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Scan Results…..

Forums General Melanoma Community Scan Results…..

  • Post
    debbieVA
    Participant

     MPIPers…

    It’s that time again…. happy and blessed to say …ALL’s CLEAR.  Been a long journey since 2006, but thrilled to remain NED and Healthy! 

    The important take away is….always have hope.  Never give up.  I can still picture my Medical Oncologist at Johns Hopkins telling me I had ‘6-9 months, Stage 4 prognosis usually under a year’..and all he offered me was a vaccine trial.   I have exceeded my ‘expiration date’ by 34 months and remain NED.  

     MPIPers…

    It’s that time again…. happy and blessed to say …ALL’s CLEAR.  Been a long journey since 2006, but thrilled to remain NED and Healthy! 

    The important take away is….always have hope.  Never give up.  I can still picture my Medical Oncologist at Johns Hopkins telling me I had ‘6-9 months, Stage 4 prognosis usually under a year’..and all he offered me was a vaccine trial.   I have exceeded my ‘expiration date’ by 34 months and remain NED.  

    Always be your own ADVOCATE.  Find alternatives, go for the 2nd, 3rd, and 4th opinion.  Don’t stop until YOU are ready to stop.  Be the Captain of your medical team.  Find a Melanoma Specialist to Co-Captian and the rest of your support team will fall in place.  

    Wishing you all good health and happiness…

     

    Debbie Stage 4 NED (IL-2 Complete Responder, 57 infusions 2007-2008)

    PS….Like the set up of MPIP BB….looks good !

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  • Replies
      Kimmer
      Participant

      Well Hello Fabulous!

      What great news…so glad to hear that the scan was clear.  Awesome.

      You give great advice, ya know?

      Take good care, K.

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      lhaley
      Participant

      Love your wonderful news and all of the hope it brings to others!!!  Also love the picture with the snow in the background!! Gives me that "cool" feeling.

      You go girl!!  Read the article about your volunteerism.  You are definitely an example of living every moment to the fullest!!

      Linda

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        Sharon in Reno
        Participant

        Good Morning,

        This is just wonderful news and I couldn’t agree more with your advice. Keep kicking butt and thank you very much for sharing. love, Sharon in Reno, Stage IV

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      Amy Busby
      Participant

      {{{{HUGS}}} from me to you hon!  so glad & appreciative & thrilled about your continued good health and active, robust life

      you live life to the fullest and for that reason (among others) you lady are my idol!

      love,

      Amy

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      Tim–MRF
      Guest

      Debbie:

      This is great–always good to hit another milestone with clean scans.  Thanks for the update.

       

      Tim

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      dian
      Participant

      Diva!

      I’m so very very thrilled for you! thanks for the great news!

       

      dian

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      SusanE
      Participant

      Debbie, Congratulations. I am so happy for you. We are looking forward to the day that we can say this too.

      Do I understand then that IL2 is your magic bullet or did you do a vaccine trial?

      Thanks,

      Susan

       

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        debbieVA
        Participant

         Hi Susan….

        NO, no vaccine trial.  I felt with mets to both lungs, I needed to hit it hard and fast.  Left Johns Hopkins, found a doctor closer to home (only 2 hours away) and started IL-2.  After 4 weeks of treatment, my doctor felt IL-2 was too toxic for me and stopped treatment.  I found a Melanoma specialist at UVA who finished up the third round of treatment.  

        IL-2 can be deadly…..so can Melanoma…..best to hit the IL-2 when you are strong instead of weakened by disease progression.  

        Wishing you the best….

        debbieVA

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      akls
      Participant

      So happy for you Debbie!!  That’s the best news!

      Amy S. in Michigan

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      King
      Participant

       I am so happy, Debbie and am very happy that you shared the news with your MPIP family.  It gives others hope as you know.  

      Stay Strong
      King

      Stage IV 7/05 Liver mets

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      leni currie
      Participant

       NICE!!!!!  So happy for you – 

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      ValinMtl
      Participant

      Debbie, so happy for you..you give me inspiration and hope. I’m seeing the doctors tomorrow.  Have been having a rough time with tumor growth, my leg is a nightmare. Now on temodar..I’ll see what they say…it’s all so tiring.  Val

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      Sharyn
      Participant

      Hey Debbie, this is great news! And your advice is spot on! I’m starting ipi soon, and if that doesn’t work, I have IL-2 on the back burner.  Hope I won’t need it, but if I do, I hope I respond as well as you have. I hear ya on outliving the prognosis. I was given 3 yrs in 2006, and in 2008 I was told I had a 20% chance of still being alive in 2 yrs. Well, 2 yrs is up, and I’m still here! — and with no plans of going anywhere for a long time! :>) And I’ve been stage IV  for over 18 months. Enjoy a long healthy relationship with NED. Ain’t he a great guy?

      Hugs

      Sharyn

      Stage IV

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      James from Sydney
      Participant

      Hi Debbie

      i am so pleased to hear your news you bring so much hope to the good people on this Board.

      best wishes

      James

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      jim Breitfeller
      Participant

      Debbie,

      At 34 months NED you are approaching a C U R E!!!!!!!!!!!!!!!!!!!!!!!!

      I am right behind you.

      The wonders of the Immune system. How to jump start it. It is all in the Science!!!!

      Take care,

      Jimmy B

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      Eehgads
      Participant

      dVa,

      So happy to read the good news. You keep on keeping on and loving life.

      Nothing seems to have slowed you down.

       

       

       

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      Carver
      Participant

      Wooohooo. Great news Debbie. As ever, Carver

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      jag
      Participant

       Great post debbie, you inspire quite a few people.

      John

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