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Stage 2C (yay but what next) trial?
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Stage 2C (yay but what next) trial?

› Forums › General Melanoma Community › Stage 2C (yay but what next) trial?

  • Post
    • August 25, 2016 at 1:49 am
    Joycem
    Participant

      3 weeks after WLE and SNB for deep nodular melanoma on upper arm, (non pigmented, skin colored round bump, had it for years, undiagnosed)  I am feeling very lucky surprised and thankful that my lymph nodes were clear, but still nervous about what's next…

      Youngest son starting senior year, Two 90+ family members with dementia who rely on me, 2 older kid$ in college make me hesitant to start any treatments that would make me unable to keep up with my responsibilities, or lose income by missing work (part time so no sick pay or vacation) . 

      Appt. with melanoma specialist (Henry Koon, Cleveland UH) is next week. 

      Not feeling interferon. Leaning toward watch and wait. I have always been an "if it ain't broke don't fix it" type, but that kinda didn't work out that well with regards to my bump.

      https://clinicaltrials.gov/show/NCT02696356 looks interesting but so much I don't understand. Is it appropriate to ask specialist about this? Not even sure what questions I should ask. Concern that it is phase 1 and a Japanese company with only one other product in development. 

      Blessings and thanks to all of you wonderful knowledge sharers and encouragers who post here. So helpful. Praying for you as well. 

      Joyce

       

    Viewing 2 reply threads
    • Replies
        • August 25, 2016 at 2:20 am
        ed williams
        Participant

          Hi Joyce, you might enjoy Dr. Weber talking about Melanoma, he is one of the leading experts. In the question and answer period around the 47 min mark he talks about the topic in a general way that you are interested in. Best Wishes!!!Ed https://www.youtube.com/watch?v=3hlGq-3F1uQ

            • August 25, 2016 at 3:07 am
            Joycem
            Participant

              Thanks Ed, I will watch!

              best wishes!

              joyce

              • August 25, 2016 at 3:07 am
              Joycem
              Participant

                Thanks Ed, I will watch!

                best wishes!

                joyce

                • August 25, 2016 at 3:07 am
                Joycem
                Participant

                  Thanks Ed, I will watch!

                  best wishes!

                  joyce

                • August 25, 2016 at 2:20 am
                ed williams
                Participant

                  Hi Joyce, you might enjoy Dr. Weber talking about Melanoma, he is one of the leading experts. In the question and answer period around the 47 min mark he talks about the topic in a general way that you are interested in. Best Wishes!!!Ed https://www.youtube.com/watch?v=3hlGq-3F1uQ

                  • August 25, 2016 at 2:20 am
                  ed williams
                  Participant

                    Hi Joyce, you might enjoy Dr. Weber talking about Melanoma, he is one of the leading experts. In the question and answer period around the 47 min mark he talks about the topic in a general way that you are interested in. Best Wishes!!!Ed https://www.youtube.com/watch?v=3hlGq-3F1uQ

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