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Stage IV Brain, Pelvis, Adrenal, Lungs, Along Spine — Where is “best” melanoma specialist, and treatment alternatives

Forums General Melanoma Community Stage IV Brain, Pelvis, Adrenal, Lungs, Along Spine — Where is “best” melanoma specialist, and treatment alternatives

  • Post
    Janet Lee
    Participant

      You all know how devastated we feel right now. My beautiful, loving 63-year old husband has Stage IV Melanoma with a tumor in his brain, several in pelvic area, one on adrenal gland, several along spine, and some small lung nodules. My God, how could this be? He's always been so strong and so healthy!

      You all know how devastated we feel right now. My beautiful, loving 63-year old husband has Stage IV Melanoma with a tumor in his brain, several in pelvic area, one on adrenal gland, several along spine, and some small lung nodules. My God, how could this be? He's always been so strong and so healthy!

      We've been to Dana Farber and met with a melanoma specialist. But is she the best? Does she know everything that will help my husband? Should I go somewhere else for another opinion? Anyone know anything about the Sylvester cancer center affiliated with University of Miami for melanoma treatments?

      Radiation started Friday to pelvic area (he's in a lot of pain). Cyberknife will be performed on brain lesion maybe this coming week. Dana Farber neuro-oncologists agreed with this approach. Dana Farber melanoma doctor is suggesting Yervoy  in a week (if he has the right "markers?")??

      What else do we need to know? So much to learn, so much to think about. All I know if that I want more years with this wonderful man! Please help!

      Thankyou.

      Janet

    Viewing 2 reply threads
    • Replies
        meeshka6059
        Participant

          Hi Janet,

          So sorry to read your news. I'm in a different situation with my 82 year father, but there are some similarities. Just wanted to wish you luck in any path you chose.

          Sending peace and love,

          Michelle

          meeshka6059
          Participant

            Hi Janet,

            So sorry to read your news. I'm in a different situation with my 82 year father, but there are some similarities. Just wanted to wish you luck in any path you chose.

            Sending peace and love,

            Michelle

            meeshka6059
            Participant

              Hi Janet,

              So sorry to read your news. I'm in a different situation with my 82 year father, but there are some similarities. Just wanted to wish you luck in any path you chose.

              Sending peace and love,

              Michelle

          Viewing 2 reply threads
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