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Our Situation

Forums General Melanoma Community Our Situation

  • Post
    Johnjk04
    Participant

      Happy New Year's to all!!!!! Just wanted to share my story with all of you. In 2008 I was diagnosed with a 4.1 mm melanoma lesion. Everything held together until 2012, then the zhit hit the fan. My melanoma spread to my brain, both lungs, kidney, gall bladder, liver and left adrenal gland. The only item that pleased me was a $100K life insurance policy offered at my employment without a medical exam. At this point in my life I accepted the fact that my time on earth was becoming quite limited, At this time period stage IV patients had an 11% chance of making two years. Then hot jeeper's crow, Dr Allison and Dr. Honjo brought upon us some marvelous immunotherapy therapies, Yervoy, Opdivo and Keytruda, (we should be seeing them in the news instead of the Kardahians constantly). I was so fortunate to be accepted in the very first clinical trial with the Opdivo and Yervoy therapies. At times I hardly ate for two weeks, hardly slept for a couple of weeks and just kept realizing my time was coming to an end. In August 2018, I to my surprise, was declared NED. Our group of 53 in the trial, had an 80% survival rate after two years. All of us are so fortunate to be living in the cusp of immunotherapy treatments, never has the oncology world seen such an improvement in patient's lives. So I am going to give all of you – hope. Hope is the only item that can defeat fear. Stay well, stay happy and keep all of the hope in your back pocket.

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    • Replies
        Bubbles
        Participant

          Awesome post to start 2019, John!!!  Love it!!!  Melanoma steals a lot from us personally, with some still paying the ultimate price.  BUT!!!!!!!!!!!!!!!!!  We've come a long way, baby!!!  May more ratties make those survival rates 100% for EVERYONE!

          Love you bunches, my friend.  May your coming year be filled with love and adventures!  celeste

          Coragirl
          Participant

            Thank you for sharing your story,it is the stories from the survivors that keep us all going! I remember when my husband had his first appointment with his oncologist and she said "it's a great time to have melanoma" I have heard that sentiment from his other doctors too . Immunotherapy is helping so many patients live longer. Thank you for the hope John.

            sing123
            Participant

              Thanks so much for this, John. Wow! Thanks for posting great hope on this NY day.

              AMcReader
              Participant

                Hi John! Thank you for sharing your wonderful story of hope on this New Year’s Day! There is no better way to start the year. Cheers to you and yours and decades of being NED!

                jbronicki
                Participant

                  Hey John, Here's to a NED 2019 for you and many many more years of disease free living!  Those two year survival numbers for your clinical trial are pretty amazing compared to other treatments.  That truly is a huge ray of hope for any one with the disease or those of us that may get this in the future.  Just makes you want to hug all those researchers out there that work tirelessly on pursuing this knowledge and discovery.  Many cheers to immunotherapy! 

                  Anastasia
                  Participant

                    Thank you so much for your post.

                    So happy for everyone who made it though, we still have a lot of trials ahead, your post gives us hope.

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