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So nervous

This topic has 5 replies, 5 voices, and was last updated 6 years, 11 months ago by raun cesar.

Post

- May 8, 2017 at 8:19 pm
- Quote
Shaneswife
Participant
It's scan week. Brain MRI and chest/pelvis/abdomen CT scans. We get the results next Tuesday. Shane's had a cough for the past month so I'm expecting that the dabrafenib and tramentinib likely aren't working in the lungs anymore. It could go either way for the liver or brain but no idea where else it may have progressed less the spine as he's having back pain lately. We expect him to be switched to an anti pd-1 inhibitor likely pembrolizumab once progression is confirmed. Unfortunately our health care doesn't cover the combo and Shane is still ineligible for any trials. And still I'm worried about his steroid use to control symptoms in combo with the pembro. Guess I'm just a bag of nerves this week.

Janis

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Replies

- - May 8, 2017 at 8:44 pm
  - Quote
  momof4boys
  Participant
  I can see why you’re a bag of nerves! I just wanted to say Im so sorry you have all of that to deal with…mel sucks! One day at a time. Lots of prayers for you and your hubby.
- - May 8, 2017 at 9:46 pm
  - Quote
  Scooby123
  Participant
  Thinking of Shane and you, know how hard it is when scans are due. Keep strong .
  
  Scooby x
- - May 8, 2017 at 9:50 pm
  - Quote
  AliCat61
  Participant
  You have every right to be a bundle of nerves. If your insurance doesn't cover the medications that are prescribed by your doctor, please contact the Drug Manufacturer about their Patient Assistance Programs. It is possible that they can help. Both Merck (Keytruda/Pembrolizumab) and Bristol Myers (Yervoy/Opdivo) have patient assistance programs. Being a caregiver can be very difficult, Please be good to yourself and remember to take to breathe. Sending warm hugs your way!
- - May 10, 2017 at 4:00 am
  - Quote
  UBContributor
  Participant
  have u checkemb d online "whar to do if insurance denied"? I saw few useful and workable advises how to deal with such denials. We are all with you.
- - May 10, 2017 at 7:11 am
  - Quote
  raun cesar
  Participant
  Sorry to hear, these are hard times for you and Shane. It is okay to be worried in a this complex situation and was been through denials in the past. Hope will improve for you

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