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stage IV now quasi NED

Forums General Melanoma Community stage IV now quasi NED

  • Post
    beatricefromPARIS
    Participant

      Hi guys,

      A bit of update 3,5 years down stage IV diagnosis

      8 months on ZEL (full dose in March April then half-dose since May)

      Everything almost gone in July PET

      Quasi NED November PET (one bowel lesion at 2.2 suv uptake considered not significant)

      ZEL treatment goes on 

      I'm happy but tired and not able to go back to normal life because of treatment fatigue

      …and in the back of my mind, the possible (accelerated?) recurrence if Zel stops working.

      Hi guys,

      A bit of update 3,5 years down stage IV diagnosis

      8 months on ZEL (full dose in March April then half-dose since May)

      Everything almost gone in July PET

      Quasi NED November PET (one bowel lesion at 2.2 suv uptake considered not significant)

      ZEL treatment goes on 

      I'm happy but tired and not able to go back to normal life because of treatment fatigue

      …and in the back of my mind, the possible (accelerated?) recurrence if Zel stops working.

    Viewing 2 reply threads
    • Replies
        DonW
        Participant

          Hi, Beatrice. You are the first "quasi NED" patient I've met:-)  Sounds like you are doing great, actually, and I hope you continue down this path towards beating this nasty disease. Keep us posted.

          DonW
          Participant

            Hi, Beatrice. You are the first "quasi NED" patient I've met:-)  Sounds like you are doing great, actually, and I hope you continue down this path towards beating this nasty disease. Keep us posted.

            DonW
            Participant

              Hi, Beatrice. You are the first "quasi NED" patient I've met:-)  Sounds like you are doing great, actually, and I hope you continue down this path towards beating this nasty disease. Keep us posted.

          Viewing 2 reply threads
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