Opdivo/Yervoy and itching

Melanoma in my brain, lungs, liver, adrenal gland and gall bladder at the start of 2012. Started the ippi/nivo trial and itched real bad for a little over 2 years. Nothing seemed to relieve it. As of Aug. 2012 there has been no evidence of cancer. So we just have to keep in our minds that the constant itch is part of the de-cancering process. No itch now and NED for 3 1/2 years. Best wishes to you.

Melanoma in my brain, lungs, liver, adrenal gland and gall bladder at the start of 2012. Started the ippi/nivo trial and itched real bad for a little over 2 years. Nothing seemed to relieve it. As of Aug. 2012 there has been no evidence of cancer. So we just have to keep in our minds that the constant itch is part of the de-cancering process. No itch now and NED for 3 1/2 years. Best wishes to you.

Melanoma in my brain, lungs, liver, adrenal gland and gall bladder at the start of 2012. Started the ippi/nivo trial and itched real bad for a little over 2 years. Nothing seemed to relieve it. As of Aug. 2012 there has been no evidence of cancer. So we just have to keep in our minds that the constant itch is part of the de-cancering process. No itch now and NED for 3 1/2 years. Best wishes to you.

My husband is Stage 4 and on the opdivo/yervoy combo. Like you my husband is in good health other than the cancer ofcourse (humor always helps). Before he started treament he had mets in his liver, lower back and shoulder. After the fourth infusion he had a PET scan and it showed NED. We are very thankful the treatment is working. He will continue Opdivo every two weeks for an indefinite amouont of time. His side effects started after the 3rd round. SIde effects were itching, headache, fatigue and loss of appetite. He had mild nasuea and diahrea,  After the 3rd round his doctor prescribed prednisone or oral steriods. He prescribed 10 MG a day with further discussions of tapering off.

His itching was pretty bad and we tried all kinds of stuff like you, but what worked was the steriods. Without the steriods he feels pretty awful and with the steroids he feels somewhat 'normal'.  You may ask your Onc about this to see if this is right for you.

I hope for the best of luck for you with your treatment!

My husband is Stage 4 and on the opdivo/yervoy combo. Like you my husband is in good health other than the cancer ofcourse (humor always helps). Before he started treament he had mets in his liver, lower back and shoulder. After the fourth infusion he had a PET scan and it showed NED. We are very thankful the treatment is working. He will continue Opdivo every two weeks for an indefinite amouont of time. His side effects started after the 3rd round. SIde effects were itching, headache, fatigue and loss of appetite. He had mild nasuea and diahrea,  After the 3rd round his doctor prescribed prednisone or oral steriods. He prescribed 10 MG a day with further discussions of tapering off.

His itching was pretty bad and we tried all kinds of stuff like you, but what worked was the steriods. Without the steriods he feels pretty awful and with the steroids he feels somewhat 'normal'.  You may ask your Onc about this to see if this is right for you.

I hope for the best of luck for you with your treatment!

My husband is Stage 4 and on the opdivo/yervoy combo. Like you my husband is in good health other than the cancer ofcourse (humor always helps). Before he started treament he had mets in his liver, lower back and shoulder. After the fourth infusion he had a PET scan and it showed NED. We are very thankful the treatment is working. He will continue Opdivo every two weeks for an indefinite amouont of time. His side effects started after the 3rd round. SIde effects were itching, headache, fatigue and loss of appetite. He had mild nasuea and diahrea,  After the 3rd round his doctor prescribed prednisone or oral steriods. He prescribed 10 MG a day with further discussions of tapering off.

His itching was pretty bad and we tried all kinds of stuff like you, but what worked was the steriods. Without the steriods he feels pretty awful and with the steroids he feels somewhat 'normal'.  You may ask your Onc about this to see if this is right for you.

I hope for the best of luck for you with your treatment!

Hi there, I've been on Pembro (Keytruda) for 3.5 years now.  For the first year I had the itchy/burning rash on my chest, and then in my 2nd year that disappeared and rash moved to the back of my scalp.  What finally worked for me and got rid of the itching and rash was using a few drops of Tea Tree Oil and Natures Gate Colloidal Oatmeal lotion.  I also used some Coconut Oil too.  The Tea Tree Oil has a medicine like smell, but it healed me and that was worth it to me.  

Best of luck, Laurie

Hi there, I've been on Pembro (Keytruda) for 3.5 years now.  For the first year I had the itchy/burning rash on my chest, and then in my 2nd year that disappeared and rash moved to the back of my scalp.  What finally worked for me and got rid of the itching and rash was using a few drops of Tea Tree Oil and Natures Gate Colloidal Oatmeal lotion.  I also used some Coconut Oil too.  The Tea Tree Oil has a medicine like smell, but it healed me and that was worth it to me.  

Best of luck, Laurie

Hi there, I've been on Pembro (Keytruda) for 3.5 years now.  For the first year I had the itchy/burning rash on my chest, and then in my 2nd year that disappeared and rash moved to the back of my scalp.  What finally worked for me and got rid of the itching and rash was using a few drops of Tea Tree Oil and Natures Gate Colloidal Oatmeal lotion.  I also used some Coconut Oil too.  The Tea Tree Oil has a medicine like smell, but it healed me and that was worth it to me.  

Best of luck, Laurie

Hi,

I feel for you, my brother is on the same meds as you and is  taking Hydroxyzine Pamoate 50 mg, three times a day for the itching.  I believe this is the same as Vistaril. My brother wanted me to suggest  you go to the drugstore and get oatmeal bath, (Aveeno ) or any brand. He says that it soothes for a couple of hours and is a great break !  Also, Caladryl clear is also wonderful, at the drugstore as well. You can appy 3 or 4 times a day (read instructions)

I am hopeful this will help you out !  Hang in there.  You are all SUPER WARRIORS !!!!

Let me know how this works for you.

Iris

Hi,

I feel for you, my brother is on the same meds as you and is  taking Hydroxyzine Pamoate 50 mg, three times a day for the itching.  I believe this is the same as Vistaril. My brother wanted me to suggest  you go to the drugstore and get oatmeal bath, (Aveeno ) or any brand. He says that it soothes for a couple of hours and is a great break !  Also, Caladryl clear is also wonderful, at the drugstore as well. You can appy 3 or 4 times a day (read instructions)

I am hopeful this will help you out !  Hang in there.  You are all SUPER WARRIORS !!!!

Let me know how this works for you.

Iris

Hi,

I feel for you, my brother is on the same meds as you and is  taking Hydroxyzine Pamoate 50 mg, three times a day for the itching.  I believe this is the same as Vistaril. My brother wanted me to suggest  you go to the drugstore and get oatmeal bath, (Aveeno ) or any brand. He says that it soothes for a couple of hours and is a great break !  Also, Caladryl clear is also wonderful, at the drugstore as well. You can appy 3 or 4 times a day (read instructions)

I am hopeful this will help you out !  Hang in there.  You are all SUPER WARRIORS !!!!

Let me know how this works for you.

Iris