Sharing hope….
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Sharing hope….

› Forums › General Melanoma Community › Sharing hope….

  • Post
    • September 5, 2014 at 8:13 pm
    Bubbles
    Participant

    To all of you:

    CT's of chest, neck, abdomen and pelvis along with an MRI of the brain were all negative today.

    133 months post original melanoma diagnosis in 2003.  53 months Stage IV.  47 months NED.  45 months since start of my Nivolumab (BMS' anti-PD1)  trial in Tampa.  15 months since my last infusion.

    I feel incredibly lucky and amazed  and grateful and strange and undeserving…to be here…and to be able to share this news with all of you.  I do so to wish you hope and strength in all your journeys and struggles.

    Yours, Celeste

Viewing 47 reply threads
  • Replies
      • September 5, 2014 at 8:31 pm
      Mat
      Participant

      Celeste, awesome news for you and your family!  It is indeed hopeful and inspiring to hear from you and others that have achieved durable NED status.  I'm grateful that you've not only not abandoned the melanoma community (I think I'd be outta here!), but rather you continue to be a great resource.

      • September 5, 2014 at 8:31 pm
      Mat
      Participant

      Celeste, awesome news for you and your family!  It is indeed hopeful and inspiring to hear from you and others that have achieved durable NED status.  I'm grateful that you've not only not abandoned the melanoma community (I think I'd be outta here!), but rather you continue to be a great resource.

      • September 5, 2014 at 8:31 pm
      Mat
      Participant

      Celeste, awesome news for you and your family!  It is indeed hopeful and inspiring to hear from you and others that have achieved durable NED status.  I'm grateful that you've not only not abandoned the melanoma community (I think I'd be outta here!), but rather you continue to be a great resource.

      • September 5, 2014 at 8:59 pm
      sweetaugust
      Participant

      Fantastic news Celeste!!  I am so happy for you!  Loved hearing that!

      Have a wonderful weekend,

      Laurie

      • September 5, 2014 at 8:59 pm
      sweetaugust
      Participant

      Fantastic news Celeste!!  I am so happy for you!  Loved hearing that!

      Have a wonderful weekend,

      Laurie

      • September 5, 2014 at 8:59 pm
      sweetaugust
      Participant

      Fantastic news Celeste!!  I am so happy for you!  Loved hearing that!

      Have a wonderful weekend,

      Laurie

      • September 5, 2014 at 9:02 pm
      SABKLYN
      Participant

      Terrific news C!

      • September 5, 2014 at 9:02 pm
      SABKLYN
      Participant

      Terrific news C!

      • September 5, 2014 at 9:02 pm
      SABKLYN
      Participant

      Terrific news C!

      • September 5, 2014 at 9:03 pm
      RJoeyB
      Participant

      When it comes to good news on scans, the word "congratulations", just doesn't quite seem to capture the feeling, but it's all I've got 😉  So congratulations, that really is terrific news!  Thanks for continuing to stay connected to the community and encouraging others.

      Best, Joe

       

      • September 5, 2014 at 9:03 pm
      RJoeyB
      Participant

      When it comes to good news on scans, the word "congratulations", just doesn't quite seem to capture the feeling, but it's all I've got 😉  So congratulations, that really is terrific news!  Thanks for continuing to stay connected to the community and encouraging others.

      Best, Joe

       

      • September 5, 2014 at 9:03 pm
      RJoeyB
      Participant

      When it comes to good news on scans, the word "congratulations", just doesn't quite seem to capture the feeling, but it's all I've got 😉  So congratulations, that really is terrific news!  Thanks for continuing to stay connected to the community and encouraging others.

      Best, Joe

       

      • September 5, 2014 at 9:36 pm
      5dives
      Participant

      That is fantastic news, Celeste! Thanks for sharing it. Keep up the good work out there! 

      Elaine

      • September 5, 2014 at 9:36 pm
      5dives
      Participant

      That is fantastic news, Celeste! Thanks for sharing it. Keep up the good work out there! 

      Elaine

      • September 5, 2014 at 9:36 pm
      5dives
      Participant

      That is fantastic news, Celeste! Thanks for sharing it. Keep up the good work out there! 

      Elaine

      • September 5, 2014 at 9:52 pm
      casagrayson
      Participant

      Celeste,

      That is remarkable!  So happy for you!  Don't let this become a case of survivor's guilt … folks like you who do so well are a source of hope for everyone else!!

       

       

      • September 5, 2014 at 9:52 pm
      casagrayson
      Participant

      Celeste,

      That is remarkable!  So happy for you!  Don't let this become a case of survivor's guilt … folks like you who do so well are a source of hope for everyone else!!

       

       

      • September 5, 2014 at 9:52 pm
      casagrayson
      Participant

      Celeste,

      That is remarkable!  So happy for you!  Don't let this become a case of survivor's guilt … folks like you who do so well are a source of hope for everyone else!!

       

       

      • September 5, 2014 at 10:24 pm
      jualonso
      Participant

      Oh congratulations!!!

      I dont know you so much, but im sure you deserve it. Thanks for helping us to improve our lives.

       

      Juan (jualonso)

      • September 5, 2014 at 10:24 pm
      jualonso
      Participant

      Oh congratulations!!!

      I dont know you so much, but im sure you deserve it. Thanks for helping us to improve our lives.

       

      Juan (jualonso)

      • September 5, 2014 at 10:24 pm
      jualonso
      Participant

      Oh congratulations!!!

      I dont know you so much, but im sure you deserve it. Thanks for helping us to improve our lives.

       

      Juan (jualonso)

      • September 5, 2014 at 11:27 pm
      arthurjedi007
      Participant

      That is fantastic Celeste. You deserve it and many many more NED years.

      Artie

      • September 5, 2014 at 11:27 pm
      arthurjedi007
      Participant

      That is fantastic Celeste. You deserve it and many many more NED years.

      Artie

      • September 5, 2014 at 11:27 pm
      arthurjedi007
      Participant

      That is fantastic Celeste. You deserve it and many many more NED years.

      Artie

      • September 5, 2014 at 11:28 pm
      katie1
      Participant

      So Happy for you and your family!

      Kate

      • September 5, 2014 at 11:28 pm
      katie1
      Participant

      So Happy for you and your family!

      Kate

      • September 5, 2014 at 11:28 pm
      katie1
      Participant

      So Happy for you and your family!

      Kate

      • September 6, 2014 at 2:25 am
      BrianP
      Participant

      Thanks for sharing Celeste.  That is great news and hope for us all.

      Brian

      • September 6, 2014 at 2:25 am
      BrianP
      Participant

      Thanks for sharing Celeste.  That is great news and hope for us all.

      Brian

      • September 6, 2014 at 2:25 am
      BrianP
      Participant

      Thanks for sharing Celeste.  That is great news and hope for us all.

      Brian

      • September 6, 2014 at 1:24 pm
      ed williams
      Participant

      Celeste, that is great news! When and where is the party being held?  You know what I find funny about stage 4 Melanoma people ? We feel guilty when we win against Melanoma!! We sign up to be lab rats (Mice) , we wait for scan results with our fingers crossed, we learn to role with the punches when things don't go as planned. Many people come to this forum looking for answers and find them with the help of people like you Celeste. So, if no one has given you a pat on the back today and said thank you for all the thinks you do, here come a pat and thank you, all the way from Canada.  

      • September 6, 2014 at 1:24 pm
      ed williams
      Participant

      Celeste, that is great news! When and where is the party being held?  You know what I find funny about stage 4 Melanoma people ? We feel guilty when we win against Melanoma!! We sign up to be lab rats (Mice) , we wait for scan results with our fingers crossed, we learn to role with the punches when things don't go as planned. Many people come to this forum looking for answers and find them with the help of people like you Celeste. So, if no one has given you a pat on the back today and said thank you for all the thinks you do, here come a pat and thank you, all the way from Canada.  

        • September 6, 2014 at 2:06 pm
        Bubbles
        Participant

        Ed, I can not tell you how many times you have made me laugh out loud.  This time you brought tears to my eyes!  Now, what did you go and do that for, eh???  Where from in Canada?  My husband and I just had a wonderful trip to Nova Scotia, then round about from Liverpool to Yarmouth, up the Evangeline trail, to Look Off over the Anapolis valley, hiking in Kegi (inland and seaside), Lunenburg…..just lovely!!!  Certainly helped me understand the Tim Horton's/BK merger!!!! Thanks, for being you!!! c

        • September 6, 2014 at 2:06 pm
        Bubbles
        Participant

        Ed, I can not tell you how many times you have made me laugh out loud.  This time you brought tears to my eyes!  Now, what did you go and do that for, eh???  Where from in Canada?  My husband and I just had a wonderful trip to Nova Scotia, then round about from Liverpool to Yarmouth, up the Evangeline trail, to Look Off over the Anapolis valley, hiking in Kegi (inland and seaside), Lunenburg…..just lovely!!!  Certainly helped me understand the Tim Horton's/BK merger!!!! Thanks, for being you!!! c

        • September 8, 2014 at 1:24 pm
        ed williams
        Participant

        I start every morning with a ride to Tim Horton's for my morning shot of eye opening coffee. Celeste, I live in a small town 30 min out of Ottawa, the capital city of Canada. Where I have been trying to teach Math and Science to middle and high school kids for 20 years. I am glad you enjoyed your trip to Nova Scotia, the people down east (as we call them) are know for being really friendly. Ed

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        They WERE really NICE!!!  Sign says…drive on the right side of the road unless passing….AND THEY DO!!!  Nothing like the drivers in Atlanta or TN for that matter!!!  I understand the "trying" aspect of teaching.  My daughter is teaching Algebra II to 11/12th graders in an inner city school…when she can break up the fights, cajole folks into sitting down, wake-up…oh!…and occasionally doing their work!  Have had a lovely time in NS and Quebec!  Gonna have to check out Ottawa next!  Glad you get your Timmie on!  c

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        They WERE really NICE!!!  Sign says…drive on the right side of the road unless passing….AND THEY DO!!!  Nothing like the drivers in Atlanta or TN for that matter!!!  I understand the "trying" aspect of teaching.  My daughter is teaching Algebra II to 11/12th graders in an inner city school…when she can break up the fights, cajole folks into sitting down, wake-up…oh!…and occasionally doing their work!  Have had a lovely time in NS and Quebec!  Gonna have to check out Ottawa next!  Glad you get your Timmie on!  c

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        They WERE really NICE!!!  Sign says…drive on the right side of the road unless passing….AND THEY DO!!!  Nothing like the drivers in Atlanta or TN for that matter!!!  I understand the "trying" aspect of teaching.  My daughter is teaching Algebra II to 11/12th graders in an inner city school…when she can break up the fights, cajole folks into sitting down, wake-up…oh!…and occasionally doing their work!  Have had a lovely time in NS and Quebec!  Gonna have to check out Ottawa next!  Glad you get your Timmie on!  c

        • September 8, 2014 at 1:24 pm
        ed williams
        Participant

        I start every morning with a ride to Tim Horton's for my morning shot of eye opening coffee. Celeste, I live in a small town 30 min out of Ottawa, the capital city of Canada. Where I have been trying to teach Math and Science to middle and high school kids for 20 years. I am glad you enjoyed your trip to Nova Scotia, the people down east (as we call them) are know for being really friendly. Ed

        • September 8, 2014 at 1:24 pm
        ed williams
        Participant

        I start every morning with a ride to Tim Horton's for my morning shot of eye opening coffee. Celeste, I live in a small town 30 min out of Ottawa, the capital city of Canada. Where I have been trying to teach Math and Science to middle and high school kids for 20 years. I am glad you enjoyed your trip to Nova Scotia, the people down east (as we call them) are know for being really friendly. Ed

        • September 6, 2014 at 2:06 pm
        Bubbles
        Participant

        Ed, I can not tell you how many times you have made me laugh out loud.  This time you brought tears to my eyes!  Now, what did you go and do that for, eh???  Where from in Canada?  My husband and I just had a wonderful trip to Nova Scotia, then round about from Liverpool to Yarmouth, up the Evangeline trail, to Look Off over the Anapolis valley, hiking in Kegi (inland and seaside), Lunenburg…..just lovely!!!  Certainly helped me understand the Tim Horton's/BK merger!!!! Thanks, for being you!!! c

      • September 6, 2014 at 1:24 pm
      ed williams
      Participant

      Celeste, that is great news! When and where is the party being held?  You know what I find funny about stage 4 Melanoma people ? We feel guilty when we win against Melanoma!! We sign up to be lab rats (Mice) , we wait for scan results with our fingers crossed, we learn to role with the punches when things don't go as planned. Many people come to this forum looking for answers and find them with the help of people like you Celeste. So, if no one has given you a pat on the back today and said thank you for all the thinks you do, here come a pat and thank you, all the way from Canada.  

      • September 6, 2014 at 2:09 pm
      Bubbles
      Participant

      Thanks to all of you for your sweet comments.  I appreciate each of you more than you know.  Will be seeing the Wizard Weber in Tampa next week.  Will let you know if I learn anything amazing!  Yours, Celeste

      • September 6, 2014 at 2:09 pm
      Bubbles
      Participant

      Thanks to all of you for your sweet comments.  I appreciate each of you more than you know.  Will be seeing the Wizard Weber in Tampa next week.  Will let you know if I learn anything amazing!  Yours, Celeste

        • September 7, 2014 at 10:24 am
        buffcody
        Participant

        I was catching up this morning on a week's worth of postings and before I came to this one was reflecting on how much loving, helpful, and wise-knowledgeable service you provide to so many of us.  Then this wonderful news of the continuing course of your personal ongoing remission!  Thank you for all you do for us your companions.  I hope your remission lasts a long lifetime!!

        • September 7, 2014 at 10:24 am
        buffcody
        Participant

        I was catching up this morning on a week's worth of postings and before I came to this one was reflecting on how much loving, helpful, and wise-knowledgeable service you provide to so many of us.  Then this wonderful news of the continuing course of your personal ongoing remission!  Thank you for all you do for us your companions.  I hope your remission lasts a long lifetime!!

        • September 7, 2014 at 10:24 am
        buffcody
        Participant

        I was catching up this morning on a week's worth of postings and before I came to this one was reflecting on how much loving, helpful, and wise-knowledgeable service you provide to so many of us.  Then this wonderful news of the continuing course of your personal ongoing remission!  Thank you for all you do for us your companions.  I hope your remission lasts a long lifetime!!

      • September 6, 2014 at 2:09 pm
      Bubbles
      Participant

      Thanks to all of you for your sweet comments.  I appreciate each of you more than you know.  Will be seeing the Wizard Weber in Tampa next week.  Will let you know if I learn anything amazing!  Yours, Celeste

      • September 6, 2014 at 2:54 pm
      LuckyMan51
      Participant

      Awesome! Great news! Your posts on this site are incredibly helpful and very much appreciated. Stories lke this keep everybody marching forward through various treatments and hoping for similar long term NED status outcome. 

      • September 6, 2014 at 2:54 pm
      LuckyMan51
      Participant

      Awesome! Great news! Your posts on this site are incredibly helpful and very much appreciated. Stories lke this keep everybody marching forward through various treatments and hoping for similar long term NED status outcome. 

        • September 7, 2014 at 4:30 am
        Marianne quinn
        Participant

        I am so grateful to you and ecstatic about your good news. You are everything a good nurse should be.

        • September 7, 2014 at 4:30 am
        Marianne quinn
        Participant

        I am so grateful to you and ecstatic about your good news. You are everything a good nurse should be.

        • September 7, 2014 at 4:30 am
        Marianne quinn
        Participant

        I am so grateful to you and ecstatic about your good news. You are everything a good nurse should be.

        • September 7, 2014 at 12:19 pm
        Maureen038
        Participant

        That's fantastic news Celeste!!! Thank you so much for your excellent blog and your very helpful advice here. 

        Maureen

        • September 7, 2014 at 12:19 pm
        Maureen038
        Participant

        That's fantastic news Celeste!!! Thank you so much for your excellent blog and your very helpful advice here. 

        Maureen

        • September 7, 2014 at 12:19 pm
        Maureen038
        Participant

        That's fantastic news Celeste!!! Thank you so much for your excellent blog and your very helpful advice here. 

        Maureen

      • September 6, 2014 at 2:54 pm
      LuckyMan51
      Participant

      Awesome! Great news! Your posts on this site are incredibly helpful and very much appreciated. Stories lke this keep everybody marching forward through various treatments and hoping for similar long term NED status outcome. 

      • September 8, 2014 at 8:04 am
      JerryfromFauq
      Participant

      Love the report, Gal.

      • September 8, 2014 at 8:04 am
      JerryfromFauq
      Participant

      Love the report, Gal.

      • September 8, 2014 at 8:04 am
      JerryfromFauq
      Participant

      Love the report, Gal.

      • September 8, 2014 at 8:06 am
      rick1981
      Participant

      Two thumbs up! 🙂

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        Thanks, guys!!! Love, c

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        Thanks, guys!!! Love, c

        • September 9, 2014 at 12:42 am
        Bubbles
        Participant

        Thanks, guys!!! Love, c

      • September 8, 2014 at 8:06 am
      rick1981
      Participant

      Two thumbs up! 🙂

      • September 8, 2014 at 8:06 am
      rick1981
      Participant

      Two thumbs up! 🙂

      • September 11, 2014 at 4:26 am
      DZnDef
      Participant

      Celeste – What wonderful news!  And thank you so much for sharing.  It does give hope to people like me.  I hope you continue to remain NED until your 130th birthday.

      Maggie

      • September 11, 2014 at 4:26 am
      DZnDef
      Participant

      Celeste – What wonderful news!  And thank you so much for sharing.  It does give hope to people like me.  I hope you continue to remain NED until your 130th birthday.

      Maggie

      • September 11, 2014 at 4:26 am
      DZnDef
      Participant

      Celeste – What wonderful news!  And thank you so much for sharing.  It does give hope to people like me.  I hope you continue to remain NED until your 130th birthday.

      Maggie

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