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Some Good News
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Some Good News

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  • Post
    • June 29, 2011 at 1:53 am
    s Mom
    Participant

      We got some good news – Jeff is NED!!  PET and CT – CLEAR!!  Brain MRI – CLEAR!!!

      High dose Interferon is done – YEAH!!  It was tough, but he did it!!

      He just finished radiation and suffered some awful side effects (sore throat, thrush and blisters), but he is on the mend.

      We got some good news – Jeff is NED!!  PET and CT – CLEAR!!  Brain MRI – CLEAR!!!

      High dose Interferon is done – YEAH!!  It was tough, but he did it!!

      He just finished radiation and suffered some awful side effects (sore throat, thrush and blisters), but he is on the mend.

      He's going to try to do the low-dose Interefon regime…not sure if he'll continue because the side effects have been pretty awful (fevers of 103 and all night chills and rigors).  He's going to try, though.  I tell you, such bravery and courage in the face of this – he's an amazing young man (and I'm not just saying that because he is my kid)!! 

      If he can't continue the low-dose IF, he'll try Leukine (Mayo's suggestion).

      Right now we feel so blessed – he is NED!!!

      I read this forum every day and pray constantly for all the warriors out there.

      Jeff's MOM

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    • Replies
        • June 29, 2011 at 2:32 am
        lhaley
        Participant

          Glad to hear that Jeff's scans were so good!   Take the time to listen to Dr. Kirkwood's interview below on the post from Jim B.  He talks about the better results that have been found in trials with the full year of interfuron.  I hope Jeff is able to get through it.

          Keep us posted!

          Linda

          Stage IV  since 06

          • June 29, 2011 at 2:32 am
          lhaley
          Participant

            Glad to hear that Jeff's scans were so good!   Take the time to listen to Dr. Kirkwood's interview below on the post from Jim B.  He talks about the better results that have been found in trials with the full year of interfuron.  I hope Jeff is able to get through it.

            Keep us posted!

            Linda

            Stage IV  since 06

            • June 29, 2011 at 1:32 pm
            Carol Taylor
            Participant

              Thanks Mom for sharing your Hallelujah moment! Happy dancing with Jeff and your entire family and prayers for ned to stay along time and that he does great on Interferon.

              Lord, in Your mercy, we thank You for all these blessings this family is experiencing and pray for continued blessings. Thank You. Amen.

              Grace and peace,

              Carol

              • June 29, 2011 at 1:32 pm
              Carol Taylor
              Participant

                Thanks Mom for sharing your Hallelujah moment! Happy dancing with Jeff and your entire family and prayers for ned to stay along time and that he does great on Interferon.

                Lord, in Your mercy, we thank You for all these blessings this family is experiencing and pray for continued blessings. Thank You. Amen.

                Grace and peace,

                Carol

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