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Scan results
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Scan results

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  • Post
    • August 15, 2012 at 4:05 pm
    Randy437
    Participant

      The news was all good on Monday.  NED in both brain and body.  My CTs will now be every 4 months instead of 3 months.  Brain MRI remain a 6 months.  I do not have the BRAF mutation, but qualify for Yervoy if I have another met (I've had one surgically removed from each lung, brain and small intestine).  Also, Siteman Cancer Center in St.

      The news was all good on Monday.  NED in both brain and body.  My CTs will now be every 4 months instead of 3 months.  Brain MRI remain a 6 months.  I do not have the BRAF mutation, but qualify for Yervoy if I have another met (I've had one surgically removed from each lung, brain and small intestine).  Also, Siteman Cancer Center in St. Louis is participating in a trial of a drug for those without the BRAF mutation).  Of course I'm thrilled to be NED, but it's helpful to know there are options.  Those of you who have been there know this – but having the interval between scans lengthened is like a snow day in grade school.  Blessings to all who fight this beast and may your news be hopeful as well.

    Viewing 8 reply threads
    • Replies
        • August 15, 2012 at 8:11 pm
        Nell
        Participant

          I am happy for you that you have great news!!  Could you tell me about the trial at Siteman? I am BRAF negative

            • August 16, 2012 at 2:39 am
            Randy437
            Participant

              I'm afraid I don't have any information on it.  It was just mentioned to me in passing when I asked about Yervoy. 

              • August 16, 2012 at 2:39 am
              Randy437
              Participant

                I'm afraid I don't have any information on it.  It was just mentioned to me in passing when I asked about Yervoy. 

                • August 16, 2012 at 2:39 am
                Randy437
                Participant

                  I'm afraid I don't have any information on it.  It was just mentioned to me in passing when I asked about Yervoy. 

                • August 15, 2012 at 8:11 pm
                Nell
                Participant

                  I am happy for you that you have great news!!  Could you tell me about the trial at Siteman? I am BRAF negative

                  • August 15, 2012 at 8:11 pm
                  Nell
                  Participant

                    I am happy for you that you have great news!!  Could you tell me about the trial at Siteman? I am BRAF negative

                    • August 15, 2012 at 8:44 pm
                    jyc
                    Participant

                      Wonderful news!  Rock on!

                      • August 15, 2012 at 8:44 pm
                      jyc
                      Participant

                        Wonderful news!  Rock on!

                        • August 15, 2012 at 8:44 pm
                        jyc
                        Participant

                          Wonderful news!  Rock on!

                          • August 16, 2012 at 1:13 am
                          jag
                          Participant

                            Good for you, congratulations and thanks for sharing the news!  At this point w/PET, CT, and MRI, combined I have had over 100 scans.  They used to bother me, but now I know that to be proactive and get melanoma early is definitely the way to go.  You are 100% right about NED too.  Each NED I get, I feel like I have another 6-9months added onto my life, knowing there are other treatment options if there is a recurrence is even better.  I hit brain met status, in 2006 and the only options then were Temodar, Surgery, focal radiation, and whole brain. To now know that there are more really gives a sense of hope.  Back then, the only people on this board who had survived with brain mets were less than 2(that I knew of)  I wish you continued NED in the future so that you can graduate to 6 mo status.  I'm kind of nervous about going to 1 year status, as early scans tend to lead to early intervention and allows for better planning/strategizing, but eventually one has to just jump into the pool, it can be scary, but in the end it is usually worth it and fun.

                            God Bless

                            John

                              • August 16, 2012 at 2:56 am
                              Gene_S
                              Participant

                                Just hope that your cure with all those scans doesn't cause you to get another type of  cancer!

                                • August 16, 2012 at 2:56 am
                                Gene_S
                                Participant

                                  Just hope that your cure with all those scans doesn't cause you to get another type of  cancer!

                                  • August 16, 2012 at 2:56 am
                                  Gene_S
                                  Participant

                                    Just hope that your cure with all those scans doesn't cause you to get another type of  cancer!

                                  • August 16, 2012 at 1:13 am
                                  jag
                                  Participant

                                    Good for you, congratulations and thanks for sharing the news!  At this point w/PET, CT, and MRI, combined I have had over 100 scans.  They used to bother me, but now I know that to be proactive and get melanoma early is definitely the way to go.  You are 100% right about NED too.  Each NED I get, I feel like I have another 6-9months added onto my life, knowing there are other treatment options if there is a recurrence is even better.  I hit brain met status, in 2006 and the only options then were Temodar, Surgery, focal radiation, and whole brain. To now know that there are more really gives a sense of hope.  Back then, the only people on this board who had survived with brain mets were less than 2(that I knew of)  I wish you continued NED in the future so that you can graduate to 6 mo status.  I'm kind of nervous about going to 1 year status, as early scans tend to lead to early intervention and allows for better planning/strategizing, but eventually one has to just jump into the pool, it can be scary, but in the end it is usually worth it and fun.

                                    God Bless

                                    John

                                    • August 16, 2012 at 1:13 am
                                    jag
                                    Participant

                                      Good for you, congratulations and thanks for sharing the news!  At this point w/PET, CT, and MRI, combined I have had over 100 scans.  They used to bother me, but now I know that to be proactive and get melanoma early is definitely the way to go.  You are 100% right about NED too.  Each NED I get, I feel like I have another 6-9months added onto my life, knowing there are other treatment options if there is a recurrence is even better.  I hit brain met status, in 2006 and the only options then were Temodar, Surgery, focal radiation, and whole brain. To now know that there are more really gives a sense of hope.  Back then, the only people on this board who had survived with brain mets were less than 2(that I knew of)  I wish you continued NED in the future so that you can graduate to 6 mo status.  I'm kind of nervous about going to 1 year status, as early scans tend to lead to early intervention and allows for better planning/strategizing, but eventually one has to just jump into the pool, it can be scary, but in the end it is usually worth it and fun.

                                      God Bless

                                      John

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