Pet Scan Results
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Pet Scan Results

› Forums › General Melanoma Community › Pet Scan Results

  • Post
    • May 4, 2016 at 8:47 pm
    JoshF
    Participant

    I had my PET Scan today and wasn't good news. There was an 8cm x 6cm mass around the intestines that lit up. Also something lit up by chest wall but didn't show a mass. It's been 6 months since my last scan and since I started PD-1. Unfortunately looks like I'm not a responder….disappointing.

    Next steps are CT Scan on Friday to get a "better read" on this. Seems like that tumor grew fast which scares me that this crap is getting more aggressive. My onc didn;t want to discuss in detail next steps until Friday but said we have options. I've been fortunate in so many ways and on the other hand I can't seem to catch a break. I'm tired and scared. I pray for all of us daily and fight to remain hopeful.

    Josh

Viewing 38 reply threads
  • Replies
      • May 4, 2016 at 9:21 pm
      m355
      Participant

      sorry to hear the news.  I know it can be discouraging but hopefully there is something else out there that you respond better to.  Praying for you!

      • May 4, 2016 at 9:21 pm
      m355
      Participant

      sorry to hear the news.  I know it can be discouraging but hopefully there is something else out there that you respond better to.  Praying for you!

      • May 4, 2016 at 9:21 pm
      m355
      Participant

      sorry to hear the news.  I know it can be discouraging but hopefully there is something else out there that you respond better to.  Praying for you!

      • May 4, 2016 at 9:51 pm
      Bubbles
      Participant

      Oh, Josh!!!  I'm so sorry.  I've been thinking about you!!!  I just hate that.  I know you are sick of all of it.  It just wears on one doesn't it?  Hang in there!!!  Get that CT.  Then we'll all get to planning!!!  There ARE options and we will find them!!!!  Love, c

      • May 4, 2016 at 9:51 pm
      Bubbles
      Participant

      Oh, Josh!!!  I'm so sorry.  I've been thinking about you!!!  I just hate that.  I know you are sick of all of it.  It just wears on one doesn't it?  Hang in there!!!  Get that CT.  Then we'll all get to planning!!!  There ARE options and we will find them!!!!  Love, c

      • May 4, 2016 at 9:51 pm
      Bubbles
      Participant

      Oh, Josh!!!  I'm so sorry.  I've been thinking about you!!!  I just hate that.  I know you are sick of all of it.  It just wears on one doesn't it?  Hang in there!!!  Get that CT.  Then we'll all get to planning!!!  There ARE options and we will find them!!!!  Love, c

      • May 4, 2016 at 10:06 pm
      Polymath
      Participant

      Josh,

      Hang in there and perhaps the news will improve with the CT.  As most know, PET scan measures metabiolic activity, and there's lots of reasons things light up.  I had the same scare recently with a glowing mass in my bowel that had never been seen before, but after the CT, it appeared there was nothing there.  Best wishes for good results and PD-1 response.

      Gary

      • May 4, 2016 at 10:06 pm
      Polymath
      Participant

      Josh,

      Hang in there and perhaps the news will improve with the CT.  As most know, PET scan measures metabiolic activity, and there's lots of reasons things light up.  I had the same scare recently with a glowing mass in my bowel that had never been seen before, but after the CT, it appeared there was nothing there.  Best wishes for good results and PD-1 response.

      Gary

      • May 4, 2016 at 10:06 pm
      Polymath
      Participant

      Josh,

      Hang in there and perhaps the news will improve with the CT.  As most know, PET scan measures metabiolic activity, and there's lots of reasons things light up.  I had the same scare recently with a glowing mass in my bowel that had never been seen before, but after the CT, it appeared there was nothing there.  Best wishes for good results and PD-1 response.

      Gary

      • May 4, 2016 at 10:30 pm
      BrianP
      Participant

      Sorry Josh.  I'm really bummed for you.  I'm glad your doc has ideas on options.  Even just the last few days on here I've heard of some pretty cool trials going on that I hadn't heard of before.  Best of luck to you.

      Brian

      • May 4, 2016 at 10:30 pm
      BrianP
      Participant

      Sorry Josh.  I'm really bummed for you.  I'm glad your doc has ideas on options.  Even just the last few days on here I've heard of some pretty cool trials going on that I hadn't heard of before.  Best of luck to you.

      Brian

      • May 4, 2016 at 10:30 pm
      BrianP
      Participant

      Sorry Josh.  I'm really bummed for you.  I'm glad your doc has ideas on options.  Even just the last few days on here I've heard of some pretty cool trials going on that I hadn't heard of before.  Best of luck to you.

      Brian

      • May 4, 2016 at 10:48 pm
      gregor913
      Participant
      I’m sorry to hear this Josh. Hopefully after the ct it is a false light up. I will be saying a prayer for you tonight. Your doctor says there are options so try to keep your head up. My family always tells me act how you feel. Your strong and young. Greg
      • May 4, 2016 at 10:48 pm
      gregor913
      Participant
      I’m sorry to hear this Josh. Hopefully after the ct it is a false light up. I will be saying a prayer for you tonight. Your doctor says there are options so try to keep your head up. My family always tells me act how you feel. Your strong and young. Greg
      • May 4, 2016 at 10:48 pm
      gregor913
      Participant
      I’m sorry to hear this Josh. Hopefully after the ct it is a false light up. I will be saying a prayer for you tonight. Your doctor says there are options so try to keep your head up. My family always tells me act how you feel. Your strong and young. Greg
      • May 5, 2016 at 12:22 am
      WithinMySkin
      Participant
      I’m terribly sorry, Josh. As others have said, hopefully the CT says there’s nothing to be concerned about. After the CT, make sure you go and do something fun with the family to get your mind off things. Praying for good news for you!
      • May 5, 2016 at 12:22 am
      WithinMySkin
      Participant
      I’m terribly sorry, Josh. As others have said, hopefully the CT says there’s nothing to be concerned about. After the CT, make sure you go and do something fun with the family to get your mind off things. Praying for good news for you!
      • May 5, 2016 at 12:22 am
      WithinMySkin
      Participant
      I’m terribly sorry, Josh. As others have said, hopefully the CT says there’s nothing to be concerned about. After the CT, make sure you go and do something fun with the family to get your mind off things. Praying for good news for you!
      • May 5, 2016 at 2:08 am
      Mat
      Participant

      Josh, no words.  Melanoma sucks.  They could tell me I was NED tomorrow and I'd never believe that it would last.

      • May 5, 2016 at 2:08 am
      Mat
      Participant

      Josh, no words.  Melanoma sucks.  They could tell me I was NED tomorrow and I'd never believe that it would last.

      • May 5, 2016 at 2:08 am
      Mat
      Participant

      Josh, no words.  Melanoma sucks.  They could tell me I was NED tomorrow and I'd never believe that it would last.

      • May 5, 2016 at 2:26 am
      Mark_DC
      Participant

      Hi Josh, am not an expert but am hoping that the ct scan will be better, also am hoping actually that you are a responder after all. Good luck will be praying for you and good results

      • May 5, 2016 at 2:26 am
      Mark_DC
      Participant

      Hi Josh, am not an expert but am hoping that the ct scan will be better, also am hoping actually that you are a responder after all. Good luck will be praying for you and good results

      • May 5, 2016 at 2:26 am
      Mark_DC
      Participant

      Hi Josh, am not an expert but am hoping that the ct scan will be better, also am hoping actually that you are a responder after all. Good luck will be praying for you and good results

      • May 5, 2016 at 3:11 pm
      Bradley75
      Participant

      Josh,

      Praying for you that you will find strength and peace to deal with whatever tomorrow's scan shows.  We are all behind you hopong and praying for the best for you and your family.

      Brad

      • May 5, 2016 at 3:11 pm
      Bradley75
      Participant

      Josh,

      Praying for you that you will find strength and peace to deal with whatever tomorrow's scan shows.  We are all behind you hopong and praying for the best for you and your family.

      Brad

      • May 5, 2016 at 3:11 pm
      Bradley75
      Participant

      Josh,

      Praying for you that you will find strength and peace to deal with whatever tomorrow's scan shows.  We are all behind you hopong and praying for the best for you and your family.

      Brad

      • May 5, 2016 at 3:17 pm
      Scooby123
      Participant

      Hi Josh,

      hope all goes well on Friday for results for you. Good that you onc has got options for you.

      be strong and deal with it one day at a time. 

      Scooby123❤️

      • May 5, 2016 at 3:17 pm
      Scooby123
      Participant

      Hi Josh,

      hope all goes well on Friday for results for you. Good that you onc has got options for you.

      be strong and deal with it one day at a time. 

      Scooby123❤️

      • May 5, 2016 at 3:17 pm
      Scooby123
      Participant

      Hi Josh,

      hope all goes well on Friday for results for you. Good that you onc has got options for you.

      be strong and deal with it one day at a time. 

      Scooby123❤️

      • May 5, 2016 at 5:27 pm
      casagrayson
      Participant

      Well, that is crappy!!  Let's hope the PET was a false positive, and you'll be able to just move on with the PD-1.  If not, there are options, and you'll use them to tackle this head-on!

      • May 5, 2016 at 5:27 pm
      casagrayson
      Participant

      Well, that is crappy!!  Let's hope the PET was a false positive, and you'll be able to just move on with the PD-1.  If not, there are options, and you'll use them to tackle this head-on!

      • May 5, 2016 at 5:27 pm
      casagrayson
      Participant

      Well, that is crappy!!  Let's hope the PET was a false positive, and you'll be able to just move on with the PD-1.  If not, there are options, and you'll use them to tackle this head-on!

      • May 5, 2016 at 8:57 pm
      DZnDef
      Participant

      Hi Josh,  What harsh news to hear!  Maybe the CT scan will give better news.  Regardless, I hope you get this beast under control soon.

      • May 5, 2016 at 8:57 pm
      DZnDef
      Participant

      Hi Josh,  What harsh news to hear!  Maybe the CT scan will give better news.  Regardless, I hope you get this beast under control soon.

      • May 5, 2016 at 8:57 pm
      DZnDef
      Participant

      Hi Josh,  What harsh news to hear!  Maybe the CT scan will give better news.  Regardless, I hope you get this beast under control soon.

      • May 6, 2016 at 12:22 am
      jenny22
      Participant

      HI Josh-

      Really sorry to read this tonight…..as everyone has already said, lets hope the CT may prove to be better news, and IF not, then as Celeste said, you'll (we"ll) start planning…..

      For now, sneding you good thoughts…..and hoping for better news.

      best,

      jenny

      • May 6, 2016 at 12:22 am
      jenny22
      Participant

      HI Josh-

      Really sorry to read this tonight…..as everyone has already said, lets hope the CT may prove to be better news, and IF not, then as Celeste said, you'll (we"ll) start planning…..

      For now, sneding you good thoughts…..and hoping for better news.

      best,

      jenny

      • May 6, 2016 at 12:22 am
      jenny22
      Participant

      HI Josh-

      Really sorry to read this tonight…..as everyone has already said, lets hope the CT may prove to be better news, and IF not, then as Celeste said, you'll (we"ll) start planning…..

      For now, sneding you good thoughts…..and hoping for better news.

      best,

      jenny

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