scan results
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scan results

› Forums › General Melanoma Community › scan results

  • Post
    • October 8, 2014 at 8:05 pm
    adriana cooper
    Participant

    Not the news I wanted but not really surprised. So far I still have my tumors in my lungs with some growth. Not sure right now if its true growth or if its swelling from the IPI. My lymph nodes in my chest are now involved they have not been before. I will be getting a new scan in two months to recheck my tumor growth. I have nicknamed the lovely tumor on my arm that will not be easily killed off Frankenstein, he has been removed came back then radiated and has come back. I will be taking some time off from any treatment to spend quality time with my family and just for a little while try to forget what is waiting. Will be doing some research on what is the best treatment option for me. I am BRAF positive. Still keeping a positive outlook. With my wonderful boyfriend by my side I will stay positive. Good luck to all

Viewing 5 reply threads
  • Replies
      • October 8, 2014 at 8:52 pm
      DZnDef
      Participant

      Adriana – I am sorry that the results were not what you were hoping for but they do not sound all that bad either.  Ipi can take a while to kick in and it certainly is possible that the "growth" you are seeing is inflammation.  Time will tell (so hard to wait though, isn't it)?  If you do find out that you are not a responder, you still have some wonderful options in Anti PD-1 as well as the BRAF inhibitors.  Yes, Rob is a wonderful boyfriend (I've seen his posts).  I am not counting the Ipi out just yet!

      Be well – Maggie

      • October 8, 2014 at 8:52 pm
      DZnDef
      Participant

      Adriana – I am sorry that the results were not what you were hoping for but they do not sound all that bad either.  Ipi can take a while to kick in and it certainly is possible that the "growth" you are seeing is inflammation.  Time will tell (so hard to wait though, isn't it)?  If you do find out that you are not a responder, you still have some wonderful options in Anti PD-1 as well as the BRAF inhibitors.  Yes, Rob is a wonderful boyfriend (I've seen his posts).  I am not counting the Ipi out just yet!

      Be well – Maggie

      • October 8, 2014 at 8:52 pm
      DZnDef
      Participant

      Adriana – I am sorry that the results were not what you were hoping for but they do not sound all that bad either.  Ipi can take a while to kick in and it certainly is possible that the "growth" you are seeing is inflammation.  Time will tell (so hard to wait though, isn't it)?  If you do find out that you are not a responder, you still have some wonderful options in Anti PD-1 as well as the BRAF inhibitors.  Yes, Rob is a wonderful boyfriend (I've seen his posts).  I am not counting the Ipi out just yet!

      Be well – Maggie

      • October 10, 2014 at 12:46 pm
      ecc26
      Participant

      I know all too well how your feeling about your scans- seems like that's what happens every time I get a scan.  I also know what you mean when you talk about your boyfriend- I'd be completely lost (or worse) without my husband. 

      Hang in there, keep fighting, you'll find the thing that works!

      • October 10, 2014 at 12:46 pm
      ecc26
      Participant

      I know all too well how your feeling about your scans- seems like that's what happens every time I get a scan.  I also know what you mean when you talk about your boyfriend- I'd be completely lost (or worse) without my husband. 

      Hang in there, keep fighting, you'll find the thing that works!

      • October 10, 2014 at 12:46 pm
      ecc26
      Participant

      I know all too well how your feeling about your scans- seems like that's what happens every time I get a scan.  I also know what you mean when you talk about your boyfriend- I'd be completely lost (or worse) without my husband. 

      Hang in there, keep fighting, you'll find the thing that works!

Viewing 5 reply threads
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