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Social Security Disability – has anyone lost it after 4 years?

Forums General Melanoma Community Social Security Disability – has anyone lost it after 4 years?

  • Post
    JackieDoss
    Participant

    Hi gang. I've been on Social Security Disability for about 5 years due to melanoma. A stage III diagnosis is an automatic yes, and I was Stage IV when I applied. Anyway… I have THANKFULLY been NED for 4 and a half years, and have simply been living my life without the stress of having to hold down a job. Hubby makes a good income, and my disability helps us pay the bills.

    Hi gang. I've been on Social Security Disability for about 5 years due to melanoma. A stage III diagnosis is an automatic yes, and I was Stage IV when I applied. Anyway… I have THANKFULLY been NED for 4 and a half years, and have simply been living my life without the stress of having to hold down a job. Hubby makes a good income, and my disability helps us pay the bills.

    Well, SS sent me a re-evaluation form to decide if I still need to be on disability. So I'm a bit afraid that they will determine that I'm no longer disabled, even though I'm still considered a stage-IV patient. (I also have lymphedema, which lately has been more of a hindrance than the melanoma has).

    If you or someone you know was on SSD for melanoma, and lost it… would you let me know? OR if you've been re-evaluated, and they let you stay on it… please also respond. It would help with my nail-biting!

    Love to you all!

    Jackie Doss, Stage IV NED… Dallas, TX

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  • Replies

      Congratulations on your NED status!  Keep going.

      I have just been put on SS disability myself.  Could you let me know the outcome when you learn the decision?  I have been wondering the same thing. 

      Shelly in Switzerland stage IV

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      Congratulations on your NED status!  Keep going.

      I have just been put on SS disability myself.  Could you let me know the outcome when you learn the decision?  I have been wondering the same thing. 

      Shelly in Switzerland stage IV

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      NancyGM
      Participant

      Hi Jackie, I am in the appeal process for 5 months now. I have been stage IV for 4 years and for 3 years of that I have been NED .  I was sent the redetermination application after 3 years on disability and was turned down. Feel free to e-mail me and I will tell you more about this.

      The disability redetermination person got my Oncologist to approve moving up the date of my yearly PET scan ( to next week) so that at least I will have that covered by medicaid/medicare this month if he ends up turning me down.

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      NancyGM
      Participant

      Hi Jackie, I am in the appeal process for 5 months now. I have been stage IV for 4 years and for 3 years of that I have been NED .  I was sent the redetermination application after 3 years on disability and was turned down. Feel free to e-mail me and I will tell you more about this.

      The disability redetermination person got my Oncologist to approve moving up the date of my yearly PET scan ( to next week) so that at least I will have that covered by medicaid/medicare this month if he ends up turning me down.

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      KRob
      Participant

      Hi, Jackie.

      You and I are about on the same time table with our stage IV diagnosis….I haven't been on here for awhile so it's great to see you doing well. As to your question/concern about disability….

      Since being diagnosed stage IV Feb. of '05, I didn't apply for disability until Oct. of '07 after a relapse. I have also chosen quality of life and remained on disability since that time. I am on STRS of Ohio disability. Last summer ('10) STRS requested a review of my case. I was worried too because while I am healthy-looking at present, but the entire process and lingering effects of both the treatment and emotional/mental trauma of living with mel has left me a different person than I was before (as I'm sure you know).

      I worry about the stress of the effects and the job (teaching) taking a toll on me again (keep doing what's working…right?)

      My lead oncologist asked me what I wanted to do and I told him my concerns and he said, "I completely agree. This is not a disease with which to take risks…(additionally) given the uncertain climate of the healthcare system, I wouldn't want you to leave the system because it might be very difficult to get back on. I know what it takes to keep you on but I can't guarantee I can get you back."

      Enough said. He filled out the paperwork and my review was accepted as plausible by the disability board and I was renewed.

      Talk to your doc. Speak your concerns and I'm sure they'll agree.

      Take care,

      Karen

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      KRob
      Participant

      Hi, Jackie.

      You and I are about on the same time table with our stage IV diagnosis….I haven't been on here for awhile so it's great to see you doing well. As to your question/concern about disability….

      Since being diagnosed stage IV Feb. of '05, I didn't apply for disability until Oct. of '07 after a relapse. I have also chosen quality of life and remained on disability since that time. I am on STRS of Ohio disability. Last summer ('10) STRS requested a review of my case. I was worried too because while I am healthy-looking at present, but the entire process and lingering effects of both the treatment and emotional/mental trauma of living with mel has left me a different person than I was before (as I'm sure you know).

      I worry about the stress of the effects and the job (teaching) taking a toll on me again (keep doing what's working…right?)

      My lead oncologist asked me what I wanted to do and I told him my concerns and he said, "I completely agree. This is not a disease with which to take risks…(additionally) given the uncertain climate of the healthcare system, I wouldn't want you to leave the system because it might be very difficult to get back on. I know what it takes to keep you on but I can't guarantee I can get you back."

      Enough said. He filled out the paperwork and my review was accepted as plausible by the disability board and I was renewed.

      Talk to your doc. Speak your concerns and I'm sure they'll agree.

      Take care,

      Karen

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      KRob
      Participant

      Hi, Jackie.

      You and I are about on the same time table with our stage IV diagnosis….I haven't been on here for awhile so it's great to see you doing well. As to your question/concern about disability….

      Since being diagnosed stage IV Feb. of '05, I didn't apply for disability until Oct. of '07 after a relapse. I have also chosen quality of life and remained on disability since that time. I am on STRS of Ohio disability. Last summer ('10) STRS requested a review of my case. I was worried too because while I am healthy-looking at present, but the entire process and lingering effects of both the treatment and emotional/mental trauma of living with mel has left me a different person than I was before (as I'm sure you know).

      I worry about the stress of the effects and the job (teaching) taking a toll on me again (keep doing what's working…right?)

      My lead oncologist asked me what I wanted to do and I told him my concerns and he said, "I completely agree. This is not a disease with which to take risks…(additionally) given the uncertain climate of the healthcare system, I wouldn't want you to leave the system because it might be very difficult to get back on. I know what it takes to keep you on but I can't guarantee I can get you back."

      Enough said. He filled out the paperwork and my review was accepted as plausible by the disability board and I was renewed.

      Talk to your doc. Speak your concerns and I'm sure they'll agree.

      Take care,

      Karen

      Loading spinner
      KRob
      Participant

      Hi, Jackie.

      You and I are about on the same time table with our stage IV diagnosis….I haven't been on here for awhile so it's great to see you doing well. As to your question/concern about disability….

      Since being diagnosed stage IV Feb. of '05, I didn't apply for disability until Oct. of '07 after a relapse. I have also chosen quality of life and remained on disability since that time. I am on STRS of Ohio disability. Last summer ('10) STRS requested a review of my case. I was worried too because while I am healthy-looking at present, but the entire process and lingering effects of both the treatment and emotional/mental trauma of living with mel has left me a different person than I was before (as I'm sure you know).

      I worry about the stress of the effects and the job (teaching) taking a toll on me again (keep doing what's working…right?)

      My lead oncologist asked me what I wanted to do and I told him my concerns and he said, "I completely agree. This is not a disease with which to take risks…(additionally) given the uncertain climate of the healthcare system, I wouldn't want you to leave the system because it might be very difficult to get back on. I know what it takes to keep you on but I can't guarantee I can get you back."

      Enough said. He filled out the paperwork and my review was accepted as plausible by the disability board and I was renewed.

      Talk to your doc. Speak your concerns and I'm sure they'll agree.

      Take care,

      Karen

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