Stage IV NED scan schudule
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Stage IV NED scan schudule

› Forums › General Melanoma Community › Stage IV NED scan schudule

  • Post
    • July 18, 2016 at 5:00 pm
    Randy437
    Participant

    I am now 6+ years NED after mets to brain, lungs and small intestine.  Both brain MRI and body CT + blood work were negative today.  So I'm moving to scans every 6 months from every 3/4 months.  Onc said one factor was that I've never "failed" a treatment – mets were surgically removed (brain met followed up with GammaKnife).  It seems there are no standard protocols for long term stage IV survivors – it's an individual decision between patient and doc.  At ten years, we'll revist (knock on wood).

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  • Replies
      • July 18, 2016 at 8:16 pm
      sister of patient
      Participant

      Way to go Randy!! May you always remain NED! Best thoughts always.

      Barb

      • July 18, 2016 at 8:16 pm
      sister of patient
      Participant

      Way to go Randy!! May you always remain NED! Best thoughts always.

      Barb

      • July 18, 2016 at 8:16 pm
      sister of patient
      Participant

      Way to go Randy!! May you always remain NED! Best thoughts always.

      Barb

      • July 18, 2016 at 8:36 pm
      youngann
      Participant

      Excellent news. Here's to NED forever!

        • July 19, 2016 at 1:01 am
        HopefulOne
        Participant

        Congratulations!! So happy to read your story. 

        • July 19, 2016 at 1:01 am
        HopefulOne
        Participant

        Congratulations!! So happy to read your story. 

        • July 19, 2016 at 1:01 am
        HopefulOne
        Participant

        Congratulations!! So happy to read your story. 

      • July 18, 2016 at 8:36 pm
      youngann
      Participant

      Excellent news. Here's to NED forever!

      • July 18, 2016 at 8:36 pm
      youngann
      Participant

      Excellent news. Here's to NED forever!

      • July 19, 2016 at 2:46 am
      jamieth29
      Participant
      That’s awesome Randy hope Ned for rest of your long life!
      • July 19, 2016 at 2:46 am
      jamieth29
      Participant
      That’s awesome Randy hope Ned for rest of your long life!
      • July 19, 2016 at 2:46 am
      jamieth29
      Participant
      That’s awesome Randy hope Ned for rest of your long life!
      • July 19, 2016 at 3:17 am
      JoshF
      Participant

      Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

      Josh

      • July 19, 2016 at 3:17 am
      JoshF
      Participant

      Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

      Josh

      • July 19, 2016 at 3:17 am
      JoshF
      Participant

      Heck yeah Randy! Not going to lie, I'm jealous but also thrilled for you. Always great to hear stories like this and see someone who beats this crap!! God bless you!!

      Josh

      • July 20, 2016 at 1:07 am
      sweetaugust
      Participant

      So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

      • July 20, 2016 at 1:07 am
      sweetaugust
      Participant

      So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

      • July 20, 2016 at 1:07 am
      sweetaugust
      Participant

      So happy for you Randy!  Congrats on doing so great?  Love hearing it!  All the best to you, Laurie

      • July 20, 2016 at 8:19 am
      Kim K
      Participant

      Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

      My follow up was as follows:

      Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

      • July 20, 2016 at 8:19 am
      Kim K
      Participant

      Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

      My follow up was as follows:

      Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

      • July 20, 2016 at 8:19 am
      Kim K
      Participant

      Best of luck.  I also just made 6 years NED from a lung and chest muscle met.  I was recently fired by both oncologists because I was sooooo boring.  Basically they said, call us if you need us or have any symptoms that concern you.

      My follow up was as follows:

      Post IL-2 scan = NED, follow up with PET/CT, brain MRI, chest CT 3 months later.  Repeat every 4 months x 3, then moved to every 6 months for the next 2 years which brings me up to now.  No more scans.  In my case though, I had very very slow creepy crawly disease.  The lung surgery and IL-2 took care of everything.

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