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PET scan results

Forums General Melanoma Community PET scan results

  • Post
    janP
    Participant

       Thank you all for your bravery and sharing of stories and information.  I lurk here on occasion, but now I need some feedback.  Originally diagnosed in 1992, I'm stage IV since l998, with 2 subsequent bouts of mets….no surgery since 2000, however I did have a new insitu melanoma and a regressed melanoma in 2005.  A recent PET scan shows FDG accumulation in left supra hilum which corresponds to a  lymph node with SUV 2.77 measuring 1.2 cm x 1.1 cm.  No other hypermetabolic activity noted.

       

      Thank you all for your bravery and sharing of stories and information.  I lurk here on occasion, but now I need some feedback.  Originally diagnosed in 1992, I'm stage IV since l998, with 2 subsequent bouts of mets….no surgery since 2000, however I did have a new insitu melanoma and a regressed melanoma in 2005.  A recent PET scan shows FDG accumulation in left supra hilum which corresponds to a  lymph node with SUV 2.77 measuring 1.2 cm x 1.1 cm.  No other hypermetabolic activity noted.   I have been very viligant and proactive in my care…doing scans every 3 months for all these years.  Because of the frequency of my monitoring all mets have been diagnosed by scan before any symptoms have had a chance to appear.  My oncologist is out of the country on vacation, and his office has scheduled an appointment with a pulmonary specialist on Nov 11.  I feel this is too long to wait.  Any feedback would be so appreciated. 

      janP

    Viewing 8 reply threads
    • Replies
        jimjoeb
        Participant

          I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?

          jimjoeb
          Participant

            I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?

            jimjoeb
            Participant

              I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?

              FormerCaregiver
              Participant

                An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
                See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848

                However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
                melanoma, I feel that surgery (if possible) is the best initial treatment option,
                especially if the tumour burden is low. Therefore, it would be an idea to consult a
                surgical oncologist soon.

                Hope this helps.

                Frank from Australia

                FormerCaregiver
                Participant

                  An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
                  See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848

                  However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
                  melanoma, I feel that surgery (if possible) is the best initial treatment option,
                  especially if the tumour burden is low. Therefore, it would be an idea to consult a
                  surgical oncologist soon.

                  Hope this helps.

                  Frank from Australia

                  FormerCaregiver
                  Participant

                    An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
                    See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848

                    However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
                    melanoma, I feel that surgery (if possible) is the best initial treatment option,
                    especially if the tumour burden is low. Therefore, it would be an idea to consult a
                    surgical oncologist soon.

                    Hope this helps.

                    Frank from Australia

                    djpayn
                    Participant

                      Hi Jan,

                       

                      In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.

                      after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.

                      Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.

                      My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.

                       

                      Good luck to you.

                       

                      Djpayn

                      djpayn
                      Participant

                        Hi Jan,

                         

                        In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.

                        after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.

                        Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.

                        My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.

                         

                        Good luck to you.

                         

                        Djpayn

                        djpayn
                        Participant

                          Hi Jan,

                           

                          In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.

                          after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.

                          Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.

                          My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.

                           

                          Good luck to you.

                           

                          Djpayn

                      Viewing 8 reply threads
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