› Forums › General Melanoma Community › Saliva
- This topic has 9 replies, 6 voices, and was last updated 4 years, 6 months ago by PAbarb.
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- July 7, 2017 at 2:59 pm
After three Opdivo/Yervoy treatments, my husband had to stop treatment because of all the side effects. You can see previous posts with more detail. One thing still bothering him is very thick saliva that gets stuck in throat and makes it difficult to eat. He has tried so many things–from mouthwash to sinus meds (thinking it was just drainage). His oncologist says this is a rare side effect. His last treatment was May 16th and this is still goimg on! He needs to gain weight (lost forty lbs) and if he can just make this stop, eating would be a pleasure again.
I am hoping somone can offer some advice–thanks in advance!
Jim's wife
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- July 7, 2017 at 6:54 pm
One idea that comes to mind is Guaifenesin (Mucinex) it thins and loosens mucus. My elderly mother has asthma and sometimes gets a rattle in her chest, despite no cold. The doctor prescribes guaifenesin for a week or two at a time to help break up this rattle. You might check with your doctor to see if this could also help your husband in a similar way, worth a try! The side effects are minimal taken with plenty of water, has been effective for my mom! Hope this helps!
Swanee
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- July 7, 2017 at 9:26 pm
Thank you—I actually thought of that and asked a pharmacist about it. He said since it wasn't in his chest it wouldn't do any good! He recommended sudafed and a nasal spray. He has been trying that for a few days but so far it's not working.
Jim's wife
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- July 8, 2017 at 11:42 am
I disagree w pharmacist you spoke with; guaifenesin thins phlegm and mucus wherever. Used for sinus frequently and several oncology sites suggest trying it for thick saliva post radiation. It is fairly cheap and safe so worth a try. Need to drink plenty of liquid for it to work well. Also Biotene mouthwash or spray frequent rinsing gargling with salt water or baking soda.
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- July 7, 2017 at 9:31 pm
Dry mouth, mucositis, even oral ulcers, and things having a poor or bad taste has become more recognized as a potential side effect to immunotherapy. The "dry" feeling sounds like what your husband is dealing with – though each of us who have had it describe it a little differently. I had pretty significant problems with this when I was on nivo and though I tried many things, I can't say that anything helped tremendously. However, once off the treatment things gradually got better….though it did take time and even once better my oral issues would flare up periodically (still do) but become much less severe over time. Hopefully, your husband will begin to see improvements soon. Oddly enough, for me, as well as other little cancer patients on more typical chemo agents, lemonade, dill pickles and other foods along those lines…taste good and sort of cut through the mucus and dry mouth issues….though it seems like they would burn. Perhaps your husband may like them as well. I wish you both well. Celeste
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- July 11, 2017 at 1:40 pm
After my third combo dose my saliva glands stopped working. I tried every over the counter mouth moisterizer there is. The doctor prescribed me artifical saliva which worked for about 5 seconds. This continued for 11 weeks. I had to carry a bottle of water with me everywhere as my mouth and throat would get so dry I would choke. I also carried a bottel of water with baking soda and salt to keep my mouth rinsed out. During this time my breath became horrible and I had to chew gum or mints just to be able to speak to other people. I would get up through the night to rinse my mouth. Some times I would wake up with my tounge stuck to the roof of my mouth. It has been 8 months since my saliva glands started working again but for the first week after a dose of nivo my saliva still gets really thick. During the 11 weeks I had to change my diet to soups or dishes with gravies or sauces. Also during this time my taste buds became wierd. Anything with salt was so salty I could not eat it. Also anything with sugar was like eating sugar with a spoon. To this day I still have issues with sugar tasting extra sweet. I had lost 32 pounds during this time, I called it the melanoma diet, all you had to do to lose weight was just to wake up.
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- July 11, 2017 at 5:25 pm
My huband could be writing this….this describes his situation perfectly. You are on the Nivo alone at this time? He returns to the oncologist later this month to see if he begins with Nivo alone. It's a little better now that he stopped treatment with the two meds. I dread the thought that the issue could return again if he resumes–not sure if would continue.
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