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Hi, I have been looking at this forum since last year and searching through answers when my mom was first diagnosed with mucosal vaginal melanoma with mets to lymph node, she started in feb 2019 with nivo and her progress was great , only milk side effects of fatigue, she always had perfect blood work and never felt sick, 3 months PET were looking good and the plan was to stop nivo in Aug,
Her orginal sites looks all clear but now pet on 8/12 shows 2 spots on her liver
1. New, peripherally enhancing segment VII hepatic lesion: 1.7 x 1.4 cm (series 6 image 162) with maximum SUV of 11.1, previously not visualized.
2. 1.3 x 1.1 cm hepatic segment 8 (image 174, series 6) segment VIII with peripheral enhancement, though without clear FDG uptake above background
Doctor at UCSF wants to do another biopsy of these to see if these are blood clots or infection or is it melanoma in which case the plan will be to give a combo ipi/nivo for another 3 months.
I am hoping this is not , but has anyone experienced something similar ? like blood clot, cyst or infection shown up on liver ?
I was hoping for a clean scan this time as she was improving since last six months.
Hi SKS2019, im Mike nice to meet you, im so sorry for the newest “scare” in your moms recovery, as youll read here at MRF, it can always be something or other, a curve ball thrown after an NED determination or a remission! cancer sucks! I do know this SKS, Immunal, Chemo & Radiation therapies can cause Liver issues, remember, our livers are the bodies “Filter” for EVERYTHING consumed! Bile/enzymes are produced to break down medications, food, waste etc and sometimes chemicals are the hardest on the liver, clots like you mentioned can occure, havnt heard of “cyst’s” though, but im NOT at all a “brainiac” with all this, more then half of it goes way over my head! Lets hope its just Clots or grouped enzymes that show up in scans as a mets! Keep us posted!! Prayers to my MRF folks nightly!
Thanks Mike and I have been following your journey as well. I do pray for you everytime I read your posts. Also an additional pointer for mom is that her Bilirubin just doubled from 0.5 t0 1.0 , still below the normal of 0.5- 1.3 but its never been like this before.
Thank you SKS2019!! Were one big Family here, you all are my support system and iv dedicated my life now to MRF, there is nothing like MRF and its people i pray nightly for everyone! Keep us posted ok?
I had it progress to my liver, we thought in two spots. One of them was melanoma, but the other was some other kind of inflammation and was not. After having two+ years dealing with this mess, I’d just say the only thing you can be sure of is what you know. And there’s no telling which way that might change in the future. It’s best to just wait for the tests so you know for sure.
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