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questions about stereotactic brain radiation

Forums General Melanoma Community questions about stereotactic brain radiation

  • Post
    SarahW
    Participant

      Hi all,

      Hi all,

      Just back from Moffitt last night. My husband has 2 brain mets, one is 2.6 mm the other 2.7 mm. We are kind of stunned, but I suppose we shouldn't be. He's on Vemurafenib. He was on XL888 with the Vemurafenib, however XL888 has been d/c'd due to brain mets. He's off study now. The tumors in abdomen and lungs etc are stable. Oncologist is proposing stereotactic radiation.  Is this the same thing as Gamma Knife? Oncologist said it would be a "one time targeted radiation of just the tumors, not the whole brain." If you or your family member has had this procedure how did you/they feel after the procedure? Any particular side effects on the day of or after treatment?

       

      Thanks so much for your input.

      Sarah

      http://www.thelaundrythief.blogspot.com

    Viewing 14 reply threads
    • Replies
        jmmm
        Participant
          My husband had gamma knife…I know there’s a difference…on has a mask, one has a framE screwed into their head. I know there’s more difference, but i don’t know the difference. Mike’s was the frame…getting it put on was tough…even with the meds, but it was quick. It was a long day, but minus the pain from putting the frame on and a headache (1 percocet was all the pain meds he needed) he did fine. As soon as the frame came off, he felt like a million bucks. We stopped for a big meal of burger and fries on the way home. Not sure about normal recovery (he had a craniotomy 3 weeks before gamma knife). He had minimal pain..maybe a couple of tyleonol and was tired, but nothing major. He did lose his hair in the area of the tumor…it was near the surface of his brain. He was steroids and anti-seizure meds and was not allowed to drive for 3 months (I think the 3 months was because of the combination of craniotomy and gamma knife, but I’m fairly sure there is a driving restriction for a length of time after brain radiation). He also ended up with radiation induced necrossis about 8 months later (a possible side effect we were unaware of). It’s being controlled with steroids and anti-seizure meds.
          jmmm
          Participant
            My husband had gamma knife…I know there’s a difference…on has a mask, one has a framE screwed into their head. I know there’s more difference, but i don’t know the difference. Mike’s was the frame…getting it put on was tough…even with the meds, but it was quick. It was a long day, but minus the pain from putting the frame on and a headache (1 percocet was all the pain meds he needed) he did fine. As soon as the frame came off, he felt like a million bucks. We stopped for a big meal of burger and fries on the way home. Not sure about normal recovery (he had a craniotomy 3 weeks before gamma knife). He had minimal pain..maybe a couple of tyleonol and was tired, but nothing major. He did lose his hair in the area of the tumor…it was near the surface of his brain. He was steroids and anti-seizure meds and was not allowed to drive for 3 months (I think the 3 months was because of the combination of craniotomy and gamma knife, but I’m fairly sure there is a driving restriction for a length of time after brain radiation). He also ended up with radiation induced necrossis about 8 months later (a possible side effect we were unaware of). It’s being controlled with steroids and anti-seizure meds.
            jmmm
            Participant
              My husband had gamma knife…I know there’s a difference…on has a mask, one has a framE screwed into their head. I know there’s more difference, but i don’t know the difference. Mike’s was the frame…getting it put on was tough…even with the meds, but it was quick. It was a long day, but minus the pain from putting the frame on and a headache (1 percocet was all the pain meds he needed) he did fine. As soon as the frame came off, he felt like a million bucks. We stopped for a big meal of burger and fries on the way home. Not sure about normal recovery (he had a craniotomy 3 weeks before gamma knife). He had minimal pain..maybe a couple of tyleonol and was tired, but nothing major. He did lose his hair in the area of the tumor…it was near the surface of his brain. He was steroids and anti-seizure meds and was not allowed to drive for 3 months (I think the 3 months was because of the combination of craniotomy and gamma knife, but I’m fairly sure there is a driving restriction for a length of time after brain radiation). He also ended up with radiation induced necrossis about 8 months later (a possible side effect we were unaware of). It’s being controlled with steroids and anti-seizure meds.
              POW
              Participant

                "Gamma Knife" is a trademark name for one manuracturer's machine used for stereotactic radiosurgery (SRS). "Cyber Knife" is another trademark name. My brother had SRS to the brain at Moffitt. It was a simple procedure (from the patient's perspective) and he had no side effects ofther than feeling fatigued for a day or two.

                POW
                Participant

                  "Gamma Knife" is a trademark name for one manuracturer's machine used for stereotactic radiosurgery (SRS). "Cyber Knife" is another trademark name. My brother had SRS to the brain at Moffitt. It was a simple procedure (from the patient's perspective) and he had no side effects ofther than feeling fatigued for a day or two.

                  POW
                  Participant

                    "Gamma Knife" is a trademark name for one manuracturer's machine used for stereotactic radiosurgery (SRS). "Cyber Knife" is another trademark name. My brother had SRS to the brain at Moffitt. It was a simple procedure (from the patient's perspective) and he had no side effects ofther than feeling fatigued for a day or two.

                    gostan
                    Participant
                      I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                      gostan
                      Participant
                        I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                        gostan
                        Participant
                          I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                          gostan
                          Participant
                            I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                            gostan
                            Participant
                              I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                              gostan
                              Participant
                                I underwent SRS last Friday for a single brain met. the procedure went smoothly with no side effects other than feeling crappy from the Kepra and prednisone that i was put on prior to and after the radiation. I went in a week before the procedure to have a mask made and measurements taken. Best of luck!
                                SarahW
                                Participant

                                  Thank you to everyone for your speedy replies. This gives us an idea of what to expect. Thanks again

                                   

                                  SarahW

                                  SarahW
                                  Participant

                                    Thank you to everyone for your speedy replies. This gives us an idea of what to expect. Thanks again

                                     

                                    SarahW

                                    SarahW
                                    Participant

                                      Thank you to everyone for your speedy replies. This gives us an idea of what to expect. Thanks again

                                       

                                      SarahW

                                      POW
                                      Participant

                                        By the way, when my brother got SRS at Moffitt they used the custom made plastic face mask, not the metal head frame. Just so you know what to expect.

                                        POW
                                        Participant

                                          By the way, when my brother got SRS at Moffitt they used the custom made plastic face mask, not the metal head frame. Just so you know what to expect.

                                          POW
                                          Participant

                                            By the way, when my brother got SRS at Moffitt they used the custom made plastic face mask, not the metal head frame. Just so you know what to expect.

                                            gostan
                                            Participant
                                              The custom made mask is really not too uncomfortable….just a little bit too Hannibal Lecter looking.
                                              gostan
                                              Participant
                                                The custom made mask is really not too uncomfortable….just a little bit too Hannibal Lecter looking.
                                                gostan
                                                Participant
                                                  The custom made mask is really not too uncomfortable….just a little bit too Hannibal Lecter looking.
                                                  POW
                                                  Participant

                                                    Yeah. I suggested that my brother save his– it would make a GREAT Halloween mask!

                                                    POW
                                                    Participant

                                                      Yeah. I suggested that my brother save his– it would make a GREAT Halloween mask!

                                                      POW
                                                      Participant

                                                        Yeah. I suggested that my brother save his– it would make a GREAT Halloween mask!

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