- April 2, 2019 at 2:10 pm
I had a biopsy yesterday to check some new growth on my original scar. Was wondering what the treatment options are if it positive and nothing else shows up on scans? Wait and see? Or just a WLE and leave it? I have already gone through Opdivo and developed colitis. Interested in anyones thoughts if they have been through this.
Keep on keepin on,
- April 2, 2019 at 3:09 pm
I had a spot that looked like a freckle come up on my scar. Assumed it was a freckle but it appeared sometime within the first year of WLE. My original melanoma was a Melanoma in Situ( Lentigo Maligna type). 3 and a half years later it got a little bigger so derm removed it. Path came back saying it was a recurrence and was again Melanoma in Situ. Not sure how it didn’t come back invasive but I was told it was likely they didn’t remove enough the first time so rogue cells were left behind. Treatment was the same as original since it was still considered In Situ, WLE. I would think treatment would be whatever the standard treatment is for the type and depth of recurrence if a recurrence is what it is. Could be nothing though. I have a few pigments freckles on and around my scar that are nothing, just from the sun. Cheers, Tenisa
- April 2, 2019 at 6:44 pm
Hi Ted, I had a recurrence on the scar line on top of my scalp, about 5 or 6 months into Opdivo treatment. After a second WLE, docs on my team offered differing opinions about what I should do, some saying I should get radiation, in addition to continuing the Opdivo.. In the end, I went with the advice of two Mayo docs, one a melanoma specialist who sits on the NCCC and develops standard protocol, and the other a radiation oncologist. They both advised against radiation, as in my case, after the WLE I did not have active cancer or at least none that could be detected and targeted by radiation. They also said that radiation was not recommended protocol for my situation, given currrent standards. I don't know if you are considering radiation, but thought I'd share my experience.
The Mayo docs also said that my recurrence could have been residual cells too tiny to detect and remove in the initial surgery.
Best of luck to you!
- April 4, 2019 at 3:58 am
Hi Ted. I had a scalp WLE and partial neck dissection in October 2017, then had recurrence on both scar lines in July 2018. Had progression (including brain met) on Nivo. Now receiving intralesionals (IL-12 + electroporation) for both scalp and neck lesions, plus Pembro. Scans in 3 weeks. If you developed colitis on Opdivo, does that mean you'd have same with Pembro? Also, are your docs talking about intralesionals?Sending all my best wishes your way!
- April 4, 2019 at 3:16 pm
Still waiting on biopsy results. I won't be talking to my onco until those results come in. I would imagine the next step if they are positive would be a full body scan to see if this version of the beast has spread. Last scan in January was clear….So here's hoping that I remain so! I do think an interlesional might be an option if we found that the melanoma was limited to the scar. Don't know if Pembro is an option after having the colitis…..or even starting up again on opdivo. Guess I will know more about that when we find out more about the possible tumor. Thanks for your reply. Hope and pray everything goes well for you.
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