your liver and lungs and all that you are facing, Jennifer. Still, having a treatment plan (and I think yours is a good one) is a huge battle already won! I am glad that the NKTR-214 posts have been of help to you. Is your trial the one in which patients are randomized to either the combo or Opdivo as a single agent? If so, I hope you get the combo as those results are impressive. However, I think you still have a good prognosis should you end up on nivo alone. There are many of us who attained a good result with that treatment as well. Hang tough. Clinical trials are their own special sauce. But, ratties absolutely ROCK!!! Keep us posted. Yours, celeste
        • November 25, 2019 at 9:13 pm
        jennifer83
        Participant
        Thank you, Celeste! I love your Blog and your entire style/attitude. I am going to be a part of the Phase III trial (746 patients) where 50/50 randomized on Opdivo alone or Opdiovo + Bempeg (NKTR 214). I’m really hoping I get to do the the combo! My first infusion is scheduled for Dec 12. Either way, trying to keep positive. I still feel relatively well at this point, so I’m thankful for that! I had a biopsy for fresh tissue for the drug company last Friday and am a bit sore and bruised up from that. Really can’t complain, otherwise. Keeping positive.

        We just moved to the Houston area recently and finally got the keys to our new house last night. Going through this cancer thing is a lot easier when there’s some positive stuff going on, as well! Can’t wait to get home to my family and our new house today!

        Many thanks and love to all who are following. I’ll keep you updated.

      • November 24, 2019 at 2:35 am
      DoubleTT
      Participant
      Hello Jennifer
      Big hugs
      Kinda cool either way you are getting Opdivo. That’s fantastic! Are you Braf or Nras??? I ask as I was 3c ( I had no lymph nodes but mega satellites) then got an oglio met to my t12 vertebrae. But here in Canada they get you on adjuvant drugs like Opdivi right after surgery or stereostatic radiation therapy surgery! They blew my met up. I am Nras so really am interested in the trial you are doing and am cheering for you….you could quite possibly be helping me for my next challenge. So thank you Jennifer. You will do great. I hope you can re adjust your lifestyle to take are of you ! Hugs and cheers rm Toronto Canada tt Tracey
        • November 25, 2019 at 9:07 pm
        jennifer83
        Participant
        Thanks for your reply! I’m still waiting to find if I’m BRAF pos/neg. I should know soon. I’ll keep you posted! Hope you’re feeling well…
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