Remission

It is hard to say, every individual is different. You can stay I’m remission or you can progress. I was diagnosed at stage 1, progresses to stage 3, than later to stage 4. Anyway I am doing well.
Good luck!

It is hard to say, every individual is different. You can stay I’m remission or you can progress. I was diagnosed at stage 1, progresses to stage 3, than later to stage 4. Anyway I am doing well.
Good luck!

It is hard to say, every individual is different. You can stay I’m remission or you can progress. I was diagnosed at stage 1, progresses to stage 3, than later to stage 4. Anyway I am doing well.
Good luck!

Janner, I think this is an extremely important point. Thank you for sharing.

Janner, I think this is an extremely important point. Thank you for sharing.

Janner, I think this is an extremely important point. Thank you for sharing.

Just wanted to add that remembering Janners point, is so important…I have to keep telling myself the same thing. 

Though I try not to obsess about it I am often wondering and worrying about when the next shoe is going to drop and something new will happen and move me to Stage IV…but  I have to remember that NOT all stage III patients, (even stage IIIB) progress to stage IV.  And to Janners point, the ones who dont rarely spend alot of time on these boards….as a result we read much more about the ones who do, and sometimes it feels like EVERYONE progresses to STAGE IV, which we know is not the case.

Lets remember the ones who aren't here, and are out lving thier lives, in the hopes more of us will be doing the same!

 

Best,

JEnny

 

Just wanted to add that remembering Janners point, is so important…I have to keep telling myself the same thing. 

Though I try not to obsess about it I am often wondering and worrying about when the next shoe is going to drop and something new will happen and move me to Stage IV…but  I have to remember that NOT all stage III patients, (even stage IIIB) progress to stage IV.  And to Janners point, the ones who dont rarely spend alot of time on these boards….as a result we read much more about the ones who do, and sometimes it feels like EVERYONE progresses to STAGE IV, which we know is not the case.

Lets remember the ones who aren't here, and are out lving thier lives, in the hopes more of us will be doing the same!

 

Best,

JEnny

 

My husband was diagnosed in Stage 4 melanoma cancer.The last two CT SCANS shows no sign of his cancer..He is in remission.From Stage 4 to remission is a blessing..He took two kinds of oral cancer meds and took lots of herbs..He is feeling much better..I believe in prayers.The right meds.The herbs and a positive attitude..He kept working and enjoyed his fishing,motorcycle runs,his hunting.He is always busy doing something.Cancer never slowed him down.I am so happy that he his living his life to the fullest..

Just wanted to add that remembering Janners point, is so important…I have to keep telling myself the same thing. 

Though I try not to obsess about it I am often wondering and worrying about when the next shoe is going to drop and something new will happen and move me to Stage IV…but  I have to remember that NOT all stage III patients, (even stage IIIB) progress to stage IV.  And to Janners point, the ones who dont rarely spend alot of time on these boards….as a result we read much more about the ones who do, and sometimes it feels like EVERYONE progresses to STAGE IV, which we know is not the case.

Lets remember the ones who aren't here, and are out lving thier lives, in the hopes more of us will be doing the same!

 

Best,

JEnny

 

Thank you for posting this, Janner. For those of us newly diagnosed, your points are important for us to remember. I read way too much about melanoma; can't help myself as I believe knowledge is power. But too much can be overwhelming. 

 

 

Thank you for posting this, Janner. For those of us newly diagnosed, your points are important for us to remember. I read way too much about melanoma; can't help myself as I believe knowledge is power. But too much can be overwhelming. 

 

 

Thank you for posting this, Janner. For those of us newly diagnosed, your points are important for us to remember. I read way too much about melanoma; can't help myself as I believe knowledge is power. But too much can be overwhelming. 

 

 

Hi Vicky

Having your questions answered is very important.

I had access to a specialist melanoma nurse who would answer my questions when I emailed them to her or refer them to someone who could. Have you asked whether there is a similar facility at your treatment centre?

When my anterior pituitary packed up (side effect of Ipi) the nurses who were part of the endocrine team were very different and not at all approachable. I managed to find a specialist pituitary nurse who works for a pirtuitary charity in the UK. Again, she has answered the questions I have emailed her and that has been great.

So my first bit of advice would be to try and find out if there are any specilaist nurses who can help you.

Even if you can't find a specialist nurse or similar, keep asking those questions. And not just about the melanoma but about every step of the treatment and the possible outcomes of each procedure.

Like me and the Ipi. I asked my questions. I knew the risks. I am resigned to my anterior pituitary packing up.

And it's OK to be scared. Just don't let it take over.

All the best

Moira

Hi Vicky

Having your questions answered is very important.

I had access to a specialist melanoma nurse who would answer my questions when I emailed them to her or refer them to someone who could. Have you asked whether there is a similar facility at your treatment centre?

When my anterior pituitary packed up (side effect of Ipi) the nurses who were part of the endocrine team were very different and not at all approachable. I managed to find a specialist pituitary nurse who works for a pirtuitary charity in the UK. Again, she has answered the questions I have emailed her and that has been great.

So my first bit of advice would be to try and find out if there are any specilaist nurses who can help you.

Even if you can't find a specialist nurse or similar, keep asking those questions. And not just about the melanoma but about every step of the treatment and the possible outcomes of each procedure.

Like me and the Ipi. I asked my questions. I knew the risks. I am resigned to my anterior pituitary packing up.

And it's OK to be scared. Just don't let it take over.

All the best

Moira

Hi Vicky

Having your questions answered is very important.

I had access to a specialist melanoma nurse who would answer my questions when I emailed them to her or refer them to someone who could. Have you asked whether there is a similar facility at your treatment centre?

When my anterior pituitary packed up (side effect of Ipi) the nurses who were part of the endocrine team were very different and not at all approachable. I managed to find a specialist pituitary nurse who works for a pirtuitary charity in the UK. Again, she has answered the questions I have emailed her and that has been great.

So my first bit of advice would be to try and find out if there are any specilaist nurses who can help you.

Even if you can't find a specialist nurse or similar, keep asking those questions. And not just about the melanoma but about every step of the treatment and the possible outcomes of each procedure.

Like me and the Ipi. I asked my questions. I knew the risks. I am resigned to my anterior pituitary packing up.

And it's OK to be scared. Just don't let it take over.

All the best

Moira

Hello

I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions. 

By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx

Best wishes

Shamaine xxx 

Hi Vicky!!!!

So far, so good for me!  Stage IV and No Evidence of Active Disease.  I know how you feel. I was so scared and will admit that I still am, but I also have so much hope!  

Prayers for you and all of us!!!!  No one fights alone!

Terrie

Hi Vicky!!!!

So far, so good for me!  Stage IV and No Evidence of Active Disease.  I know how you feel. I was so scared and will admit that I still am, but I also have so much hope!  

Prayers for you and all of us!!!!  No one fights alone!

Terrie

Hi Vicky!!!!

So far, so good for me!  Stage IV and No Evidence of Active Disease.  I know how you feel. I was so scared and will admit that I still am, but I also have so much hope!  

Prayers for you and all of us!!!!  No one fights alone!

Terrie

Hello

I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions. 

By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx

Best wishes

Shamaine xxx 

Hello

I think another lady just posted today who is 2 years NED ane was at an advanced stage. Not sure where you are in the world but in the UK there are several cancer charities and you can email them with questions. Also macmillan cancer research ahs a similar facility where you can email questions. 

By the way I think you're incredibly brave, especially being able to openly acknowledge how scared you are … praying for you xxx

Best wishes

Shamaine xxx