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Sharing some hope – another clear scan

Forums General Melanoma Community Sharing some hope – another clear scan

  • Post
    MaryD
    Participant

      I always preface a post like this by saying that I will never take this news for granted and am so humble to be a stage IV survivor and able to share it.   Today I had my six month scan and was fortunate to find out it was clear again.    Eleven years, 5 recurrences, and 5 treatments (INF, vaccine trial, radiation, Ipi, and 6 mos of pulsed IL-2) later, I am now able to celebrate a 3 1/2 year anniversary since my last recurrence.

      I always preface a post like this by saying that I will never take this news for granted and am so humble to be a stage IV survivor and able to share it.   Today I had my six month scan and was fortunate to find out it was clear again.    Eleven years, 5 recurrences, and 5 treatments (INF, vaccine trial, radiation, Ipi, and 6 mos of pulsed IL-2) later, I am now able to celebrate a 3 1/2 year anniversary since my last recurrence.

      Having been on this board for almost all of those eleven years, I have seen many losses, victories, and met some truly amazing people along the way.  I can only hope that this kind of news gives hope to those that need it on this journey.

      And now I will get myself a nice glass of wine!   πŸ™‚ πŸ™‚

      Best to all . .

      Mary

    Viewing 32 reply threads
    • Replies
        audgator
        Participant

          Thank you for posting this good news. It does give hope to me and I am sure others.

          Dan

          Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

            WendyR3
            Participant

              Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

              Thanks! Wendy

              audgator
              Participant

                Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

                audgator
                Participant

                  Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

                  audgator
                  Participant

                    Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

                    WendyR3
                    Participant

                      Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

                      Thanks! Wendy

                      WendyR3
                      Participant

                        Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

                        Thanks! Wendy

                      audgator
                      Participant

                        Thank you for posting this good news. It does give hope to me and I am sure others.

                        Dan

                        Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

                        audgator
                        Participant

                          Thank you for posting this good news. It does give hope to me and I am sure others.

                          Dan

                          Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

                          aldakota22
                          Participant

                            Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

                            aldakota22
                            Participant

                              Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

                              aldakota22
                              Participant

                                Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

                                KRob
                                Participant

                                  Your good news is hope for all here.

                                  Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

                                  K

                                  KRob
                                  Participant

                                    Your good news is hope for all here.

                                    Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

                                    K

                                    KRob
                                    Participant

                                      Your good news is hope for all here.

                                      Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

                                      K

                                      King
                                      Participant

                                        And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

                                        I just know that your post will give hope to others, especially the newbies.

                                        You are one of the silver linings of my melanoma journey.

                                        Stay Strong

                                        Kathie

                                        King
                                        Participant

                                          And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

                                          I just know that your post will give hope to others, especially the newbies.

                                          You are one of the silver linings of my melanoma journey.

                                          Stay Strong

                                          Kathie

                                          King
                                          Participant

                                            And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

                                            I just know that your post will give hope to others, especially the newbies.

                                            You are one of the silver linings of my melanoma journey.

                                            Stay Strong

                                            Kathie

                                            Eileen L
                                            Participant

                                              Wow, congrats on your clear scans! I hope you celebrate tonight.

                                              Eileen L

                                               

                                              Eileen L
                                              Participant

                                                Wow, congrats on your clear scans! I hope you celebrate tonight.

                                                Eileen L

                                                 

                                                Eileen L
                                                Participant

                                                  Wow, congrats on your clear scans! I hope you celebrate tonight.

                                                  Eileen L

                                                   

                                                  hope4cure1
                                                  Participant

                                                    Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

                                                    Hope

                                                    hope4cure1
                                                    Participant

                                                      Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

                                                      Hope

                                                      hope4cure1
                                                      Participant

                                                        Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

                                                        Hope

                                                        MeNDave
                                                        Participant

                                                          Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you πŸ™‚

                                                          Maria

                                                          MeNDave
                                                          Participant

                                                            Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you πŸ™‚

                                                            Maria

                                                            MeNDave
                                                            Participant

                                                              Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you πŸ™‚

                                                              Maria

                                                              Gene_S
                                                              Participant

                                                                Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

                                                                I also wish you the best of luck in the future.

                                                                Judy (loving wife and caregiver of Gene Stage IV)

                                                                Gene_S
                                                                Participant

                                                                  Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

                                                                  I also wish you the best of luck in the future.

                                                                  Judy (loving wife and caregiver of Gene Stage IV)

                                                                  Gene_S
                                                                  Participant

                                                                    Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

                                                                    I also wish you the best of luck in the future.

                                                                    Judy (loving wife and caregiver of Gene Stage IV)

                                                                    Rocco
                                                                    Participant

                                                                      MaryD-

                                                                      Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

                                                                      -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

                                                                      Rocco
                                                                      Participant

                                                                        MaryD-

                                                                        Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

                                                                        -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

                                                                        Rocco
                                                                        Participant

                                                                          MaryD-

                                                                          Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

                                                                          -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

                                                                          Frannie55
                                                                          Participant

                                                                            That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

                                                                            Frannie55
                                                                            Participant

                                                                              That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

                                                                              Frannie55
                                                                              Participant

                                                                                That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

                                                                                Jim M.
                                                                                Participant

                                                                                  Hi Mary,

                                                                                   You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

                                                                                   God Bless you,

                                                                                   Jim M.

                                                                                    MaryD
                                                                                    Participant

                                                                                      Hi Jim!

                                                                                      Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

                                                                                      Good to see you post and hope you enjoyed the concert . .

                                                                                      God Bless ..

                                                                                      Mary

                                                                                      Kelly7
                                                                                      Participant

                                                                                        Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

                                                                                        Kelly7
                                                                                        Participant

                                                                                          Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

                                                                                          Kelly7
                                                                                          Participant

                                                                                            Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

                                                                                            MaryD
                                                                                            Participant

                                                                                              Hi Jim!

                                                                                              Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

                                                                                              Good to see you post and hope you enjoyed the concert . .

                                                                                              God Bless ..

                                                                                              Mary

                                                                                              MaryD
                                                                                              Participant

                                                                                                Hi Jim!

                                                                                                Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

                                                                                                Good to see you post and hope you enjoyed the concert . .

                                                                                                God Bless ..

                                                                                                Mary

                                                                                              Jim M.
                                                                                              Participant

                                                                                                Hi Mary,

                                                                                                 You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

                                                                                                 God Bless you,

                                                                                                 Jim M.

                                                                                                Jim M.
                                                                                                Participant

                                                                                                  Hi Mary,

                                                                                                   You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

                                                                                                   God Bless you,

                                                                                                   Jim M.

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