› Forums › General Melanoma Community › PET scan results
- This topic has 9 replies, 3 voices, and was last updated 13 years, 3 months ago by djpayn.
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- October 17, 2011 at 9:10 pm
Thank you all for your bravery and sharing of stories and information. I lurk here on occasion, but now I need some feedback. Originally diagnosed in 1992, I'm stage IV since l998, with 2 subsequent bouts of mets….no surgery since 2000, however I did have a new insitu melanoma and a regressed melanoma in 2005. A recent PET scan shows FDG accumulation in left supra hilum which corresponds to a lymph node with SUV 2.77 measuring 1.2 cm x 1.1 cm. No other hypermetabolic activity noted.
Thank you all for your bravery and sharing of stories and information. I lurk here on occasion, but now I need some feedback. Originally diagnosed in 1992, I'm stage IV since l998, with 2 subsequent bouts of mets….no surgery since 2000, however I did have a new insitu melanoma and a regressed melanoma in 2005. A recent PET scan shows FDG accumulation in left supra hilum which corresponds to a lymph node with SUV 2.77 measuring 1.2 cm x 1.1 cm. No other hypermetabolic activity noted. I have been very viligant and proactive in my care…doing scans every 3 months for all these years. Because of the frequency of my monitoring all mets have been diagnosed by scan before any symptoms have had a chance to appear. My oncologist is out of the country on vacation, and his office has scheduled an appointment with a pulmonary specialist on Nov 11. I feel this is too long to wait. Any feedback would be so appreciated.
janP
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- October 17, 2011 at 10:01 pm
I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?
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- October 17, 2011 at 10:01 pm
I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?
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- October 17, 2011 at 10:01 pm
I had a nodule show up on a recent PET/Ct scan. Because it's in the same area as my lymph dissection, the surgeon requested an ultrasound. Can your oncologist's office (or back up) or you family doctor get something like that started so that the results would be available for the return of your oncologist?
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- October 20, 2011 at 2:07 am
An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
melanoma, I feel that surgery (if possible) is the best initial treatment option,
especially if the tumour burden is low. Therefore, it would be an idea to consult a
surgical oncologist soon.Hope this helps.
Frank from Australia
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- October 20, 2011 at 2:07 am
An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
melanoma, I feel that surgery (if possible) is the best initial treatment option,
especially if the tumour burden is low. Therefore, it would be an idea to consult a
surgical oncologist soon.Hope this helps.
Frank from Australia
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- October 20, 2011 at 2:07 am
An SUV (Standardized Uptake Value) of 2.77 could be a sign that the node is malignant.
See: http://www.oncolink.org/experts/article.cfm?c=4&s=36&ss=116&id=1848However, a biopsy is the most accurate way of diagnosing a malignant tumour. If it is
melanoma, I feel that surgery (if possible) is the best initial treatment option,
especially if the tumour burden is low. Therefore, it would be an idea to consult a
surgical oncologist soon.Hope this helps.
Frank from Australia
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- October 21, 2011 at 1:31 pm
Hi Jan,
In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.
after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.
Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.
My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.
Good luck to you.
Djpayn
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- October 21, 2011 at 1:31 pm
Hi Jan,
In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.
after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.
Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.
My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.
Good luck to you.
Djpayn
-
- October 21, 2011 at 1:31 pm
Hi Jan,
In late 2008 early 2009 when i was battling my disease actively, i had the hilar node show up in a scan with an increased uptake but no real hyper metabolic activity. i was sent to a thoracic surgeon who reviewed my scans and immediately wanted to schedule me for a full right lung removal. I was told at the time that because of the location of the possibly infected node, a needle biopsy was not available to me and removing the entire lung would be in my best interest. I was also told (i was 34 at the time) that there was a 50% chance i would not wake up from the surgery due to the node basically laying against a major artery. my mom was with me and we both left in shock.
after alot of conversation i chose to wait a few weeks and re-scan. Instead of doing a PET i requested a simple CT instead. The CT showed that the node was no where near as large as they thought and there was minimal uptake of the serum. I said no thank you to the surgeon and kept my lung.
Fast forward 3 years and I am still NED, and occasionally the node lights up on the scan. Sometimes it does not light up. Not 1 doctor can explain to me why this node reacts the way it does… yet it has not grown in 3 years, so we leave it alone.
My suggestion to you is not to panic and to request another scan. Preferrably a CT since you tend to get fewer false positives.
Good luck to you.
Djpayn
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