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  • Post
    • July 16, 2015 at 1:02 am
    Joe.Pro
    Participant

      I officially begin the ipi/nivo combo next week at Mass General in Boston.  I'm ready to wake up my immune system and evict these cells outa my body!

      Anyone else here having success with this combo treatment?  

      Joe

    Viewing 14 reply threads
    • Replies
        • July 16, 2015 at 1:19 am
        Eileensulliv
        Participant

          Hi Joe! I started the ipi/nivo trial at Hopkins in late February. I could only tolerate the one dose of ipi and nivo. I started having fevers, nausea, vomiting, and shortness of breath about 5 days after my first treatment. I had hyperthyroidism, and had to start a med for that plus prednisone. But my tutors started shrinking after that one dose! And once things got back to "normal", I started treatments again, but this time just nivo. And I am still seeing some shrinking tumors!

          Since then, diarrhea and fatigue have been my biggest issues, but manageable. I've also had some peeling hands and feet, and my hair has thinned a lot. That could be because of the thyroid, and I'm not expected to lose it all. All in all, the side effects have been minimal and tolerable, and I consider myself one very lucky woman!  I wish you the best!!!

          • July 16, 2015 at 1:19 am
          Eileensulliv
          Participant

            Hi Joe! I started the ipi/nivo trial at Hopkins in late February. I could only tolerate the one dose of ipi and nivo. I started having fevers, nausea, vomiting, and shortness of breath about 5 days after my first treatment. I had hyperthyroidism, and had to start a med for that plus prednisone. But my tutors started shrinking after that one dose! And once things got back to "normal", I started treatments again, but this time just nivo. And I am still seeing some shrinking tumors!

            Since then, diarrhea and fatigue have been my biggest issues, but manageable. I've also had some peeling hands and feet, and my hair has thinned a lot. That could be because of the thyroid, and I'm not expected to lose it all. All in all, the side effects have been minimal and tolerable, and I consider myself one very lucky woman!  I wish you the best!!!

            • July 16, 2015 at 1:19 am
            Eileensulliv
            Participant

              Hi Joe! I started the ipi/nivo trial at Hopkins in late February. I could only tolerate the one dose of ipi and nivo. I started having fevers, nausea, vomiting, and shortness of breath about 5 days after my first treatment. I had hyperthyroidism, and had to start a med for that plus prednisone. But my tutors started shrinking after that one dose! And once things got back to "normal", I started treatments again, but this time just nivo. And I am still seeing some shrinking tumors!

              Since then, diarrhea and fatigue have been my biggest issues, but manageable. I've also had some peeling hands and feet, and my hair has thinned a lot. That could be because of the thyroid, and I'm not expected to lose it all. All in all, the side effects have been minimal and tolerable, and I consider myself one very lucky woman!  I wish you the best!!!

              • July 16, 2015 at 2:37 am
              BrianP
              Participant

                Good luck Joe.  Let the eviction begin!

                  • July 16, 2015 at 12:18 pm
                  tschmith
                  Participant

                    Yah!!!!!!!!!   Good Luck!  Terrie

                    • July 16, 2015 at 12:18 pm
                    tschmith
                    Participant

                      Yah!!!!!!!!!   Good Luck!  Terrie

                      • July 16, 2015 at 12:18 pm
                      tschmith
                      Participant

                        Yah!!!!!!!!!   Good Luck!  Terrie

                      • July 16, 2015 at 2:37 am
                      BrianP
                      Participant

                        Good luck Joe.  Let the eviction begin!

                        • July 16, 2015 at 2:37 am
                        BrianP
                        Participant

                          Good luck Joe.  Let the eviction begin!

                          • July 16, 2015 at 2:07 pm
                          dentholla
                          Participant

                            Best of luck to you!!!

                            • July 16, 2015 at 2:07 pm
                            dentholla
                            Participant

                              Best of luck to you!!!

                              • July 16, 2015 at 2:07 pm
                              dentholla
                              Participant

                                Best of luck to you!!!

                                • July 16, 2015 at 5:53 pm
                                jbronicki
                                Participant

                                  good luck, hoping for great news!

                                  • July 16, 2015 at 5:53 pm
                                  jbronicki
                                  Participant

                                    good luck, hoping for great news!

                                    • July 16, 2015 at 5:53 pm
                                    jbronicki
                                    Participant

                                      good luck, hoping for great news!

                                      • July 17, 2015 at 2:56 am
                                      AshleyS
                                      Participant

                                        Hey Joe! I did this trial at MD Anderson (March 2015 – April 2015). At first I had a crazy rash that showed up 12 hours after my first infusion on all my "cancer spots." I made it through 3 of the 4 combo treatments. I then got seriously ill and was kicked out of the trial. BUT……my scans were awesome!!!! All my subq tumors are gone. My liver lesions are 80-90% reduced. I did one more dose of plain old Yervoy and am on Opdivo now. I have my next set of scans in mid-August. GOOD LUCK!!!!

                                        Ashley

                                        • July 17, 2015 at 2:56 am
                                        AshleyS
                                        Participant

                                          Hey Joe! I did this trial at MD Anderson (March 2015 – April 2015). At first I had a crazy rash that showed up 12 hours after my first infusion on all my "cancer spots." I made it through 3 of the 4 combo treatments. I then got seriously ill and was kicked out of the trial. BUT……my scans were awesome!!!! All my subq tumors are gone. My liver lesions are 80-90% reduced. I did one more dose of plain old Yervoy and am on Opdivo now. I have my next set of scans in mid-August. GOOD LUCK!!!!

                                          Ashley

                                          • July 17, 2015 at 2:56 am
                                          AshleyS
                                          Participant

                                            Hey Joe! I did this trial at MD Anderson (March 2015 – April 2015). At first I had a crazy rash that showed up 12 hours after my first infusion on all my "cancer spots." I made it through 3 of the 4 combo treatments. I then got seriously ill and was kicked out of the trial. BUT……my scans were awesome!!!! All my subq tumors are gone. My liver lesions are 80-90% reduced. I did one more dose of plain old Yervoy and am on Opdivo now. I have my next set of scans in mid-August. GOOD LUCK!!!!

                                            Ashley

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