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Scanxiety justified
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Scanxiety justified

› Forums › General Melanoma Community › Scanxiety justified

  • This topic has 27 replies, 8 voices, and was last updated 12 years ago by Ali.
  • Post
    • April 11, 2012 at 2:41 am
    justlittleoleme
    Participant
      Mondays scans showed more progression. One spot on lung, right rib, spots on pelvis and spine grew.
      He is in the hospital still trying to get his liver back to normal. May be adding cellcept to the mix and start weaning the steroid. He is now on insulin to get the sugar under control from the steroids. Need to get on with the fight! Temodar is next up!

      Mondays scans showed more progression. One spot on lung, right rib, spots on pelvis and spine grew.
      He is in the hospital still trying to get his liver back to normal. May be adding cellcept to the mix and start weaning the steroid. He is now on insulin to get the sugar under control from the steroids. Need to get on with the fight! Temodar is next up!

    Viewing 17 reply threads
    • Replies
        • April 11, 2012 at 3:03 am
        runnergirl
        Participant

          Prayers.  This journey is not what we signed up for, but it's what we have.  Prayers for peace to you and your husband.

          • April 11, 2012 at 3:03 am
          runnergirl
          Participant

            Prayers.  This journey is not what we signed up for, but it's what we have.  Prayers for peace to you and your husband.

            • April 11, 2012 at 3:03 am
            runnergirl
            Participant

              Prayers.  This journey is not what we signed up for, but it's what we have.  Prayers for peace to you and your husband.

              • April 11, 2012 at 4:41 am
              JerryfromFauq
              Participant

                Good luck.  I have to ask if there were any brain tumors disovered aand was any DNA mutation tests run on the tumor material?  May I ask what the logi was that was given for trying Temodar at this time?

                There is still a hance the Ipi will kick in.  Problem is that sometimes it can take up to a year to start working.  Hopefully the Temodar will be enhanced by the prior Ipi treatments.

                  • April 11, 2012 at 10:22 am
                  justlittleoleme
                  Participant
                    He is BRAF wild type and negative for c- kit. No brain tumors seen at this time.
                    Oncologist has ruled out all immunological treatments at this time due to the ipi induced colitis and ipi induced hepatitis. So it basically leaves us with the three standard chemotherapies. Dacarbazine is out since it needs the liver to metabolize it. Temodar is her choice. I am reluctant due to no brain involvement and limited “shelf life” but we have to do something. All of the spots are new since November. I appreciate any and all advice.
                    • April 11, 2012 at 10:22 am
                    justlittleoleme
                    Participant
                      He is BRAF wild type and negative for c- kit. No brain tumors seen at this time.
                      Oncologist has ruled out all immunological treatments at this time due to the ipi induced colitis and ipi induced hepatitis. So it basically leaves us with the three standard chemotherapies. Dacarbazine is out since it needs the liver to metabolize it. Temodar is her choice. I am reluctant due to no brain involvement and limited “shelf life” but we have to do something. All of the spots are new since November. I appreciate any and all advice.
                      • April 11, 2012 at 10:22 am
                      justlittleoleme
                      Participant
                        He is BRAF wild type and negative for c- kit. No brain tumors seen at this time.
                        Oncologist has ruled out all immunological treatments at this time due to the ipi induced colitis and ipi induced hepatitis. So it basically leaves us with the three standard chemotherapies. Dacarbazine is out since it needs the liver to metabolize it. Temodar is her choice. I am reluctant due to no brain involvement and limited “shelf life” but we have to do something. All of the spots are new since November. I appreciate any and all advice.
                      • April 11, 2012 at 4:41 am
                      JerryfromFauq
                      Participant

                        Good luck.  I have to ask if there were any brain tumors disovered aand was any DNA mutation tests run on the tumor material?  May I ask what the logi was that was given for trying Temodar at this time?

                        There is still a hance the Ipi will kick in.  Problem is that sometimes it can take up to a year to start working.  Hopefully the Temodar will be enhanced by the prior Ipi treatments.

                        • April 11, 2012 at 4:41 am
                        JerryfromFauq
                        Participant

                          Good luck.  I have to ask if there were any brain tumors disovered aand was any DNA mutation tests run on the tumor material?  May I ask what the logi was that was given for trying Temodar at this time?

                          There is still a hance the Ipi will kick in.  Problem is that sometimes it can take up to a year to start working.  Hopefully the Temodar will be enhanced by the prior Ipi treatments.

                          • April 11, 2012 at 4:43 am
                          hope4cure1
                          Participant

                            So sorry to hear of your husband's scan results.  It sounds like your doctors are all over it, and have his treatment mapped out.  I know you guys will keep fighting!  Big hugs and prayers for you both.

                              • April 11, 2012 at 2:15 pm
                              Karin L
                              Participant

                                No advice, but big hugs and prayers to both of you!

                                Karin

                                • April 11, 2012 at 2:15 pm
                                Karin L
                                Participant

                                  No advice, but big hugs and prayers to both of you!

                                  Karin

                                  • April 11, 2012 at 2:15 pm
                                  Karin L
                                  Participant

                                    No advice, but big hugs and prayers to both of you!

                                    Karin

                                  • April 11, 2012 at 4:43 am
                                  hope4cure1
                                  Participant

                                    So sorry to hear of your husband's scan results.  It sounds like your doctors are all over it, and have his treatment mapped out.  I know you guys will keep fighting!  Big hugs and prayers for you both.

                                    • April 11, 2012 at 4:43 am
                                    hope4cure1
                                    Participant

                                      So sorry to hear of your husband's scan results.  It sounds like your doctors are all over it, and have his treatment mapped out.  I know you guys will keep fighting!  Big hugs and prayers for you both.

                                      • April 11, 2012 at 4:48 pm
                                      TSchulz
                                      Participant

                                        I am so sad to share in your news today but wish to send you the most positive thoughts I can.   Selfishly, I look to this message board to celebrate the successes and hope for my own, but this doesn't come without us all stepping up and fighting.  All the best!

                                        • April 11, 2012 at 4:48 pm
                                        TSchulz
                                        Participant

                                          I am so sad to share in your news today but wish to send you the most positive thoughts I can.   Selfishly, I look to this message board to celebrate the successes and hope for my own, but this doesn't come without us all stepping up and fighting.  All the best!

                                          • April 11, 2012 at 4:48 pm
                                          TSchulz
                                          Participant

                                            I am so sad to share in your news today but wish to send you the most positive thoughts I can.   Selfishly, I look to this message board to celebrate the successes and hope for my own, but this doesn't come without us all stepping up and fighting.  All the best!

                                            • April 12, 2012 at 1:18 am
                                            s Mom
                                            Participant

                                              Hoping that Temodar does its job and you get to come home soon.  Praying for you and your husband – keep up the fight!!

                                              Jeff's Mom (Bridgette)

                                              • April 12, 2012 at 1:18 am
                                              s Mom
                                              Participant

                                                Hoping that Temodar does its job and you get to come home soon.  Praying for you and your husband – keep up the fight!!

                                                Jeff's Mom (Bridgette)

                                                • April 12, 2012 at 1:18 am
                                                s Mom
                                                Participant

                                                  Hoping that Temodar does its job and you get to come home soon.  Praying for you and your husband – keep up the fight!!

                                                  Jeff's Mom (Bridgette)

                                                  • April 12, 2012 at 5:41 am
                                                  Ali
                                                  Participant

                                                    So sorry, hope things get better quickly!

                                                    Ali

                                                    • April 12, 2012 at 5:41 am
                                                    Ali
                                                    Participant

                                                      So sorry, hope things get better quickly!

                                                      Ali

                                                      • April 12, 2012 at 5:41 am
                                                      Ali
                                                      Participant

                                                        So sorry, hope things get better quickly!

                                                        Ali

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