Stage 4 confirmed multiple areas
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Stage 4 confirmed multiple areas

› Forums › General Melanoma Community › Stage 4 confirmed multiple areas

  • Post
    • August 14, 2015 at 10:49 pm
    davekarrie
    Participant

    Well, it is no unfortunately official, my biopsy in my abdomen last week is positive for melanoma. So its in my lungs, abdomen and a C7 neck vertebra. I am most worried about the neck at this point.  We go back to mayo aug25, they are still testing for the gene mutations to determine treatment. Just so many questions, will they operate on any of the tumors?  The radioligist said the abdomen tumor is free floating, I am starting to get a bit of pain at times in my neck, don't know if thats from the met or I am just paranoid. I feel great otherwise, and am ready to fight this beast!! Much love to all #noonefightsalone!

Viewing 8 reply threads
  • Replies
      • August 14, 2015 at 11:50 pm
      jamieth29
      Participant
      Dave,
      Your 100% right…when it comes down to it all you can do is grit your teeth and take it head on!!!
        • August 15, 2015 at 12:05 am
        davekarrie
        Participant

        Yeah, that's where i am at now, I am past the crying and why me, it is the hand we are dealt and its time to get to work!  I will get back to NED, I have no doubt.

        • August 15, 2015 at 1:35 am
        stars
        Participant

        Sorry to hear your news, Dave. Just have to keep on keeping on, I guess. Harder with young children, but in another way so much to fight for. All the best,

        Stars

        • August 15, 2015 at 2:03 am
        davekarrie
        Participant

        Yeah, I do not plan on leaving my 4yr old boy or my wife, I will beat this beast and we will hopefully find a cure soon for everyone.

        • August 15, 2015 at 2:03 am
        davekarrie
        Participant

        Yeah, I do not plan on leaving my 4yr old boy or my wife, I will beat this beast and we will hopefully find a cure soon for everyone.

        • August 15, 2015 at 2:03 am
        davekarrie
        Participant

        Yeah, I do not plan on leaving my 4yr old boy or my wife, I will beat this beast and we will hopefully find a cure soon for everyone.

        • August 15, 2015 at 1:35 am
        stars
        Participant

        Sorry to hear your news, Dave. Just have to keep on keeping on, I guess. Harder with young children, but in another way so much to fight for. All the best,

        Stars

        • August 15, 2015 at 1:35 am
        stars
        Participant

        Sorry to hear your news, Dave. Just have to keep on keeping on, I guess. Harder with young children, but in another way so much to fight for. All the best,

        Stars

        • August 15, 2015 at 12:05 am
        davekarrie
        Participant

        Yeah, that's where i am at now, I am past the crying and why me, it is the hand we are dealt and its time to get to work!  I will get back to NED, I have no doubt.

        • August 15, 2015 at 12:05 am
        davekarrie
        Participant

        Yeah, that's where i am at now, I am past the crying and why me, it is the hand we are dealt and its time to get to work!  I will get back to NED, I have no doubt.

      • August 14, 2015 at 11:50 pm
      jamieth29
      Participant
      Dave,
      Your 100% right…when it comes down to it all you can do is grit your teeth and take it head on!!!
      • August 14, 2015 at 11:50 pm
      jamieth29
      Participant
      Dave,
      Your 100% right…when it comes down to it all you can do is grit your teeth and take it head on!!!
      • August 15, 2015 at 2:22 am
      BrianP
      Participant

      Attitude and determination is half the battle and you seem to have that down.  I was in your position two years ago with a 3 and 4 year old.  I now have a 5 and 6 year old and life is good.  Still not NED but thanks to nivolumab my life is almost back to normal and I plan on keeping it that way for a long time.  Good luck with your upcoming treatment options.

      Brian 

      • August 15, 2015 at 2:22 am
      BrianP
      Participant

      Attitude and determination is half the battle and you seem to have that down.  I was in your position two years ago with a 3 and 4 year old.  I now have a 5 and 6 year old and life is good.  Still not NED but thanks to nivolumab my life is almost back to normal and I plan on keeping it that way for a long time.  Good luck with your upcoming treatment options.

      Brian 

      • August 15, 2015 at 2:22 am
      BrianP
      Participant

      Attitude and determination is half the battle and you seem to have that down.  I was in your position two years ago with a 3 and 4 year old.  I now have a 5 and 6 year old and life is good.  Still not NED but thanks to nivolumab my life is almost back to normal and I plan on keeping it that way for a long time.  Good luck with your upcoming treatment options.

      Brian 

      • August 15, 2015 at 4:18 pm
      Momofjake
      Participant

      It's not an easy day when you find out what you are up against. My 18yr old son has many areas of his spine w mets. He recently had the worst one radiated. Just one high dose. It was painful for a few days, but he is okay. we will see how it looks in a few weeks. 

      All our best in this fight! You are definitely not alone!! Love and prayers!

      Kerri–mom of Jake

        • August 15, 2015 at 7:23 pm
        jamieth29
        Participant
        Kerri-mom of Jake
        Just want you to know everyone here is thinking of your son. Its bad enough to deal with this disease but i would shoulder the load forever if it was me or one of my children…so sorry you have to go through this but just keep moving forward its all you can do.
        • August 24, 2015 at 4:54 am
        Momofjake
        Participant

        Jamie,

        thank you for knowing what to say. It's one of the things I love the most about this site. It's very comfortable and like no where else! 

        Jake is feeling good!! He seems to have totally bounced back from the radiation. Tomorrow we take him to college. I truly did not think he would be here for this! Life feels almost normal for the first time in a year! He has dr appt and keytruda #4 this Wednesday. I guess they will scan soon. 

        Everyday from July on seems like a big gift!

        life is good!

        thanks again,

        kerri

        • August 24, 2015 at 4:54 am
        Momofjake
        Participant

        Jamie,

        thank you for knowing what to say. It's one of the things I love the most about this site. It's very comfortable and like no where else! 

        Jake is feeling good!! He seems to have totally bounced back from the radiation. Tomorrow we take him to college. I truly did not think he would be here for this! Life feels almost normal for the first time in a year! He has dr appt and keytruda #4 this Wednesday. I guess they will scan soon. 

        Everyday from July on seems like a big gift!

        life is good!

        thanks again,

        kerri

        • August 24, 2015 at 4:54 am
        Momofjake
        Participant

        Jamie,

        thank you for knowing what to say. It's one of the things I love the most about this site. It's very comfortable and like no where else! 

        Jake is feeling good!! He seems to have totally bounced back from the radiation. Tomorrow we take him to college. I truly did not think he would be here for this! Life feels almost normal for the first time in a year! He has dr appt and keytruda #4 this Wednesday. I guess they will scan soon. 

        Everyday from July on seems like a big gift!

        life is good!

        thanks again,

        kerri

        • August 15, 2015 at 7:23 pm
        jamieth29
        Participant
        Kerri-mom of Jake
        Just want you to know everyone here is thinking of your son. Its bad enough to deal with this disease but i would shoulder the load forever if it was me or one of my children…so sorry you have to go through this but just keep moving forward its all you can do.
        • August 15, 2015 at 7:23 pm
        jamieth29
        Participant
        Kerri-mom of Jake
        Just want you to know everyone here is thinking of your son. Its bad enough to deal with this disease but i would shoulder the load forever if it was me or one of my children…so sorry you have to go through this but just keep moving forward its all you can do.
      • August 15, 2015 at 4:18 pm
      Momofjake
      Participant

      It's not an easy day when you find out what you are up against. My 18yr old son has many areas of his spine w mets. He recently had the worst one radiated. Just one high dose. It was painful for a few days, but he is okay. we will see how it looks in a few weeks. 

      All our best in this fight! You are definitely not alone!! Love and prayers!

      Kerri–mom of Jake

      • August 15, 2015 at 4:18 pm
      Momofjake
      Participant

      It's not an easy day when you find out what you are up against. My 18yr old son has many areas of his spine w mets. He recently had the worst one radiated. Just one high dose. It was painful for a few days, but he is okay. we will see how it looks in a few weeks. 

      All our best in this fight! You are definitely not alone!! Love and prayers!

      Kerri–mom of Jake

Viewing 8 reply threads
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