› Forums › General Melanoma Community › Opdivo Story lol
- This topic has 6 replies, 6 voices, and was last updated 6 years, 9 months ago by CindyJ.
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- March 27, 2018 at 3:51 am
I never post on here, I’ve sat back silently for 1.5 years. Stage 4, on Opdivo for a year, after BRAF combo initially. Anyway I see some people here quarreling, life is too short for that! I wanted to give you all a good laugh so here’s my story:I’m in my early 30s and in decent shape (former college/pro football player) I try to maintain my appearance the best I can. I used to have a fire engine red beard, after a month of Opdivo all the color in my beard dissapered, I looked light Santa! So I know that vitiligo is a side effect and a good one.
So fast forward a year on Opdivo, I was using the men’s room today, and I noticed my genitals now have bleach white spots all over it. Yep I have vitiligo on my parts, I’ll laugh and take it as a good sign.Be good everyone, cannabis helps, and be good to one another
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- March 28, 2018 at 1:49 am
Great story, Annonymous! Now we'll be able to figure out who you are, but only in a full-body lineup.Thanks for making me laugh out loud. ~ Carol
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- March 30, 2018 at 12:35 am
Oh my! This is a hoot! Thanks for the laughs!
Julie
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- March 30, 2018 at 3:38 am
Right on brother! I'm with ya…After 6 cycles of IL-2, by sideburns greyed out. Fast forward to about 2 years after and around 6 months ago when I started Opdivo, in a matter of weeks my chin went grey. My wife finally gave up on controlling my facial hair situation and I've grown a fat grey beard. Dig it! Melanoma sucks, but at least I have my divine facial hair The grey has yet to go south…but who knows!
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