› Forums › General Melanoma Community › Satellite Spot
- This topic has 15 replies, 4 voices, and was last updated 7 years, 6 months ago by
dmturner.
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- October 17, 2016 at 10:59 pm
I went to my doctor that did the Mohs procedure for my original melanoma on Thursday. Finaly, since 4/10/16 it is pretty much healed. In the well lit room I was able to see a couple spots close to the original site that had me concern before the doc came in. I pointed them out, he said they are not dark like melanomas but he did a biospy. Got the call today. POSITIVE FOR MELANOMA. What????? I thought we had clean margins?!?! What about the Yervoy?!? He said these might be satellite cells. So they want to do another Mohs procedure in the morning. Wait. What?! So I called my ocologist, spoke with the nurse, she said "get it out". My aunt who is nurse MD and specializes in skin cancer said to call my surgical oncologist. I did. The nurse calls back she said "Do not do the Mohs procedure." "It is fine for the first time". But for additional areas close to the original site not so much. So going to see oncologist on Wednesday anyways for my last Yervoy. Maybe, maybe not going to have the infusion.
Anyone else have this??
Donna
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- October 18, 2016 at 2:19 am
Where is this located? Mohs isn't typically done for melanoma unless it is Lentigo Maligna. Do you know your type of melanoma? Mohs uses frozen section techniques and melanocytes show up best under stains and paraffin sections. Mohs is great for the other skin cancers but really isn't the best for melanoma. And clean margins have never been considered "good enough" for melanoma because it is hard to catch every cell. Depending on your depth, 1cm margins are the standard of care for melanoma. 2cm if the lesion is deeper than 2mm.
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- October 18, 2016 at 2:19 am
Where is this located? Mohs isn't typically done for melanoma unless it is Lentigo Maligna. Do you know your type of melanoma? Mohs uses frozen section techniques and melanocytes show up best under stains and paraffin sections. Mohs is great for the other skin cancers but really isn't the best for melanoma. And clean margins have never been considered "good enough" for melanoma because it is hard to catch every cell. Depending on your depth, 1cm margins are the standard of care for melanoma. 2cm if the lesion is deeper than 2mm.
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- October 18, 2016 at 2:19 am
Where is this located? Mohs isn't typically done for melanoma unless it is Lentigo Maligna. Do you know your type of melanoma? Mohs uses frozen section techniques and melanocytes show up best under stains and paraffin sections. Mohs is great for the other skin cancers but really isn't the best for melanoma. And clean margins have never been considered "good enough" for melanoma because it is hard to catch every cell. Depending on your depth, 1cm margins are the standard of care for melanoma. 2cm if the lesion is deeper than 2mm.
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- October 18, 2016 at 10:05 am
Mohs for melanoma? No, no way, never except perhaps a very sensitive spot like part of the face where WLE is simply not possible. I quickly looked at your profile, a deep primary like yours needs a 2cm excision, no mucking around. I think you need to find a melanoma specialist. You are not getting gold-standard care and this is only going to cause you grief.
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- October 18, 2016 at 1:36 pm
Donna,
I wanted to tell you how I was treated..with essentially the same original condition.
I was diagnosed with a 3.7mm deep acral lentiginous melanoma on my left heel in 2010. I was treated with a 2 cm margin WLE and a SLNB. It seemed very aggressive at the time, but I was given no other options.
Fortunately, my SLNB was negative, but I had to have extensive reconstruction on my heel following the WLE. This involved a full-thickness graft from my right thigh…not the most pleasant experience…but effective. I am 6 years out and still NED.
Mark 2A
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- October 22, 2016 at 4:15 pm
I met with the oncologist and surgical oncologist on Wednesday. It was suppose to be my 4th infusion of Yervoy 10 mg. It was postponed. I will have a CT scan soon. No appointment yet. My oncologist postponed the Yervoy just in case we decide to do something else. The new melanoma sites are very small. I don't have the pathology report. The surgical oncologist said wait on the scan. Might do V-Tec injection but might have to wait for it to grow. Ummmm NO!! I just wished someone would of called me and made some kind of appointment for something. I will be on the phone on Monday.
Opt ouf ot CLND and did Yervoy instead. Stage 3A.
Donna
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- October 22, 2016 at 4:15 pm
I met with the oncologist and surgical oncologist on Wednesday. It was suppose to be my 4th infusion of Yervoy 10 mg. It was postponed. I will have a CT scan soon. No appointment yet. My oncologist postponed the Yervoy just in case we decide to do something else. The new melanoma sites are very small. I don't have the pathology report. The surgical oncologist said wait on the scan. Might do V-Tec injection but might have to wait for it to grow. Ummmm NO!! I just wished someone would of called me and made some kind of appointment for something. I will be on the phone on Monday.
Opt ouf ot CLND and did Yervoy instead. Stage 3A.
Donna
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- October 22, 2016 at 4:15 pm
I met with the oncologist and surgical oncologist on Wednesday. It was suppose to be my 4th infusion of Yervoy 10 mg. It was postponed. I will have a CT scan soon. No appointment yet. My oncologist postponed the Yervoy just in case we decide to do something else. The new melanoma sites are very small. I don't have the pathology report. The surgical oncologist said wait on the scan. Might do V-Tec injection but might have to wait for it to grow. Ummmm NO!! I just wished someone would of called me and made some kind of appointment for something. I will be on the phone on Monday.
Opt ouf ot CLND and did Yervoy instead. Stage 3A.
Donna
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- October 18, 2016 at 1:36 pm
Donna,
I wanted to tell you how I was treated..with essentially the same original condition.
I was diagnosed with a 3.7mm deep acral lentiginous melanoma on my left heel in 2010. I was treated with a 2 cm margin WLE and a SLNB. It seemed very aggressive at the time, but I was given no other options.
Fortunately, my SLNB was negative, but I had to have extensive reconstruction on my heel following the WLE. This involved a full-thickness graft from my right thigh…not the most pleasant experience…but effective. I am 6 years out and still NED.
Mark 2A
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- October 18, 2016 at 1:36 pm
Donna,
I wanted to tell you how I was treated..with essentially the same original condition.
I was diagnosed with a 3.7mm deep acral lentiginous melanoma on my left heel in 2010. I was treated with a 2 cm margin WLE and a SLNB. It seemed very aggressive at the time, but I was given no other options.
Fortunately, my SLNB was negative, but I had to have extensive reconstruction on my heel following the WLE. This involved a full-thickness graft from my right thigh…not the most pleasant experience…but effective. I am 6 years out and still NED.
Mark 2A
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- October 18, 2016 at 10:05 am
Mohs for melanoma? No, no way, never except perhaps a very sensitive spot like part of the face where WLE is simply not possible. I quickly looked at your profile, a deep primary like yours needs a 2cm excision, no mucking around. I think you need to find a melanoma specialist. You are not getting gold-standard care and this is only going to cause you grief.
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- October 18, 2016 at 10:05 am
Mohs for melanoma? No, no way, never except perhaps a very sensitive spot like part of the face where WLE is simply not possible. I quickly looked at your profile, a deep primary like yours needs a 2cm excision, no mucking around. I think you need to find a melanoma specialist. You are not getting gold-standard care and this is only going to cause you grief.
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Tagged: cutaneous melanoma
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