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Recently diagnosed and need some help please!
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Recently diagnosed and need some help please!

› Forums › General Melanoma Community › Recently diagnosed and need some help please!

  • Post
    • March 2, 2019 at 2:48 pm
    bandj5
    Participant

      Good Morning! Recently diagnosed and not sure what to think. Hoping someone can give me some insight and what to possibly expect going forward. Pathology report says, superficial spreading transcending to deep and lateral margins, 1.2 mm, mitotic rate 7, at least a Clark’s Level IV, and no ulceration. Just completed PET scan and found to be clear. Scheduled for lymph node mapping and SLNB with wide local excision to follow on Monday. How serious is this? Thank you!

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    • Replies
        • March 4, 2019 at 3:10 am
        MikeInAK
        Participant

          I wanted to respod, as your inquiry had not had any replies.   Sounds like you are on the right path for the usual standard of care.   The next steps of the SLN mapping and biopsy will tell you more about how serious it could be.  It is GREAT that your PET scan was clear, mine was not.   Its hard to predict and surmise until the procedures are done and the experts are able to review the pathologies if some mets are found.   

          I hope it goes well for you tommorow, I and many others have been down this road.  There is a lot of support and good information here on this fourm.  You can read the posts and some of the great information about this disease that is affecting us all.  Check back in as you move through the process, we are here to help as much as we can with each other's journeys through the process of fighting progression and recovery.  

            • March 5, 2019 at 10:03 pm
            bandj5
            Participant

              Thank you for responding to my post! Sore today from yesterday’s procedure. Took out 3 lymph nodes in groin area along with cancer spot. I go for follow up in 2 weeks. So now I guess it’s just a waiting game, correct? Just don’t know what to think, like how serious this is. Will continue to search this website for answers. Thanks again!

              • March 5, 2019 at 11:28 pm
              MikeInAK
              Participant

                I understand, the pain for the SLNB was a lot more for me that the WLE done at the asme time.  Yes, think you are in the waiting game until the pathology comes back on the lymph node biopsies.   If your PET scan was clear, I would think positive that you will have a negative results.  That would be good news for your staging and path forward for monitoring for futher potential occurance.   We all go through the worrying game, just keep positive attitude and don't dwell on the worse case scenerios.  

                Peace

                • March 6, 2019 at 3:27 pm
                bandj5
                Participant

                  Thank you for your encouraging words! Can I ask how you are currently doing?

                  • March 6, 2019 at 7:31 pm
                  MikeInAK
                  Participant

                    I am in the adjuvant treatment phase with NED post surgeries.   Today will be my 4th infusion of Opdivo, and checkup scans are a few months out.   So, doing good at this point is what I would say.  I seem to handle the Nivo OK, and hopeful it stays that way and it does its job for any cleanup needed.  

                    • March 8, 2019 at 1:41 am
                    bandj5
                    Participant

                      I am praying that everything continues to go well for you and you receive good news on your check up scans! You sound like a strong person so continue fighting and encouraging others as you did for me. Thank you!

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