Purchasing drugs out of a trial setting?
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Purchasing drugs out of a trial setting?

› Forums › General Melanoma Community › Purchasing drugs out of a trial setting?

  • Post
    • June 15, 2012 at 12:30 pm
    deardad
    Participant

    This sounds really crazy but has anyone heard of ones purchasing braf inhibitors online? Im think my dad is eligible for any trials and therefore is basically left to die. I know that if they had given him the MEK maybe there would be chance or more time. I found a company that sells Dabrafenib PLX-4032 1000mg $2,900.00 and a MEK inhibitor for a similar price. Is this extreme and I'm getting deluded or has anyone thought about this possibility?

    Thanks

    Nahmi from Melbourne

    This sounds really crazy but has anyone heard of ones purchasing braf inhibitors online? Im think my dad is eligible for any trials and therefore is basically left to die. I know that if they had given him the MEK maybe there would be chance or more time. I found a company that sells Dabrafenib PLX-4032 1000mg $2,900.00 and a MEK inhibitor for a similar price. Is this extreme and I'm getting deluded or has anyone thought about this possibility?

    Thanks

    Nahmi from Melbourne

Viewing 5 reply threads
  • Replies
      • June 15, 2012 at 2:06 pm
      Linny
      Participant

      I don't know that I'd trust any company selling these drugs out of a trial setting. How would you know you're actually getting the drug and that the company isn't out to take advantage of people in a desperate situation? 

      • June 15, 2012 at 2:06 pm
      Linny
      Participant

      I don't know that I'd trust any company selling these drugs out of a trial setting. How would you know you're actually getting the drug and that the company isn't out to take advantage of people in a desperate situation? 

      • June 15, 2012 at 2:06 pm
      Linny
      Participant

      I don't know that I'd trust any company selling these drugs out of a trial setting. How would you know you're actually getting the drug and that the company isn't out to take advantage of people in a desperate situation? 

      • June 15, 2012 at 5:47 pm
      LynnLuc
      Participant

      Have you considered bringing him stateside? I know Moffitt Cancer Center has many people coming from foreign countries for melanoma treatment.

      • June 15, 2012 at 5:47 pm
      LynnLuc
      Participant

      Have you considered bringing him stateside? I know Moffitt Cancer Center has many people coming from foreign countries for melanoma treatment.

        • June 15, 2012 at 5:54 pm
        LynnLuc
        Participant

        PS  you would still need your doctor to prescribe it even if you purchased it on line.

        • June 15, 2012 at 5:54 pm
        LynnLuc
        Participant

        PS  you would still need your doctor to prescribe it even if you purchased it on line.

        • June 15, 2012 at 5:54 pm
        LynnLuc
        Participant

        PS  you would still need your doctor to prescribe it even if you purchased it on line.

        • June 15, 2012 at 8:30 pm
        Linny
        Participant

        You're right, Lynn! That thought didn't even occur to me. surprise

        Nahmi, Johns Hopkins is also excellent. When I've gone for my shots, I've met people from as far away as Argentina.

        Go to http : // www . hopkins medicine . org/ and you'll see a link for international patients (remove the spaces and then copy and paste the link to your browser. The link to Johns Hopkins is triggering the spam filter so I can't post a direct link for you.

        • June 15, 2012 at 8:30 pm
        Linny
        Participant

        You're right, Lynn! That thought didn't even occur to me. surprise

        Nahmi, Johns Hopkins is also excellent. When I've gone for my shots, I've met people from as far away as Argentina.

        Go to http : // www . hopkins medicine . org/ and you'll see a link for international patients (remove the spaces and then copy and paste the link to your browser. The link to Johns Hopkins is triggering the spam filter so I can't post a direct link for you.

        • June 15, 2012 at 8:30 pm
        Linny
        Participant

        You're right, Lynn! That thought didn't even occur to me. surprise

        Nahmi, Johns Hopkins is also excellent. When I've gone for my shots, I've met people from as far away as Argentina.

        Go to http : // www . hopkins medicine . org/ and you'll see a link for international patients (remove the spaces and then copy and paste the link to your browser. The link to Johns Hopkins is triggering the spam filter so I can't post a direct link for you.

        • June 15, 2012 at 10:41 pm
        deardad
        Participant

        Hi thanks for al responses, I don't think my dad will travel to the US for treatment. This company that sells these drugs is called Active BioChem. I too am a sceptical but just feel that since he has been on Temador it has done nothing. We haven't had scans yet but he has a new visible lesion on the skin and the other old ones are not shrinking. It's kind of our last chance here since there are so few options in Australia trial wise once you have brain mets. I have even thought about Zelboraf reinduction since we have about a month supply left since he progressed.

        Suppose like any one else watching a loved one go through this you just want to do what ever you can to give them more time.

        Thanks again

        Nahmi from Melbourne

        • June 15, 2012 at 10:41 pm
        deardad
        Participant

        Hi thanks for al responses, I don't think my dad will travel to the US for treatment. This company that sells these drugs is called Active BioChem. I too am a sceptical but just feel that since he has been on Temador it has done nothing. We haven't had scans yet but he has a new visible lesion on the skin and the other old ones are not shrinking. It's kind of our last chance here since there are so few options in Australia trial wise once you have brain mets. I have even thought about Zelboraf reinduction since we have about a month supply left since he progressed.

        Suppose like any one else watching a loved one go through this you just want to do what ever you can to give them more time.

        Thanks again

        Nahmi from Melbourne

        • June 15, 2012 at 10:41 pm
        deardad
        Participant

        Hi thanks for al responses, I don't think my dad will travel to the US for treatment. This company that sells these drugs is called Active BioChem. I too am a sceptical but just feel that since he has been on Temador it has done nothing. We haven't had scans yet but he has a new visible lesion on the skin and the other old ones are not shrinking. It's kind of our last chance here since there are so few options in Australia trial wise once you have brain mets. I have even thought about Zelboraf reinduction since we have about a month supply left since he progressed.

        Suppose like any one else watching a loved one go through this you just want to do what ever you can to give them more time.

        Thanks again

        Nahmi from Melbourne

      • June 15, 2012 at 5:47 pm
      LynnLuc
      Participant

      Have you considered bringing him stateside? I know Moffitt Cancer Center has many people coming from foreign countries for melanoma treatment.

Viewing 5 reply threads
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