› Forums › General Melanoma Community › Pathology Results
- This topic has 63 replies, 12 voices, and was last updated 9 years, 9 months ago by
jenny22.
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- October 29, 2015 at 8:10 pm
Don't have path in front of me but got call earlier from derm. Approx. a 4mm well circuscribed nodlue of melanoma. Stained positive for Melan-A, negative for HMB-45….doesn't appear to be a lymphnode. Lymphocytes present….whatever that means. But basiclly said it's a sub-q metastatic leison. He sent path to oncologist. I'm seeing oncologist tomorrow….don't think I'll be doing scan tomorrow but I know the drill….just hoping it's just a dermal leison and hasn't spread anywhere else since I had last PET 3 months ago….
This shit is unreal…
Josh
- Replies
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- October 29, 2015 at 9:09 pm
Sorry to hear about it. What is next step going to be?.
My scan is in January,and it is always scary time.
Hope is the best.
Liberty -
- October 29, 2015 at 9:09 pm
Sorry to hear about it. What is next step going to be?.
My scan is in January,and it is always scary time.
Hope is the best.
Liberty -
- October 29, 2015 at 9:09 pm
Sorry to hear about it. What is next step going to be?.
My scan is in January,and it is always scary time.
Hope is the best.
Liberty -
- October 29, 2015 at 11:16 pm
Dang Josh. At least it seems you caught the recurrence early. Good luck.
Artie
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- October 29, 2015 at 11:16 pm
Dang Josh. At least it seems you caught the recurrence early. Good luck.
Artie
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- November 1, 2015 at 11:51 pm
Hey Josh. I'm doing ok. Thought we had the pain under control with this 12 hour morphine pill until last night I woke up at 1:20 with scream level pain in the front of my left leg and hip. Got it under control again with an oxy codone. I guess these pills don't always release right. I dunno.
Still can't walk very much any more. Couple minutes then I have to sit due to the pain. But then after a bit I try again.
My mayo doc called and among other things about my spine said we should add chemo to the pd1. So that made me feel better maybe this mda doc is trying to do right. Also they saw nothing wrong with the spine cement or any displaced spinal cord. So that's good too. I don't have pain in my mid back just a little in lower back so I tend to agree. Lots of pain in left leg and hip though.
On the 9th I get my second dose of the keytruda abraxane combo so we shall see. The abraxane so far seems like no side affects. Just constipation and mild stomach issues from the pain meds and laxatives. Oh and tired a lot.
Artie
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- November 1, 2015 at 11:51 pm
Hey Josh. I'm doing ok. Thought we had the pain under control with this 12 hour morphine pill until last night I woke up at 1:20 with scream level pain in the front of my left leg and hip. Got it under control again with an oxy codone. I guess these pills don't always release right. I dunno.
Still can't walk very much any more. Couple minutes then I have to sit due to the pain. But then after a bit I try again.
My mayo doc called and among other things about my spine said we should add chemo to the pd1. So that made me feel better maybe this mda doc is trying to do right. Also they saw nothing wrong with the spine cement or any displaced spinal cord. So that's good too. I don't have pain in my mid back just a little in lower back so I tend to agree. Lots of pain in left leg and hip though.
On the 9th I get my second dose of the keytruda abraxane combo so we shall see. The abraxane so far seems like no side affects. Just constipation and mild stomach issues from the pain meds and laxatives. Oh and tired a lot.
Artie
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- November 1, 2015 at 11:51 pm
Hey Josh. I'm doing ok. Thought we had the pain under control with this 12 hour morphine pill until last night I woke up at 1:20 with scream level pain in the front of my left leg and hip. Got it under control again with an oxy codone. I guess these pills don't always release right. I dunno.
Still can't walk very much any more. Couple minutes then I have to sit due to the pain. But then after a bit I try again.
My mayo doc called and among other things about my spine said we should add chemo to the pd1. So that made me feel better maybe this mda doc is trying to do right. Also they saw nothing wrong with the spine cement or any displaced spinal cord. So that's good too. I don't have pain in my mid back just a little in lower back so I tend to agree. Lots of pain in left leg and hip though.
On the 9th I get my second dose of the keytruda abraxane combo so we shall see. The abraxane so far seems like no side affects. Just constipation and mild stomach issues from the pain meds and laxatives. Oh and tired a lot.
Artie
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- November 2, 2015 at 1:06 am
Sorry about all your pain Artie. I know you weren't thrilled about what transpired at MDA and afterwards so good that you feel it's turning around. Wishing you strength and healing my friend! You're an inspiration!! Looking forward to hearing from you soon. Be well!
Josh
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- November 2, 2015 at 1:06 am
Sorry about all your pain Artie. I know you weren't thrilled about what transpired at MDA and afterwards so good that you feel it's turning around. Wishing you strength and healing my friend! You're an inspiration!! Looking forward to hearing from you soon. Be well!
Josh
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- November 2, 2015 at 1:06 am
Sorry about all your pain Artie. I know you weren't thrilled about what transpired at MDA and afterwards so good that you feel it's turning around. Wishing you strength and healing my friend! You're an inspiration!! Looking forward to hearing from you soon. Be well!
Josh
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- October 29, 2015 at 11:16 pm
Dang Josh. At least it seems you caught the recurrence early. Good luck.
Artie
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- October 29, 2015 at 11:54 pm
Wow… So sorry, Josh! You truly have been on a roller coaster. Wishing you the best!
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- October 29, 2015 at 11:54 pm
Wow… So sorry, Josh! You truly have been on a roller coaster. Wishing you the best!
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- October 29, 2015 at 11:54 pm
Wow… So sorry, Josh! You truly have been on a roller coaster. Wishing you the best!
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- October 30, 2015 at 12:42 pm
Josh, very sorry for the confirmation of melanoma, but I hope you are right and it's a dermal lesion, it does sound like that is the case and hopefully it's all localized in that location. My husband has had a similar path to yours in how his melanoma presents so I understand the frustration. Many thoughts and prayers for quick treatment and recovery.
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- October 30, 2015 at 12:42 pm
Josh, very sorry for the confirmation of melanoma, but I hope you are right and it's a dermal lesion, it does sound like that is the case and hopefully it's all localized in that location. My husband has had a similar path to yours in how his melanoma presents so I understand the frustration. Many thoughts and prayers for quick treatment and recovery.
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- October 30, 2015 at 12:42 pm
Josh, very sorry for the confirmation of melanoma, but I hope you are right and it's a dermal lesion, it does sound like that is the case and hopefully it's all localized in that location. My husband has had a similar path to yours in how his melanoma presents so I understand the frustration. Many thoughts and prayers for quick treatment and recovery.
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- October 30, 2015 at 3:08 pm
The hits just keep coming. Crap. It's small, you caught it, you're being vigilant. Prayers for peace as you tackle this once more.
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- October 30, 2015 at 3:08 pm
The hits just keep coming. Crap. It's small, you caught it, you're being vigilant. Prayers for peace as you tackle this once more.
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- October 30, 2015 at 3:08 pm
The hits just keep coming. Crap. It's small, you caught it, you're being vigilant. Prayers for peace as you tackle this once more.
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- October 30, 2015 at 3:50 pm
Thanks MPIP Family! Really appreciate the support as I know we've all had and continue to have our struggles. I guess all I can hope for is that Pet is negative. I'm seeing oncologist at 3pm CST today and she is hoping to squeeze me in for scan Monday. Let's go for best case scenario!!!!! Take care of yourselves!!!'
Josh
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- October 30, 2015 at 3:50 pm
Thanks MPIP Family! Really appreciate the support as I know we've all had and continue to have our struggles. I guess all I can hope for is that Pet is negative. I'm seeing oncologist at 3pm CST today and she is hoping to squeeze me in for scan Monday. Let's go for best case scenario!!!!! Take care of yourselves!!!'
Josh
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- October 30, 2015 at 3:50 pm
Thanks MPIP Family! Really appreciate the support as I know we've all had and continue to have our struggles. I guess all I can hope for is that Pet is negative. I'm seeing oncologist at 3pm CST today and she is hoping to squeeze me in for scan Monday. Let's go for best case scenario!!!!! Take care of yourselves!!!'
Josh
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- October 31, 2015 at 2:06 am
Josh
So sorry to hear it's back; although, I've had a bunch of sub q's removed surgically. Prayers that your pet shows no spreading. Stay positive and know we are all sending happy thoughts to you.
Stay strong,
Tricia
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- November 1, 2015 at 3:30 pm
Josh-
I've been following your entire melanoma journey…..so much anxiety and stress……i am sorry to read your latest and of course hope it will be only the subq and nothing more….
I think you said it best….."this shit is unreal"…
Sending yo lots of well wishes and good thoughts.
jenny
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- November 1, 2015 at 3:30 pm
Josh-
I've been following your entire melanoma journey…..so much anxiety and stress……i am sorry to read your latest and of course hope it will be only the subq and nothing more….
I think you said it best….."this shit is unreal"…
Sending yo lots of well wishes and good thoughts.
jenny
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- November 1, 2015 at 3:30 pm
Josh-
I've been following your entire melanoma journey…..so much anxiety and stress……i am sorry to read your latest and of course hope it will be only the subq and nothing more….
I think you said it best….."this shit is unreal"…
Sending yo lots of well wishes and good thoughts.
jenny
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- November 2, 2015 at 4:18 am
Josh,
Just checking to see how things were going. I hope you got my reply to your message the other day. Any suggestions from your doctor yet?-
- November 3, 2015 at 1:50 am
Hey Jaime-
Thanks I did get your reply Thursday…much appreciated. So I saw doc late Friday afternoon. She set up Pet/Ct for first thing this morning but unfortunately I won't see her until tomorrow at 4 for results. So she went over path report with me…looked me over for any other lumps and then discussed options.
Negative Pet/CT- I'll have surgery. Though margins were clear….need to go in and take more. She also discussed a trial that Dr. Luke has for Stage IV adjuvant. I guess he sent her some info. This is obviously best case scenario and what I'm really hoping for.
If something comes back somewhere else on scan she said we will go right to systemic treatment. Sounded like she'd want to try and do the new approved combo. If there is something else and can be resected, I'd like to do that and then do some adjuvant theraphy. She said they would have nothing to measure treatment against etc… Don't they do that for other cancers….breast? If anyone reads this please share your thoughts or experiences….
Finally, I discussed going somewhere…traveling to MD, Sloan etc… She said always an option and she knows many of them but doesn't feel thay'd offer much more at this point. Similar to what Dr Luke told me in the past. I'll have a good idea tomorrow….just real anxious at this point…million thoughts running through this head of mine.
Thanks for checking in…really appreciate it!!!!
Josh
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- November 3, 2015 at 1:50 am
Hey Jaime-
Thanks I did get your reply Thursday…much appreciated. So I saw doc late Friday afternoon. She set up Pet/Ct for first thing this morning but unfortunately I won't see her until tomorrow at 4 for results. So she went over path report with me…looked me over for any other lumps and then discussed options.
Negative Pet/CT- I'll have surgery. Though margins were clear….need to go in and take more. She also discussed a trial that Dr. Luke has for Stage IV adjuvant. I guess he sent her some info. This is obviously best case scenario and what I'm really hoping for.
If something comes back somewhere else on scan she said we will go right to systemic treatment. Sounded like she'd want to try and do the new approved combo. If there is something else and can be resected, I'd like to do that and then do some adjuvant theraphy. She said they would have nothing to measure treatment against etc… Don't they do that for other cancers….breast? If anyone reads this please share your thoughts or experiences….
Finally, I discussed going somewhere…traveling to MD, Sloan etc… She said always an option and she knows many of them but doesn't feel thay'd offer much more at this point. Similar to what Dr Luke told me in the past. I'll have a good idea tomorrow….just real anxious at this point…million thoughts running through this head of mine.
Thanks for checking in…really appreciate it!!!!
Josh
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- November 3, 2015 at 1:50 am
Hey Jaime-
Thanks I did get your reply Thursday…much appreciated. So I saw doc late Friday afternoon. She set up Pet/Ct for first thing this morning but unfortunately I won't see her until tomorrow at 4 for results. So she went over path report with me…looked me over for any other lumps and then discussed options.
Negative Pet/CT- I'll have surgery. Though margins were clear….need to go in and take more. She also discussed a trial that Dr. Luke has for Stage IV adjuvant. I guess he sent her some info. This is obviously best case scenario and what I'm really hoping for.
If something comes back somewhere else on scan she said we will go right to systemic treatment. Sounded like she'd want to try and do the new approved combo. If there is something else and can be resected, I'd like to do that and then do some adjuvant theraphy. She said they would have nothing to measure treatment against etc… Don't they do that for other cancers….breast? If anyone reads this please share your thoughts or experiences….
Finally, I discussed going somewhere…traveling to MD, Sloan etc… She said always an option and she knows many of them but doesn't feel thay'd offer much more at this point. Similar to what Dr Luke told me in the past. I'll have a good idea tomorrow….just real anxious at this point…million thoughts running through this head of mine.
Thanks for checking in…really appreciate it!!!!
Josh
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- November 3, 2015 at 3:03 am
Josh,
I replied to this before so might get 2 posts again. Just throwing some ideas at you. Dr Luke’s trials can be found on U of C website but he has told me some things are in the works that he cant quite let out yet. Also i tried to get into a arm of the same trial that Celest was in at Moffit but the trial closed. However i was contacted by Allison the trial nurse at Moffit a few weeks ago about the pembro vs placebo trial. When talking with her she informed me that Dr Weber will be opening the same trial at nyu for ipi/nivo combo for N.E.D people once he gets settled she said he got his nurses together and told them that. Obviously not sure on the timeline for that and things can play out many different ways for you. Nyu trial would be tough logistically but can be done. I’m kinda in the boat you are…HOPEFULLY after my next surgery im rendered 3c N.E.D and will be looking at adjuvant trials also. I may even consider a vaccine trial. I dont think i can just do watch and wait. Adjuvant trials are tricky your right as there is no disease to monitor. Dr Luke has made some good points to me as far as there is no evidence that these drugs dont do just as well if you catch reccurance early and then your not opening yourself up to auto immune side effects if by Gods grace it doesn’t come back. -
- November 3, 2015 at 3:03 am
Josh,
I replied to this before so might get 2 posts again. Just throwing some ideas at you. Dr Luke’s trials can be found on U of C website but he has told me some things are in the works that he cant quite let out yet. Also i tried to get into a arm of the same trial that Celest was in at Moffit but the trial closed. However i was contacted by Allison the trial nurse at Moffit a few weeks ago about the pembro vs placebo trial. When talking with her she informed me that Dr Weber will be opening the same trial at nyu for ipi/nivo combo for N.E.D people once he gets settled she said he got his nurses together and told them that. Obviously not sure on the timeline for that and things can play out many different ways for you. Nyu trial would be tough logistically but can be done. I’m kinda in the boat you are…HOPEFULLY after my next surgery im rendered 3c N.E.D and will be looking at adjuvant trials also. I may even consider a vaccine trial. I dont think i can just do watch and wait. Adjuvant trials are tricky your right as there is no disease to monitor. Dr Luke has made some good points to me as far as there is no evidence that these drugs dont do just as well if you catch reccurance early and then your not opening yourself up to auto immune side effects if by Gods grace it doesn’t come back. -
- November 3, 2015 at 3:03 am
Josh,
I replied to this before so might get 2 posts again. Just throwing some ideas at you. Dr Luke’s trials can be found on U of C website but he has told me some things are in the works that he cant quite let out yet. Also i tried to get into a arm of the same trial that Celest was in at Moffit but the trial closed. However i was contacted by Allison the trial nurse at Moffit a few weeks ago about the pembro vs placebo trial. When talking with her she informed me that Dr Weber will be opening the same trial at nyu for ipi/nivo combo for N.E.D people once he gets settled she said he got his nurses together and told them that. Obviously not sure on the timeline for that and things can play out many different ways for you. Nyu trial would be tough logistically but can be done. I’m kinda in the boat you are…HOPEFULLY after my next surgery im rendered 3c N.E.D and will be looking at adjuvant trials also. I may even consider a vaccine trial. I dont think i can just do watch and wait. Adjuvant trials are tricky your right as there is no disease to monitor. Dr Luke has made some good points to me as far as there is no evidence that these drugs dont do just as well if you catch reccurance early and then your not opening yourself up to auto immune side effects if by Gods grace it doesn’t come back.
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- November 2, 2015 at 5:58 pm
Sorry this news is melanoma again, I agree whole heartedly with you Josh…..it is unreal!! Sometimes it just feels like a bad dream you keep waking up with and when you finally fall back asleep, there it is again! Sometimes the anxiety of it all feels like the worst part! Wishing you peace of mind and heart as you negotiate your way with this next recurrence. I've been cutting these little intruders out as much as possible, not the standard treatment, but each time it feels like the best option for me. Thinking of you and sending positive thoughts to you and your family, for strength, courage and calmness as you tackle this next obstacle.
Swanee
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- November 2, 2015 at 5:58 pm
Sorry this news is melanoma again, I agree whole heartedly with you Josh…..it is unreal!! Sometimes it just feels like a bad dream you keep waking up with and when you finally fall back asleep, there it is again! Sometimes the anxiety of it all feels like the worst part! Wishing you peace of mind and heart as you negotiate your way with this next recurrence. I've been cutting these little intruders out as much as possible, not the standard treatment, but each time it feels like the best option for me. Thinking of you and sending positive thoughts to you and your family, for strength, courage and calmness as you tackle this next obstacle.
Swanee
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- November 2, 2015 at 5:58 pm
Sorry this news is melanoma again, I agree whole heartedly with you Josh…..it is unreal!! Sometimes it just feels like a bad dream you keep waking up with and when you finally fall back asleep, there it is again! Sometimes the anxiety of it all feels like the worst part! Wishing you peace of mind and heart as you negotiate your way with this next recurrence. I've been cutting these little intruders out as much as possible, not the standard treatment, but each time it feels like the best option for me. Thinking of you and sending positive thoughts to you and your family, for strength, courage and calmness as you tackle this next obstacle.
Swanee
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