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Someone with recurrence in pelvic lymph?

Forums General Melanoma Community Someone with recurrence in pelvic lymph?

  • Post
    gaby
    Participant

       

      My husband was diagnosed in 2012 stage3a melanoma , because he had micrometastasis in the sentinel node , the rest (12)  were clean. He had in 2012, 38 years old. He started in October 2012 with high doses of pegylated interferon for two months and after that continuous average dose to date. He was positive despite the side effects of pegylated interferon and was determined to complete the two years of treatment. He had from the diagnostic CT every 6 months thank God for all normal except when some nodes increased in size. So the oncologist  decided to make a pet. Yesterday I got the result of my husband's pet. The result is very bad, there are many hot spots in the pelvis iliac chains.  Internal organs are clean. I am very distressed.  As can be? Today the oncologist  will be analyzing the pet with other doctors  and tomorrow we have an appointment with the oncologist. I'm sure the melanoma returned to the nodes of the pelvis, then what are the options? remove? drugs? someone had that experience and then was  NED?

      thanks for your words.

      Gaby

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    • Replies
        Janet Lee
        Participant

          Hi Gaby,

          Not sure I can be of much help, but my husband, Stage IV January 2013 out of nowhere, has had one issue after another. This past September, his doctor pronounced him a responder to Ipi, with most mets holding steady or shrinking, and brain mets stable after SRS. However, right after that, he began with terrible pain in his left groin area and had surgery in October to remove a tumor from his inguinal canal. Then, 2 1/2 months after that surgery, a lymph node in the same area had doubled in size. Inoperable, so he started radiation for not one, but two pesky mets. During 16 treatments, additional met was found, leading to more radiation. He is still in a lot of pain, even though the radiation was deemed to have great chance of success since he has been treated with and responding to Ipi. For some reason, this area is a real problem. We are going to take a 2-3 week break, then start looking for Anti-PD1 trials.

          Please keep me in mind if you learn anything about melanoma in this particular area, and I will do the same.

          Peace, and best of luck.

          Janet Lee

          Janet Lee
          Participant

            Hi Gaby,

            Not sure I can be of much help, but my husband, Stage IV January 2013 out of nowhere, has had one issue after another. This past September, his doctor pronounced him a responder to Ipi, with most mets holding steady or shrinking, and brain mets stable after SRS. However, right after that, he began with terrible pain in his left groin area and had surgery in October to remove a tumor from his inguinal canal. Then, 2 1/2 months after that surgery, a lymph node in the same area had doubled in size. Inoperable, so he started radiation for not one, but two pesky mets. During 16 treatments, additional met was found, leading to more radiation. He is still in a lot of pain, even though the radiation was deemed to have great chance of success since he has been treated with and responding to Ipi. For some reason, this area is a real problem. We are going to take a 2-3 week break, then start looking for Anti-PD1 trials.

            Please keep me in mind if you learn anything about melanoma in this particular area, and I will do the same.

            Peace, and best of luck.

            Janet Lee

            Janet Lee
            Participant

              Hi Gaby,

              Not sure I can be of much help, but my husband, Stage IV January 2013 out of nowhere, has had one issue after another. This past September, his doctor pronounced him a responder to Ipi, with most mets holding steady or shrinking, and brain mets stable after SRS. However, right after that, he began with terrible pain in his left groin area and had surgery in October to remove a tumor from his inguinal canal. Then, 2 1/2 months after that surgery, a lymph node in the same area had doubled in size. Inoperable, so he started radiation for not one, but two pesky mets. During 16 treatments, additional met was found, leading to more radiation. He is still in a lot of pain, even though the radiation was deemed to have great chance of success since he has been treated with and responding to Ipi. For some reason, this area is a real problem. We are going to take a 2-3 week break, then start looking for Anti-PD1 trials.

              Please keep me in mind if you learn anything about melanoma in this particular area, and I will do the same.

              Peace, and best of luck.

              Janet Lee

          Viewing 2 reply threads
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