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  • Post
    • September 1, 2016 at 9:17 pm
    Aaron
    Participant

      "Significant shrinkage" generally aren't words you like to hear but I'll take them today. Have gone through a lot: damaged pituitary gland, vitiligo, now the suspicion of pneumonia (do not believe it is melanoma) but I'm beating the cancer right now and will continue to with the help of God. The clinical trial may keep me on board for now despite my responses but it is unknown when my treatments will resume.  Now to start antibiotics 

    Viewing 23 reply threads
    • Replies
        • September 1, 2016 at 9:26 pm
        Julie in SoCal
        Participant

          Hey! Significant shrinkage isn't bad, Aaron!  You're beating back the beast bit by bit!  Good for you

          Thanks for sharing!  Hope antibiotics do the trick and you're feeling better soon!

          Julie

            • September 1, 2016 at 9:31 pm
            Aaron
            Participant

              Here's the thing. I don't even know I'm "sick". The scan says I have the possibility of pneumonia coming on. I have no symptoms but the dr said it does not show the signs of melanoma in the lungs. 

              • September 1, 2016 at 10:07 pm
              Julie in SoCal
              Participant

                Ha! wouln't it be like that!  Everything about Mel seems to be perverse!

                I'm glad the dr said it does not seem to show the signs of mel in your lungs.  Well here's to hoping you stay feeling just fine!!  

                Julie

                • September 1, 2016 at 10:07 pm
                Julie in SoCal
                Participant

                  Ha! wouln't it be like that!  Everything about Mel seems to be perverse!

                  I'm glad the dr said it does not seem to show the signs of mel in your lungs.  Well here's to hoping you stay feeling just fine!!  

                  Julie

                  • September 1, 2016 at 10:07 pm
                  Julie in SoCal
                  Participant

                    Ha! wouln't it be like that!  Everything about Mel seems to be perverse!

                    I'm glad the dr said it does not seem to show the signs of mel in your lungs.  Well here's to hoping you stay feeling just fine!!  

                    Julie

                    • September 1, 2016 at 9:31 pm
                    Aaron
                    Participant

                      Here's the thing. I don't even know I'm "sick". The scan says I have the possibility of pneumonia coming on. I have no symptoms but the dr said it does not show the signs of melanoma in the lungs. 

                      • September 1, 2016 at 9:31 pm
                      Aaron
                      Participant

                        Here's the thing. I don't even know I'm "sick". The scan says I have the possibility of pneumonia coming on. I have no symptoms but the dr said it does not show the signs of melanoma in the lungs. 

                      • September 1, 2016 at 9:26 pm
                      Julie in SoCal
                      Participant

                        Hey! Significant shrinkage isn't bad, Aaron!  You're beating back the beast bit by bit!  Good for you

                        Thanks for sharing!  Hope antibiotics do the trick and you're feeling better soon!

                        Julie

                        • September 1, 2016 at 9:26 pm
                        Julie in SoCal
                        Participant

                          Hey! Significant shrinkage isn't bad, Aaron!  You're beating back the beast bit by bit!  Good for you

                          Thanks for sharing!  Hope antibiotics do the trick and you're feeling better soon!

                          Julie

                          • September 2, 2016 at 6:02 am
                          stars
                          Participant

                            Good news! Hopes and prayers for continued good response!

                            • September 2, 2016 at 6:02 am
                            stars
                            Participant

                              Good news! Hopes and prayers for continued good response!

                              • September 2, 2016 at 6:02 am
                              stars
                              Participant

                                Good news! Hopes and prayers for continued good response!

                                • September 2, 2016 at 12:48 pm
                                Bubbles
                                Participant

                                  Shrinkage works! May it continue! Celeste

                                  • September 2, 2016 at 12:48 pm
                                  Bubbles
                                  Participant

                                    Shrinkage works! May it continue! Celeste

                                    • September 2, 2016 at 12:48 pm
                                    Bubbles
                                    Participant

                                      Shrinkage works! May it continue! Celeste

                                      • September 2, 2016 at 3:27 pm
                                      KAF
                                      Participant

                                        I have been waiting for your update!  Thanks for the smile and laugh.  Significant shrinkage is awesome.  I hope to have the same news on the 13th when I get my scans done.  I still can't seem to get the pituitary to go down so I don't know what will follow but keep us updated on what you're going to be doing next to fight this thing. 

                                        • September 2, 2016 at 3:27 pm
                                        KAF
                                        Participant

                                          I have been waiting for your update!  Thanks for the smile and laugh.  Significant shrinkage is awesome.  I hope to have the same news on the 13th when I get my scans done.  I still can't seem to get the pituitary to go down so I don't know what will follow but keep us updated on what you're going to be doing next to fight this thing. 

                                          • September 2, 2016 at 3:27 pm
                                          KAF
                                          Participant

                                            I have been waiting for your update!  Thanks for the smile and laugh.  Significant shrinkage is awesome.  I hope to have the same news on the 13th when I get my scans done.  I still can't seem to get the pituitary to go down so I don't know what will follow but keep us updated on what you're going to be doing next to fight this thing. 

                                              • September 2, 2016 at 8:55 pm
                                              Aaron
                                              Participant

                                                I have no idea when my prednisone dosage will be lowered but I think I will be taking it for quite a while. My dr just refilled my prescription for it so…..

                                                • September 2, 2016 at 8:55 pm
                                                Aaron
                                                Participant

                                                  I have no idea when my prednisone dosage will be lowered but I think I will be taking it for quite a while. My dr just refilled my prescription for it so…..

                                                  • September 2, 2016 at 8:55 pm
                                                  Aaron
                                                  Participant

                                                    I have no idea when my prednisone dosage will be lowered but I think I will be taking it for quite a while. My dr just refilled my prescription for it so…..

                                                  • September 2, 2016 at 6:31 pm
                                                  JoshF
                                                  Participant

                                                    Great news and prayers that shrinkage continues to NED!!!

                                                    Josh

                                                    • September 2, 2016 at 6:31 pm
                                                    JoshF
                                                    Participant

                                                      Great news and prayers that shrinkage continues to NED!!!

                                                      Josh

                                                      • September 2, 2016 at 6:31 pm
                                                      JoshF
                                                      Participant

                                                        Great news and prayers that shrinkage continues to NED!!!

                                                        Josh

                                                        • September 2, 2016 at 9:21 pm
                                                        BrianP
                                                        Participant

                                                          Congrats Aaron.  I suspected good things were in store for you on this scan.  Never want to jinx it though.  Enjoy the good news and hope the pneumonia is a non event for you.

                                                          Brian

                                                          • September 2, 2016 at 9:21 pm
                                                          BrianP
                                                          Participant

                                                            Congrats Aaron.  I suspected good things were in store for you on this scan.  Never want to jinx it though.  Enjoy the good news and hope the pneumonia is a non event for you.

                                                            Brian

                                                            • September 2, 2016 at 9:21 pm
                                                            BrianP
                                                            Participant

                                                              Congrats Aaron.  I suspected good things were in store for you on this scan.  Never want to jinx it though.  Enjoy the good news and hope the pneumonia is a non event for you.

                                                              Brian

                                                              • September 4, 2016 at 1:29 am
                                                              Aaron
                                                              Participant

                                                                Thank you all.

                                                                • September 4, 2016 at 1:29 am
                                                                Aaron
                                                                Participant

                                                                  Thank you all.

                                                                  • September 4, 2016 at 1:29 am
                                                                  Aaron
                                                                  Participant

                                                                    Thank you all.

                                                                    • September 5, 2016 at 1:44 pm
                                                                    Momofjake
                                                                    Participant

                                                                      Happy to hear those words:) Good to still be pretty funny too. Stay positive!! That brain is a powerful weapon and lots of prayers from us:) Hope you are able to do some normal now!!

                                                                      Happy for you,

                                                                      Kerri

                                                                      ps–how are you with the vitiligo?? I know it sucks, but Jake is really unhappy about that part plus keytruda didn't work. 

                                                                      • September 5, 2016 at 1:44 pm
                                                                      Momofjake
                                                                      Participant

                                                                        Happy to hear those words:) Good to still be pretty funny too. Stay positive!! That brain is a powerful weapon and lots of prayers from us:) Hope you are able to do some normal now!!

                                                                        Happy for you,

                                                                        Kerri

                                                                        ps–how are you with the vitiligo?? I know it sucks, but Jake is really unhappy about that part plus keytruda didn't work. 

                                                                        • September 5, 2016 at 1:44 pm
                                                                        Momofjake
                                                                        Participant

                                                                          Happy to hear those words:) Good to still be pretty funny too. Stay positive!! That brain is a powerful weapon and lots of prayers from us:) Hope you are able to do some normal now!!

                                                                          Happy for you,

                                                                          Kerri

                                                                          ps–how are you with the vitiligo?? I know it sucks, but Jake is really unhappy about that part plus keytruda didn't work. 

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