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Save Locky’s Dad

Forums General Melanoma Community Save Locky’s Dad

  • This topic has 45 replies, 12 voices, and was last updated 9 years ago by JC.
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      Erinmay22
      Participant

        Thanks for sharing!  Was going to post this for Nick!

        Erinmay22
        Participant

          Thanks for sharing!  Was going to post this for Nick!

          Erinmay22
          Participant

            Thanks for sharing!  Was going to post this for Nick!

            JerryfromFauq
            Participant

              Signed

              JerryfromFauq
              Participant

                Signed

                JerryfromFauq
                Participant

                  Signed

                  POW
                  Participant

                    To those who are as spam-averse as I am, this is not spam. It is a social media public-service campaign.

                    Nick Auden is an otherwise healthy young man with a wife and 3 small children. He has been fighting Stage IV melanoma since 2011. He was accepted into the BMS anti-PD1 trial in July but then excluded that same day for "health reasons" (presumably brain mets, but he doesn't say).

                    The Auden family and their friends have launched a social media campaign (Facebook, Twitter, email, etc) to petition BMS to give Nick anti-PD1 on a compassionate use basis. That is what this is all about.

                    POW
                    Participant

                      To those who are as spam-averse as I am, this is not spam. It is a social media public-service campaign.

                      Nick Auden is an otherwise healthy young man with a wife and 3 small children. He has been fighting Stage IV melanoma since 2011. He was accepted into the BMS anti-PD1 trial in July but then excluded that same day for "health reasons" (presumably brain mets, but he doesn't say).

                      The Auden family and their friends have launched a social media campaign (Facebook, Twitter, email, etc) to petition BMS to give Nick anti-PD1 on a compassionate use basis. That is what this is all about.

                      POW
                      Participant

                        To those who are as spam-averse as I am, this is not spam. It is a social media public-service campaign.

                        Nick Auden is an otherwise healthy young man with a wife and 3 small children. He has been fighting Stage IV melanoma since 2011. He was accepted into the BMS anti-PD1 trial in July but then excluded that same day for "health reasons" (presumably brain mets, but he doesn't say).

                        The Auden family and their friends have launched a social media campaign (Facebook, Twitter, email, etc) to petition BMS to give Nick anti-PD1 on a compassionate use basis. That is what this is all about.

                        aldakota22
                        Participant

                          People take the minute to sign petition.This father& husband needs our  help.Pray he gets it soon. Beat the Beast.    Al

                          aldakota22
                          Participant

                            People take the minute to sign petition.This father& husband needs our  help.Pray he gets it soon. Beat the Beast.    Al

                            aldakota22
                            Participant

                              People take the minute to sign petition.This father& husband needs our  help.Pray he gets it soon. Beat the Beast.    Al

                              melissa ann
                              Participant

                                This is easy to do, just takes a minute…:)

                                melissa ann
                                Participant

                                  This is easy to do, just takes a minute…:)

                                  melissa ann
                                  Participant

                                    This is easy to do, just takes a minute…:)

                                    casagrayson
                                    Participant

                                      Done.  And posted on my Facebook page, so my friends are signing, too!

                                      DeniseK
                                      Participant

                                        Signed.  Wishing your family the best.

                                        Denise

                                        DeniseK
                                        Participant

                                          Signed.  Wishing your family the best.

                                          Denise

                                          DeniseK
                                          Participant

                                            Signed.  Wishing your family the best.

                                            Denise

                                            killmel
                                            Participant

                                              This is such a sad story. This is going to be an uphill battle  for Nick because so many people are in the same boat as NICK. Gosh, there are people on this blog that are in the same situation with families that are desparate.

                                              Merck & BMS have not granted anyone compassionate use of their PD1 drugs and more than likely will not because their drugs are not far along the approval process with the FDA.

                                              If anything, we need more people besides Nick to get petitions going so that MERCK & BMS will not refuse thousands of melanoma patients compassionate use. It is just too easy for Merck & BMS to refuse just one man, Nick.

                                              The reality of getting FDA approval for promising drugs is too long a process and this is just business as usual for Merck & BMS! 

                                              killmel
                                              Participant

                                                This is such a sad story. This is going to be an uphill battle  for Nick because so many people are in the same boat as NICK. Gosh, there are people on this blog that are in the same situation with families that are desparate.

                                                Merck & BMS have not granted anyone compassionate use of their PD1 drugs and more than likely will not because their drugs are not far along the approval process with the FDA.

                                                If anything, we need more people besides Nick to get petitions going so that MERCK & BMS will not refuse thousands of melanoma patients compassionate use. It is just too easy for Merck & BMS to refuse just one man, Nick.

                                                The reality of getting FDA approval for promising drugs is too long a process and this is just business as usual for Merck & BMS! 

                                                killmel
                                                Participant

                                                  This is such a sad story. This is going to be an uphill battle  for Nick because so many people are in the same boat as NICK. Gosh, there are people on this blog that are in the same situation with families that are desparate.

                                                  Merck & BMS have not granted anyone compassionate use of their PD1 drugs and more than likely will not because their drugs are not far along the approval process with the FDA.

                                                  If anything, we need more people besides Nick to get petitions going so that MERCK & BMS will not refuse thousands of melanoma patients compassionate use. It is just too easy for Merck & BMS to refuse just one man, Nick.

                                                  The reality of getting FDA approval for promising drugs is too long a process and this is just business as usual for Merck & BMS! 

                                                  Maureen038
                                                  Participant
                                                    I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                      Maureen038
                                                      Participant
                                                        I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                        Maureen038
                                                        Participant
                                                          I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                          Maureen038
                                                          Participant
                                                            I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                            Maureen038
                                                            Participant
                                                              I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                              Maureen038
                                                              Participant
                                                                I agree with this very sad statement. I signed the petition though. I think it needs to be a prominent story on tv or a newspaper like the New York Times or the Washington post. I know that Peter Whoriskey at the Washington post has written stories on pharmaceutical companies. I hope and pray that this works out for the family!
                                                              Tina D
                                                              Participant

                                                                Thank you for also sharing this here. I saw this on fb and signed the petition.

                                                                Tina

                                                                Tina D
                                                                Participant

                                                                  Thank you for also sharing this here. I saw this on fb and signed the petition.

                                                                  Tina

                                                                  Tina D
                                                                  Participant

                                                                    Thank you for also sharing this here. I saw this on fb and signed the petition.

                                                                    Tina

                                                                    casagrayson
                                                                    Participant

                                                                      Done.  And posted on my Facebook page, so my friends are signing, too!

                                                                      casagrayson
                                                                      Participant

                                                                        Done.  And posted on my Facebook page, so my friends are signing, too!

                                                                        Lisa – Aust
                                                                        Participant

                                                                          Hi I was just having a look through your blog as my husband is hopefully starting on the anti pd1 phase 3 trial in Sept. Sounds like you continue to have great results – I am sure your positive attitude also helps πŸ™‚

                                                                          All the best x

                                                                          Lisa – Aust
                                                                          Participant

                                                                            Hi I was just having a look through your blog as my husband is hopefully starting on the anti pd1 phase 3 trial in Sept. Sounds like you continue to have great results – I am sure your positive attitude also helps πŸ™‚

                                                                            All the best x

                                                                            Lisa – Aust
                                                                            Participant

                                                                              Hi I was just having a look through your blog as my husband is hopefully starting on the anti pd1 phase 3 trial in Sept. Sounds like you continue to have great results – I am sure your positive attitude also helps πŸ™‚

                                                                              All the best x

                                                                              Erinmay22
                                                                              Participant

                                                                                Hi Lisa – thanks so much!  Great that your husband is starting a pd1 trial in Sept.  is it one where he may get a chemo arm?  Luckily mine was still phase 1 and everyone got the drug – just different levels!  

                                                                                all the best to you too!

                                                                                Erinmay22
                                                                                Participant

                                                                                  Hi Lisa – thanks so much!  Great that your husband is starting a pd1 trial in Sept.  is it one where he may get a chemo arm?  Luckily mine was still phase 1 and everyone got the drug – just different levels!  

                                                                                  all the best to you too!

                                                                                  Erinmay22
                                                                                  Participant

                                                                                    Hi Lisa – thanks so much!  Great that your husband is starting a pd1 trial in Sept.  is it one where he may get a chemo arm?  Luckily mine was still phase 1 and everyone got the drug – just different levels!  

                                                                                    all the best to you too!

                                                                                    Lisa – Aust
                                                                                    Participant
                                                                                      We don’t have many details at all – apart from what the onc told us, and he mentioned it was either anti pd1 or ipi. And I possibly recall him saying there was a cross over option if he got ipi. Just gotta tick all the boxes – hopefully all goes smoothly πŸ™‚
                                                                                      Lisa – Aust
                                                                                      Participant
                                                                                        We don’t have many details at all – apart from what the onc told us, and he mentioned it was either anti pd1 or ipi. And I possibly recall him saying there was a cross over option if he got ipi. Just gotta tick all the boxes – hopefully all goes smoothly πŸ™‚
                                                                                        Lisa – Aust
                                                                                        Participant
                                                                                          We don’t have many details at all – apart from what the onc told us, and he mentioned it was either anti pd1 or ipi. And I possibly recall him saying there was a cross over option if he got ipi. Just gotta tick all the boxes – hopefully all goes smoothly πŸ™‚
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