Sharing some hope – another clear scan
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Sharing some hope – another clear scan

› Forums › General Melanoma Community › Sharing some hope – another clear scan

  • Post
    • March 15, 2012 at 1:33 am
    MaryD
    Participant

    I always preface a post like this by saying that I will never take this news for granted and am so humble to be a stage IV survivor and able to share it.   Today I had my six month scan and was fortunate to find out it was clear again.    Eleven years, 5 recurrences, and 5 treatments (INF, vaccine trial, radiation, Ipi, and 6 mos of pulsed IL-2) later, I am now able to celebrate a 3 1/2 year anniversary since my last recurrence.

    I always preface a post like this by saying that I will never take this news for granted and am so humble to be a stage IV survivor and able to share it.   Today I had my six month scan and was fortunate to find out it was clear again.    Eleven years, 5 recurrences, and 5 treatments (INF, vaccine trial, radiation, Ipi, and 6 mos of pulsed IL-2) later, I am now able to celebrate a 3 1/2 year anniversary since my last recurrence.

    Having been on this board for almost all of those eleven years, I have seen many losses, victories, and met some truly amazing people along the way.  I can only hope that this kind of news gives hope to those that need it on this journey.

    And now I will get myself a nice glass of wine!   🙂 🙂

    Best to all . .

    Mary

Viewing 32 reply threads
  • Replies
      • March 15, 2012 at 2:07 am
      audgator
      Participant

      Thank you for posting this good news. It does give hope to me and I am sure others.

      Dan

      Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

        • March 15, 2012 at 8:58 pm
        WendyR3
        Participant

        Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

        Thanks! Wendy

        • March 15, 2012 at 11:32 pm
        audgator
        Participant

        Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

        • March 15, 2012 at 11:32 pm
        audgator
        Participant

        Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

        • March 15, 2012 at 11:32 pm
        audgator
        Participant

        Hello Wendy.  I go to Tampa. I'm in a new group on a BMS trial. I can't give you many particulars. As I understand it the previous groups, or at least one of them, had to be NED for inclusion. I am not nearly NED. My scans were worse after ipi than before. Also the previous groups received vacine shots as well as the infusions. My group does not. I had my first treatment this past Tuesday and will go every other Tuesday for 12 weeks. Then another 12 if I'm doing OK. So far I've had surgery (lymph nodes), radiation (neck), interferon, and ipi.  The fight goes on! My best to you and your husband.  Dan

        • March 15, 2012 at 8:58 pm
        WendyR3
        Participant

        Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

        Thanks! Wendy

        • March 15, 2012 at 8:58 pm
        WendyR3
        Participant

        Hi Dan,  If you don't mind my asking, which PD1 trial are you on?  How many previous treatments did you have?  My husband can't qualify for the Merck trial, because he's had 3 or more treatments.  And the Curetech trial closed before he could qualify. We're looking at Tampa now, but we live in California, so that would be difficult.  Just wondering which one you're on and where.

        Thanks! Wendy

      • March 15, 2012 at 2:07 am
      audgator
      Participant

      Thank you for posting this good news. It does give hope to me and I am sure others.

      Dan

      Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

      • March 15, 2012 at 2:07 am
      audgator
      Participant

      Thank you for posting this good news. It does give hope to me and I am sure others.

      Dan

      Stage IV, ipi nonresponder (so far), & now on an anti-pd1 trial

      • March 15, 2012 at 2:15 am
      aldakota22
      Participant

      Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

      • March 15, 2012 at 2:15 am
      aldakota22
      Participant

      Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

      • March 15, 2012 at 2:15 am
      aldakota22
      Participant

      Great that there is hope for stage 4  survivors.We need to read some real positive stories.Yours inspires us .My prayers  go out to you.  Al

      • March 15, 2012 at 2:16 am
      KRob
      Participant

      Your good news is hope for all here.

      Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

      K

      • March 15, 2012 at 2:16 am
      KRob
      Participant

      Your good news is hope for all here.

      Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

      K

      • March 15, 2012 at 2:16 am
      KRob
      Participant

      Your good news is hope for all here.

      Congrats on your clear scans; enjoy the lightness of your heart and the ease from your worries.

      K

      • March 15, 2012 at 2:46 am
      King
      Participant

      And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

      I just know that your post will give hope to others, especially the newbies.

      You are one of the silver linings of my melanoma journey.

      Stay Strong

      Kathie

      • March 15, 2012 at 2:46 am
      King
      Participant

      And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

      I just know that your post will give hope to others, especially the newbies.

      You are one of the silver linings of my melanoma journey.

      Stay Strong

      Kathie

      • March 15, 2012 at 2:46 am
      King
      Participant

      And I'll get myself a cold glass of beer.  I am so happy for you. You are an amazing warrior….don't forget those few surgeries that you've had as well.

      I just know that your post will give hope to others, especially the newbies.

      You are one of the silver linings of my melanoma journey.

      Stay Strong

      Kathie

      • March 15, 2012 at 4:09 am
      Eileen L
      Participant

      Wow, congrats on your clear scans! I hope you celebrate tonight.

      Eileen L

       

      • March 15, 2012 at 4:09 am
      Eileen L
      Participant

      Wow, congrats on your clear scans! I hope you celebrate tonight.

      Eileen L

       

      • March 15, 2012 at 4:09 am
      Eileen L
      Participant

      Wow, congrats on your clear scans! I hope you celebrate tonight.

      Eileen L

       

      • March 15, 2012 at 4:53 am
      hope4cure1
      Participant

      Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

      Hope

      • March 15, 2012 at 4:53 am
      hope4cure1
      Participant

      Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

      Hope

      • March 15, 2012 at 4:53 am
      hope4cure1
      Participant

      Congratulations Mary!!!!!!  Sounds like you've paid your dues, and certainly deserve the rewards.  Keep it up!!!!!

      Hope

      • March 15, 2012 at 10:55 am
      MeNDave
      Participant

      Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you 🙂

      Maria

      • March 15, 2012 at 10:55 am
      MeNDave
      Participant

      Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you 🙂

      Maria

      • March 15, 2012 at 10:55 am
      MeNDave
      Participant

      Congrats!!  And thank you so much for posting… I really need to read one of this inspiring updates today.  There's been too many loses lately….  So very, very happy for you 🙂

      Maria

      • March 15, 2012 at 1:28 pm
      Gene_S
      Participant

      Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

      I also wish you the best of luck in the future.

      Judy (loving wife and caregiver of Gene Stage IV)

      • March 15, 2012 at 1:28 pm
      Gene_S
      Participant

      Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

      I also wish you the best of luck in the future.

      Judy (loving wife and caregiver of Gene Stage IV)

      • March 15, 2012 at 1:28 pm
      Gene_S
      Participant

      Mary that is wonderful news.  I  believe that it will give hope to a lot on this board and say celebrate the good news as we will all be dancing with you. 

      I also wish you the best of luck in the future.

      Judy (loving wife and caregiver of Gene Stage IV)

      • March 15, 2012 at 8:26 pm
      Rocco
      Participant

      MaryD-

      Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

      -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

      • March 15, 2012 at 8:26 pm
      Rocco
      Participant

      MaryD-

      Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

      -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

      • March 15, 2012 at 8:26 pm
      Rocco
      Participant

      MaryD-

      Big congratulations on your clean scan!  This is great news!  Thanks for sharing…

      -Rocco (Stage IV in 2005, ipi responder in 2009, now NED)

      • March 16, 2012 at 11:33 pm
      Frannie55
      Participant

      That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

      • March 16, 2012 at 11:33 pm
      Frannie55
      Participant

      That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

      • March 16, 2012 at 11:33 pm
      Frannie55
      Participant

      That is such wonderful news! I am in the grips of scanxiety right now. I'm stage IV, NED since April 2009 after liver mets taken out with radio frequency ablation. My scan is next week. You give me hope. My prayers for continued clear scans for you.

      • March 17, 2012 at 5:05 pm
      Jim M.
      Participant

      Hi Mary,

       You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

       God Bless you,

       Jim M.

        • March 18, 2012 at 8:17 pm
        MaryD
        Participant

        Hi Jim!

        Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

        Good to see you post and hope you enjoyed the concert . .

        God Bless ..

        Mary

        • March 19, 2012 at 1:30 am
        Kelly7
        Participant

        Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

        • March 19, 2012 at 1:30 am
        Kelly7
        Participant

        Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

        • March 19, 2012 at 1:30 am
        Kelly7
        Participant

        Mary, thank you for the update. My brother just had IL2 and Its always nice to hear positive stories! Good luck and continue on with your clear health! 

        • March 18, 2012 at 8:17 pm
        MaryD
        Participant

        Hi Jim!

        Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

        Good to see you post and hope you enjoyed the concert . .

        God Bless ..

        Mary

        • March 18, 2012 at 8:17 pm
        MaryD
        Participant

        Hi Jim!

        Thanks so much and I'll be sending up prayers for great CT results for you too!    I'm coming back to Tampa sometime in May and hope to see Dr. Weber just to check in.   Never want to fall off his radar  LOL!

        Good to see you post and hope you enjoyed the concert . .

        God Bless ..

        Mary

      • March 17, 2012 at 5:05 pm
      Jim M.
      Participant

      Hi Mary,

       You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

       God Bless you,

       Jim M.

      • March 17, 2012 at 5:05 pm
      Jim M.
      Participant

      Hi Mary,

       You are one of those amazing people! I'll pray and trust that you will live a long life with NED at your side. I did my 6 month scans yesterday and will see Dr. Weber next Friday. I'll celebrate your NED status by seeing Juan Luis Guerra in concert tonight in Miami!

       God Bless you,

       Jim M.

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