SCCA Consultation

Hi Diane,

I will keep my fingers crossed  that your treatment goes as planned and  IL2 works for you!  When I was presented with that treatment option early on I found some very good posts from others who had gone through the treatment with their experiences very detailed, which I found very helpful.  They weren't just the common details you find in pamphlets but more personal experiences, things you wouldn't necessarily read.  In search, I typed in "IL2 underwear to tight" and the previous posts I read came up.  I never did do IL2 but have it out there as a possibility.   My current treatment direction is the TIL treatment but still bouncing back and forth from the watch and wait arena!  I am hopeful my immune system is doing most of the work and I will benefit from all the emerging new discoveries and treatment options as it is a slippery slope!

Have you ever been to the  Melanoma Symposium  at SCCA?  I'm not sure how long it's been going but I first attended in 2010.  Would love to meet up with others in this area but not sure how to initiate or organize such a get together.  It would be a perfect time if others were attending the symposium,  perhaps you have some ideas that have worked in the past being a long term mm survivor?  

I too go SCCA and so I am always interested in what you post.  There are so many ways to approach this cancer and I find it so interesting what route we all choose.  Thanks for posting and I will keep you close in spirit as you prepare for this treatment. 

Take care,

Swanee 

Hi Diane,

I will keep my fingers crossed  that your treatment goes as planned and  IL2 works for you!  When I was presented with that treatment option early on I found some very good posts from others who had gone through the treatment with their experiences very detailed, which I found very helpful.  They weren't just the common details you find in pamphlets but more personal experiences, things you wouldn't necessarily read.  In search, I typed in "IL2 underwear to tight" and the previous posts I read came up.  I never did do IL2 but have it out there as a possibility.   My current treatment direction is the TIL treatment but still bouncing back and forth from the watch and wait arena!  I am hopeful my immune system is doing most of the work and I will benefit from all the emerging new discoveries and treatment options as it is a slippery slope!

Have you ever been to the  Melanoma Symposium  at SCCA?  I'm not sure how long it's been going but I first attended in 2010.  Would love to meet up with others in this area but not sure how to initiate or organize such a get together.  It would be a perfect time if others were attending the symposium,  perhaps you have some ideas that have worked in the past being a long term mm survivor?  

I too go SCCA and so I am always interested in what you post.  There are so many ways to approach this cancer and I find it so interesting what route we all choose.  Thanks for posting and I will keep you close in spirit as you prepare for this treatment. 

Take care,

Swanee 

Hi Diane,

I will keep my fingers crossed  that your treatment goes as planned and  IL2 works for you!  When I was presented with that treatment option early on I found some very good posts from others who had gone through the treatment with their experiences very detailed, which I found very helpful.  They weren't just the common details you find in pamphlets but more personal experiences, things you wouldn't necessarily read.  In search, I typed in "IL2 underwear to tight" and the previous posts I read came up.  I never did do IL2 but have it out there as a possibility.   My current treatment direction is the TIL treatment but still bouncing back and forth from the watch and wait arena!  I am hopeful my immune system is doing most of the work and I will benefit from all the emerging new discoveries and treatment options as it is a slippery slope!

Have you ever been to the  Melanoma Symposium  at SCCA?  I'm not sure how long it's been going but I first attended in 2010.  Would love to meet up with others in this area but not sure how to initiate or organize such a get together.  It would be a perfect time if others were attending the symposium,  perhaps you have some ideas that have worked in the past being a long term mm survivor?  

I too go SCCA and so I am always interested in what you post.  There are so many ways to approach this cancer and I find it so interesting what route we all choose.  Thanks for posting and I will keep you close in spirit as you prepare for this treatment. 

Take care,

Swanee 

I am glad you are going to give IL-2 a try.  You have creepy crawly disease like I did and I can't help but wonder if that is due in part to our immune systems partially keeping things in check.  Either way you will find out pretty quickly.  I truely hope you join me in the 3% club.  If it fails, at the very least I am sure there will be some enhancement of your immune system to help with Yervoy or anti PD1, PD1 trials.

You have your ducks in a row.  Glad you can do treatment in Spokane.  If you need any tips or just want to call me, let me know.

Hugs,

Kim

I am glad you are going to give IL-2 a try.  You have creepy crawly disease like I did and I can't help but wonder if that is due in part to our immune systems partially keeping things in check.  Either way you will find out pretty quickly.  I truely hope you join me in the 3% club.  If it fails, at the very least I am sure there will be some enhancement of your immune system to help with Yervoy or anti PD1, PD1 trials.

You have your ducks in a row.  Glad you can do treatment in Spokane.  If you need any tips or just want to call me, let me know.

Hugs,

Kim

I am glad you are going to give IL-2 a try.  You have creepy crawly disease like I did and I can't help but wonder if that is due in part to our immune systems partially keeping things in check.  Either way you will find out pretty quickly.  I truely hope you join me in the 3% club.  If it fails, at the very least I am sure there will be some enhancement of your immune system to help with Yervoy or anti PD1, PD1 trials.

You have your ducks in a row.  Glad you can do treatment in Spokane.  If you need any tips or just want to call me, let me know.

Hugs,

Kim

Hi Dian,

Thanks for posting.  My fingers are crossed for you and Bob.  One day at a time.  You can do this!  We're here for you if you need anything at all.

Stay Strong
King

Stage IV 7/05  Liver mets

Hi Dian,

Thanks for posting.  My fingers are crossed for you and Bob.  One day at a time.  You can do this!  We're here for you if you need anything at all.

Stay Strong
King

Stage IV 7/05  Liver mets

Hi Dian,

Thanks for posting.  My fingers are crossed for you and Bob.  One day at a time.  You can do this!  We're here for you if you need anything at all.

Stay Strong
King

Stage IV 7/05  Liver mets

Hi Dian,  Fingers crossed for you… and toes too.  I bet you feel better now that you've been able to make a decision 🙂  Much good luck to you.

Hope and prayers,

Holly

Hi Dian,  Fingers crossed for you… and toes too.  I bet you feel better now that you've been able to make a decision 🙂  Much good luck to you.

Hope and prayers,

Holly

Hi Dian,  Fingers crossed for you… and toes too.  I bet you feel better now that you've been able to make a decision 🙂  Much good luck to you.

Hope and prayers,

Holly

Hi Dian! Glad to hear you have a treatment plan  laid out for you. Keeping my fingers crossed and a prayer for you too.  My husband is on Zelboraf for ten months…. we live in Texas and go to MDAnderson while here but  we also live in Winthrop, Wa during the summer months. And he goes to SCCA and Dr. Thompson is his Onc. there who monitors his treatment while in the northwest. We like him. 

Hi Dian! Glad to hear you have a treatment plan  laid out for you. Keeping my fingers crossed and a prayer for you too.  My husband is on Zelboraf for ten months…. we live in Texas and go to MDAnderson while here but  we also live in Winthrop, Wa during the summer months. And he goes to SCCA and Dr. Thompson is his Onc. there who monitors his treatment while in the northwest. We like him. 

Hi Dian! Glad to hear you have a treatment plan  laid out for you. Keeping my fingers crossed and a prayer for you too.  My husband is on Zelboraf for ten months…. we live in Texas and go to MDAnderson while here but  we also live in Winthrop, Wa during the summer months. And he goes to SCCA and Dr. Thompson is his Onc. there who monitors his treatment while in the northwest. We like him. 

Glad to hear you have a plan in place and are  already planning ahead should you need that plan B.  Good luck with IL-2.  I hope it knocks this stuff clean out of you.  Troy

Glad to hear you have a plan in place and are  already planning ahead should you need that plan B.  Good luck with IL-2.  I hope it knocks this stuff clean out of you.  Troy

Glad to hear you have a plan in place and are  already planning ahead should you need that plan B.  Good luck with IL-2.  I hope it knocks this stuff clean out of you.  Troy

You can do it!  I am glad I started with IL-2.  It is brutal, but with all the meds they give you, it goes by fast.  Good luck!

You can do it!  I am glad I started with IL-2.  It is brutal, but with all the meds they give you, it goes by fast.  Good luck!

You can do it!  I am glad I started with IL-2.  It is brutal, but with all the meds they give you, it goes by fast.  Good luck!