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Sometimes Things Just Don’t Alwyas Work Out

Forums General Melanoma Community Sometimes Things Just Don’t Alwyas Work Out

  • Post
    Charlie S
    Participant

      …..but sometimes they do..

      Remember that.

      Cheers,

      Charlie S

      …..but sometimes they do..

      Remember that.

      Cheers,

      Charlie S

    Viewing 8 reply threads
    • Replies
        JoshF
        Participant
          Charlie-

          Glad I have you to remind me if that. You’re awesome!

          Josh

          JoshF
          Participant
            Charlie-

            Glad I have you to remind me if that. You’re awesome!

            Josh

              Gene_S
              Participant

                And that Charlie is a complete Ass hole!

                Gene_S
                Participant

                  And that Charlie is a complete Ass hole!

                  Gene_S
                  Participant

                    And that Charlie is a complete Ass hole!

                    jcmp
                    Participant

                      I disagree.  Straight shooter is more like it.

                      jcmp
                      Participant

                        I disagree.  Straight shooter is more like it.

                        jcmp
                        Participant

                          I disagree.  Straight shooter is more like it.

                          Charlie S
                          Participant

                            That would be Mister A-Hole to you if you don't mind.

                            Rather than your knee jerk reaction, maybe it would be worth thinking that many times the first treatment option does not work out (as is often the case), the first trial option does not always work out (which is often the case) …………on and on and on.  

                            The point is, with melanoma, things do NOT always work out as expected……….which is why each of us must keep pushing forward and trying.  With melanoma, it is not a point of failure when any one approach does not work out; yet we must all keep working the problem……………even when things don't always work out.

                            Get it? 

                            Cheers,

                            Charlie S

                            Charlie S
                            Participant

                              That would be Mister A-Hole to you if you don't mind.

                              Rather than your knee jerk reaction, maybe it would be worth thinking that many times the first treatment option does not work out (as is often the case), the first trial option does not always work out (which is often the case) …………on and on and on.  

                              The point is, with melanoma, things do NOT always work out as expected……….which is why each of us must keep pushing forward and trying.  With melanoma, it is not a point of failure when any one approach does not work out; yet we must all keep working the problem……………even when things don't always work out.

                              Get it? 

                              Cheers,

                              Charlie S

                              Charlie S
                              Participant

                                That would be Mister A-Hole to you if you don't mind.

                                Rather than your knee jerk reaction, maybe it would be worth thinking that many times the first treatment option does not work out (as is often the case), the first trial option does not always work out (which is often the case) …………on and on and on.  

                                The point is, with melanoma, things do NOT always work out as expected……….which is why each of us must keep pushing forward and trying.  With melanoma, it is not a point of failure when any one approach does not work out; yet we must all keep working the problem……………even when things don't always work out.

                                Get it? 

                                Cheers,

                                Charlie S

                              JoshF
                              Participant
                                Charlie-

                                Glad I have you to remind me if that. You’re awesome!

                                Josh

                                randallgford
                                Participant

                                  Since you have been around so long, let me ask you – if someone starts

                                  with an extremely high tumor load (both lungs, liver, brain, abdomen, spine) can

                                  he realistically expect to be one of the lucky ones? My husband has

                                  the best attitude and I can tell you he really believes he will respond

                                  to treatment and survive. I know this man and I know he isn't "putting

                                  on a front" etc.  He had WBR and 2 spine tumors zapped SRS, and is now

                                  responding to Zelboraf (only 4 weeks, but nodes are shrinking and blood

                                  work is improving). When and if stable, Doc is looking for Anti PD1 trial.

                                  I his wife, who love him more than words can express, try to be hopeful

                                  but am more of a realist. I know you will give it to me straight

                                  Charlie, so any comments?? Thanks. He is 58 and was otherwise

                                  the healthiest person I know.

                                  randallgford
                                  Participant

                                    Since you have been around so long, let me ask you – if someone starts

                                    with an extremely high tumor load (both lungs, liver, brain, abdomen, spine) can

                                    he realistically expect to be one of the lucky ones? My husband has

                                    the best attitude and I can tell you he really believes he will respond

                                    to treatment and survive. I know this man and I know he isn't "putting

                                    on a front" etc.  He had WBR and 2 spine tumors zapped SRS, and is now

                                    responding to Zelboraf (only 4 weeks, but nodes are shrinking and blood

                                    work is improving). When and if stable, Doc is looking for Anti PD1 trial.

                                    I his wife, who love him more than words can express, try to be hopeful

                                    but am more of a realist. I know you will give it to me straight

                                    Charlie, so any comments?? Thanks. He is 58 and was otherwise

                                    the healthiest person I know.

                                    randallgford
                                    Participant

                                      Since you have been around so long, let me ask you – if someone starts

                                      with an extremely high tumor load (both lungs, liver, brain, abdomen, spine) can

                                      he realistically expect to be one of the lucky ones? My husband has

                                      the best attitude and I can tell you he really believes he will respond

                                      to treatment and survive. I know this man and I know he isn't "putting

                                      on a front" etc.  He had WBR and 2 spine tumors zapped SRS, and is now

                                      responding to Zelboraf (only 4 weeks, but nodes are shrinking and blood

                                      work is improving). When and if stable, Doc is looking for Anti PD1 trial.

                                      I his wife, who love him more than words can express, try to be hopeful

                                      but am more of a realist. I know you will give it to me straight

                                      Charlie, so any comments?? Thanks. He is 58 and was otherwise

                                      the healthiest person I know.

                                        POW
                                        Participant

                                          Vicki, I'm sure you know the answer to your question. Is it possible that your husband will survive long-term, maybe forever? Yes, of course. There are people who pull through against seemingly impossible odds. And with new treatments being developed all the time, the odds for all of us are slowly getting better. Your husband will definitely survive longer and have a better quality of life with today's treatments than he would have 2 or 3 years ago.

                                          But the more important question is, "What will you do with the extra time you do get?"

                                          When my brother was first diagnosed, he was already stage IV with widely disseminated tumors including brain mets. He was given 2-3 months to live and told to contact hospice. Boy! Was THAT a kick in the stomach! But with WBR, SRS, and Zelboraf he actually did quite well for many months. The problem (in my opinion) was that he put his life on "hold" until he was all cured. He did not attempt to work. He refused to go to his old social haunts or allow friends to come visit him because he didn't feel like summoning up the energy. He refused to eat right and exercise to keep his strength up and boost his immune system. He just waited for the pills to work. He just sat around the house watching television and waiting for the tumors to be gone and for him to get his old energy back. Then one day he learned that his melanoma had become resistant to Zelboraf and that was the beginning of the end.

                                           So whether your husband responds for 6 months or 6 years, my advice would be to make the most of every day. Plan to take a nice vacation– if when the time comes to go on the vacation he is not feeling up to it, so be it. Cancel your plans and lose the money and don't regret it. But don't put off making vacation plans until he's "cured" or until after the next set of scans or until until he doesn't have to deal with uncomfortable side effects any more. Same with everything else– encourage him to get out and do everything and anything either of you wants to do. Don't wait. If he ends up being a long-term survivor, what a heck of a fun life you will have! And if he doesn't end up being a long-term survivor, you will have made the most of your time together and you will have no regrets on that score. 

                                          POW
                                          Participant

                                            Vicki, I'm sure you know the answer to your question. Is it possible that your husband will survive long-term, maybe forever? Yes, of course. There are people who pull through against seemingly impossible odds. And with new treatments being developed all the time, the odds for all of us are slowly getting better. Your husband will definitely survive longer and have a better quality of life with today's treatments than he would have 2 or 3 years ago.

                                            But the more important question is, "What will you do with the extra time you do get?"

                                            When my brother was first diagnosed, he was already stage IV with widely disseminated tumors including brain mets. He was given 2-3 months to live and told to contact hospice. Boy! Was THAT a kick in the stomach! But with WBR, SRS, and Zelboraf he actually did quite well for many months. The problem (in my opinion) was that he put his life on "hold" until he was all cured. He did not attempt to work. He refused to go to his old social haunts or allow friends to come visit him because he didn't feel like summoning up the energy. He refused to eat right and exercise to keep his strength up and boost his immune system. He just waited for the pills to work. He just sat around the house watching television and waiting for the tumors to be gone and for him to get his old energy back. Then one day he learned that his melanoma had become resistant to Zelboraf and that was the beginning of the end.

                                             So whether your husband responds for 6 months or 6 years, my advice would be to make the most of every day. Plan to take a nice vacation– if when the time comes to go on the vacation he is not feeling up to it, so be it. Cancel your plans and lose the money and don't regret it. But don't put off making vacation plans until he's "cured" or until after the next set of scans or until until he doesn't have to deal with uncomfortable side effects any more. Same with everything else– encourage him to get out and do everything and anything either of you wants to do. Don't wait. If he ends up being a long-term survivor, what a heck of a fun life you will have! And if he doesn't end up being a long-term survivor, you will have made the most of your time together and you will have no regrets on that score. 

                                            POW
                                            Participant

                                              Vicki, I'm sure you know the answer to your question. Is it possible that your husband will survive long-term, maybe forever? Yes, of course. There are people who pull through against seemingly impossible odds. And with new treatments being developed all the time, the odds for all of us are slowly getting better. Your husband will definitely survive longer and have a better quality of life with today's treatments than he would have 2 or 3 years ago.

                                              But the more important question is, "What will you do with the extra time you do get?"

                                              When my brother was first diagnosed, he was already stage IV with widely disseminated tumors including brain mets. He was given 2-3 months to live and told to contact hospice. Boy! Was THAT a kick in the stomach! But with WBR, SRS, and Zelboraf he actually did quite well for many months. The problem (in my opinion) was that he put his life on "hold" until he was all cured. He did not attempt to work. He refused to go to his old social haunts or allow friends to come visit him because he didn't feel like summoning up the energy. He refused to eat right and exercise to keep his strength up and boost his immune system. He just waited for the pills to work. He just sat around the house watching television and waiting for the tumors to be gone and for him to get his old energy back. Then one day he learned that his melanoma had become resistant to Zelboraf and that was the beginning of the end.

                                               So whether your husband responds for 6 months or 6 years, my advice would be to make the most of every day. Plan to take a nice vacation– if when the time comes to go on the vacation he is not feeling up to it, so be it. Cancel your plans and lose the money and don't regret it. But don't put off making vacation plans until he's "cured" or until after the next set of scans or until until he doesn't have to deal with uncomfortable side effects any more. Same with everything else– encourage him to get out and do everything and anything either of you wants to do. Don't wait. If he ends up being a long-term survivor, what a heck of a fun life you will have! And if he doesn't end up being a long-term survivor, you will have made the most of your time together and you will have no regrets on that score. 

                                            Brendan
                                            Participant

                                              Charlie,

                                              Thanks for the reminder (as I watch my hair falling out from SRS, which obviuosly means it's working . . . ).

                                              Brendan

                                              Brendan
                                              Participant

                                                Charlie,

                                                Thanks for the reminder (as I watch my hair falling out from SRS, which obviuosly means it's working . . . ).

                                                Brendan

                                                Brendan
                                                Participant

                                                  Charlie,

                                                  Thanks for the reminder (as I watch my hair falling out from SRS, which obviuosly means it's working . . . ).

                                                  Brendan

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